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Direct linkDroogmans, Gilles; Vergaelen, Elfi; Van Buggenhout, Griet; Swillen, Ann – Journal of Applied Research in Intellectual Disabilities, 2021
Background Individuals with Phelan-McDermid syndrome (PMS) are characterised by phenotypical traits that can be experienced as challenging by their environment. This study assessed parenting stress and Family Quality of Life (FQOL) in parents of individuals with PMS and identified potential contributing variables. Method: Mothers (n = 14) and…
Descriptors: Genetic Disorders, Child Rearing, Stress Variables, Family Environment
