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Droogmans, Gilles; Vergaelen, Elfi; Van Buggenhout, Griet; Swillen, Ann – Journal of Applied Research in Intellectual Disabilities, 2021
Background Individuals with Phelan-McDermid syndrome (PMS) are characterised by phenotypical traits that can be experienced as challenging by their environment. This study assessed parenting stress and Family Quality of Life (FQOL) in parents of individuals with PMS and identified potential contributing variables. Method: Mothers (n = 14) and…
Descriptors: Genetic Disorders, Child Rearing, Stress Variables, Family Environment
Tehee, Erin; Honan, Rita; Hevey, David – Journal of Applied Research in Intellectual Disabilities, 2009
Background: The study explores the experiences of parents of individuals with autistic spectrum disorders (ASDs), and examines the influences of parent gender and child age on perceived stress, stress and coping, child-rearing involvement, support and information/education accessed. Methods and Materials: Questionnaires assessed general perceived…
Descriptors: Mothers, Autism, Access to Information, Coping
Aunos, Marjorie; Feldman, Maurice; Goupil, Georgette – Journal of Applied Research in Intellectual Disabilities, 2008
Background: There is a general agreement in the literature that no systematic correlation exists between parental intellectual disability "per se" and parenting performance. Yet, a few studies in the field of parents and parenting with intellectual disability have explored other potential determinants of parenting and child outcomes. In…
Descriptors: Check Lists, Mothers, Mental Retardation, Parenting Styles
Carr, Janet – Journal of Applied Research in Intellectual Disabilities, 2005
Background: The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years. Methods: A semi-structured interview schedule was used, including items from the…
Descriptors: Siblings, Sibling Relationship, Social Life, Quality of Life