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Grey, Jillian M.; Totsika, Vasiliki; Hastings, Richard P. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Providing long-term care to an adult relative with intellectual disability can impact negatively on caregivers' health and well-being. Methods: Data were collected via online and postal questionnaires on 110 family carers' physical and psychological health, family stress and perceived positive gains from caring. Psychological…
Descriptors: Caregivers, Intellectual Disability, Adults, Family Relationship
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Droogmans, Gilles; Vergaelen, Elfi; Van Buggenhout, Griet; Swillen, Ann – Journal of Applied Research in Intellectual Disabilities, 2021
Background Individuals with Phelan-McDermid syndrome (PMS) are characterised by phenotypical traits that can be experienced as challenging by their environment. This study assessed parenting stress and Family Quality of Life (FQOL) in parents of individuals with PMS and identified potential contributing variables. Method: Mothers (n = 14) and…
Descriptors: Genetic Disorders, Child Rearing, Stress Variables, Family Environment
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Tehee, Erin; Honan, Rita; Hevey, David – Journal of Applied Research in Intellectual Disabilities, 2009
Background: The study explores the experiences of parents of individuals with autistic spectrum disorders (ASDs), and examines the influences of parent gender and child age on perceived stress, stress and coping, child-rearing involvement, support and information/education accessed. Methods and Materials: Questionnaires assessed general perceived…
Descriptors: Mothers, Autism, Access to Information, Coping
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Hou, Yuh-Ming; Stewart, Lydia; Iao, Lai-Sang; Wu, Chin-Chin – Journal of Applied Research in Intellectual Disabilities, 2018
Background: This study examined the severity of parenting stress and depressive symptoms in Taiwanese mothers of young children with autism spectrum disorder (ASD) compared to mothers of young children with developmental delay (DD). The associations between parenting stress, depressive symptoms, and children's behavioural problems were also…
Descriptors: Depression (Psychology), Autism, Pervasive Developmental Disorders, Behavior Problems
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Walker, Ruth; Belperio, Irene; Gordon, Sally; Hutchinson, Claire; Rillotta, Fiona – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Little is known about how older parent caregivers from culturally and linguistically diverse (CALD) backgrounds experience caring for their family member with intellectual disability into late life. Method: In-depth semi-structured interviews were carried out with N = 19 family caregivers aged 50-91 from ten Italian and four Greek…
Descriptors: Coping, Stress Variables, Older Adults, Caregivers
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Kim, Go-en; Chung, Soondool – Journal of Applied Research in Intellectual Disabilities, 2016
Background: This study examines the utility of Pearlin's caregiving stress model for understanding the caregiving satisfaction of elderly mothers of adult children with intellectual disability. Methods: Mothers living in Seoul, Kyonggi, and Incheon who were 55 years of age or older and providing care for adult children with intellectual disability…
Descriptors: Foreign Countries, Mothers, Caregivers, Stress Variables
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Kimura, Miyako; Yamazaki, Yoshihiko – Journal of Applied Research in Intellectual Disabilities, 2016
Background: Although sense of coherence (SOC) moderates parental stress, the relationship between SOC, parental mental health and physical punishment of children with intellectual disabilities remains uncertain. The present authors describe parental physical punishment towards children with intellectual disabilities and investigate its related…
Descriptors: Foreign Countries, Punishment, Parent Child Relationship, Intellectual Disability
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Sellitto, Teresa; Fraser-Thomas, Jessica; Bassett-Gunter, Rebecca L.; Lee, Vivian; Lunsky, Yona; Balogh, Robert; Weiss, Jonathan A. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The COVID-19 pandemic has had a negative impact on the mental health of people with intellectual and developmental disabilities. Numerous pandemic-related stressors experienced by people with intellectual and developmental disabilities may have impacted their ability to thrive, which has been linked to mental health outcomes. The…
Descriptors: Mental Health, Intellectual Disability, Developmental Disabilities, COVID-19
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Kayfitz, Adam D.; Gragg, Marcia N.; Orr, R. Robert – Journal of Applied Research in Intellectual Disabilities, 2010
Background: The present study examined the positive experiences of parents raising school-aged children with autism within the context of parenting stress. Materials and Methods: Participants included 23 mother/father pairs raising children with autism (ages 5 to 11 years, M = 7.39). Parents completed measures of parenting stress and positive…
Descriptors: Mothers, Autism, Child Rearing, Adults
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MacDonald, Elaine E.; Hastings, Richard P.; Fitzsimons, Elaine – Journal of Applied Research in Intellectual Disabilities, 2010
Background: Previous research with mothers of children with intellectual disabilities has shown that psychological acceptance is related to maternal psychological well-being. The present research extended this line of enquiry to fathers and explored the potential for psychological acceptance to mediate the impact of children's behaviour problems…
Descriptors: Behavior Problems, Mental Retardation, Depression (Psychology), Fathers
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Larkin, P.; Jahoda, A.; MacMahon, K.; Pert, C. – Journal of Applied Research in Intellectual Disabilities, 2012
Background: Interpersonal conflict is a source of stress and contributes to poor mental health in people with mild to moderate intellectual disabilities. Understanding the contexts in which conflict typically occurs can better equip services to help people with such difficulties. However, existing studies into the contexts of conflict have…
Descriptors: Moderate Mental Retardation, Conflict, Young Adults, Interviews
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Aunos, Marjorie; Feldman, Maurice; Goupil, Georgette – Journal of Applied Research in Intellectual Disabilities, 2008
Background: There is a general agreement in the literature that no systematic correlation exists between parental intellectual disability "per se" and parenting performance. Yet, a few studies in the field of parents and parenting with intellectual disability have explored other potential determinants of parenting and child outcomes. In…
Descriptors: Check Lists, Mothers, Mental Retardation, Parenting Styles
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Weiss, Jonathan A.; Diamond, Terry – Journal of Applied Research in Intellectual Disabilities, 2005
Background: It is important to determine how programmes serving the individual with intellectual disability may also help to reduce stress in parents of adult children with intellectual disabilities. The aim of this study was to test whether parents who frequently watch their children at Special Olympics (SO) competitions report less stress than…
Descriptors: Mothers, Mental Retardation, Adults, Stress Variables
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Carr, Janet – Journal of Applied Research in Intellectual Disabilities, 2005
Background: The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years. Methods: A semi-structured interview schedule was used, including items from the…
Descriptors: Siblings, Sibling Relationship, Social Life, Quality of Life
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White, Nia; Hastings, Richard P. – Journal of Applied Research in Intellectual Disabilities, 2004
Background: Previous research has identified various dimensions of social support that are positively associated with parental well-being. However, most research does not include multiple measures of social support and uses heterogeneous samples in terms of child characteristics such as age and severity of intellectual disability. Methods:…
Descriptors: Social Support Groups, Family (Sociological Unit), Severe Mental Retardation, Depression (Psychology)
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