ERIC Number: EJ895727
Record Type: Journal
Publication Date: 2010-Aug
Abstractor: As Provided
"It's Our Job": Qualitative Study of Family Responses to Ableism
Neely-Barnes, Susan L.; Graff, J. Carolyn; Roberts, Ruth J.; Hall, Heather R.; Hankins, Jane S.
Intellectual and Developmental Disabilities, v48 n4 p245-258 Aug 2010
Forty-five parents of children with autism, cerebral palsy, Down syndrome, and sickle cell disease participated in 8 focus groups. Parents discussed how they, the child with the disability, and the siblings addressed community perceptions about the child's disability. Themes evolving from the interviews included (a) support and lack of support, (b) inclusion and exclusion, and (c) the family members' roles during their interactions with the community. Parents viewed their roles in the community as (a) advocating, (b) educating, (c) informing, (d) ignoring, and (e) hiding. The relationship between themes is presented, and the relationship between themes and parent empowerment is discussed as well as the ways in which the themes reflect underlying ableism.
Descriptors: Siblings, Autism, Focus Groups, Attitudes toward Disabilities, Genetic Disorders, Down Syndrome, Cerebral Palsy, Parents, Parent Attitudes, Social Attitudes, Social Bias, Interaction, Family Role, Advocacy, Empowerment
American Association on Intellectual and Developmental Disabilities. P.O. Box 7065, Lawrence, KS 66044-7065. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://aamr.allenpress.com
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A