Toxoplasmosis infections are usually asymptomatic in health hosts, but can cause serious, sometimes life threatening, sequelae in infants when the mother acquires an acute infection during pregnancy and the parasite is transmitted via the placenta to the developing fetus. This article is part of a comprehensive research project investigating the long-term outcomes of congenitally infected children who were similarly treated for their first year of life after being exposed to T. gondii in the 1994-1995 outbreak in Victoria, British Columbia. Focus is on the experiences of parents with a congenitally infected child. Semi-structured interviews were conducted with parents of 10 out of 12 affected families. Results contextualize the familial experience of congenital toxoplasmosis and outline the perceived long-term physical and psychological effects. Recommendations are offered to help communities better manage the needs of similar families in the future. (Contains 2 tables.)