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Nicole T. Baumer; Margaret A. Hojlo; Angela M. Lombardo; Anna L. Milliken; Katherine G. Pawlowski; Sabrina Sargado; Cara Soccorso; Emily J. Davidson; William J. Barbaresi – Journal of Intellectual Disabilities, 2024
Down syndrome (DS) is a complex condition associated with multiple medical, developmental, and behavioral concerns. A prospective, longitudinal clinical database was integrated into a specialty Down Syndrome Program, with the goals of better understanding the incidence, course, and impact of co-occurring medical, neurodevelopmental, and mental…
Descriptors: Down Syndrome, Patients, Program Improvement, Databases
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Tali Heiman; Gilada Avissar – Journal of Intellectual Disabilities, 2024
Students with intellectual developmental disability (IDD) may have impairments in conceptual, social, and daily life areas that will require support when these students are included in mainstream settings. In order to examine the facilitators and impediments involved in inclusion of students with IDD in regular schools in Israel, we interviewed…
Descriptors: Foreign Countries, Parents, Principals, Inclusion
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Lemoine, Lise; Benoît Schneider – Journal of Intellectual Disabilities, 2023
Background: Life expectancy for people with Down syndrome is increasing, but older adults with Down syndrome are at greater risk of developing certain pathologies associated with ageing. When ageing parents can no longer look after their child with Down syndrome, their other children are often expected to shoulder this responsibility. Method: We…
Descriptors: Down Syndrome, Adults, Siblings, Sibling Relationship
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Josol, Cynde Katherine; Fisher, Marisa H.; Athamanah, Lindsay S. – Journal of Intellectual Disabilities, 2023
Friendships contribute to positive social outcomes such as the promotion of prosocial behaviors and social well-being and can lead to an overall healthy quality of life. Despite the importance of friendships, little is known about how individuals without disabilities develop and maintain friendships with individuals with intellectual and…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Friendship
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Hande, Vasudha; Jayan, Parvathy; Kishore, M. Thomas; Bhaskarapillai, Binukumar; Kommu, John Vijay Sagar – Journal of Intellectual Disabilities, 2023
Identifying the determinants of positive coping is a critical step in empowering the parents of children with intellectual disability. In this context, this study aims to develop a scale to assess the determinants of positive coping. Accordingly, culturally relevant items were pooled, got validated by experts and refined. The scale was…
Descriptors: Parents, Coping, Intellectual Disability, Children
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Carlsson, Õie Umb; Adolfsson, Päivi – Journal of Intellectual Disabilities, 2023
This study focuses on the subjective experience of the living conditions of adults with intellectual disabilities as related to the Uppsala Quality of Life model (UQoL2). Eleven semi-structured interviews were conducted to study issues raised by people with intellectual disabilities. Study participants had their own home, either in an ordinary…
Descriptors: Adults, Intellectual Disability, Quality of Life, Daily Living Skills
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Gobec, Charlotte; Turnbull, Matthew; Rillotta, Fiona – Journal of Intellectual Disabilities, 2022
Background: COVID-19 influenced education delivery worldwide. The Up the Hill Project (UTHP), a university mentoring program in Australia for people with intellectual disability, transitioned from a face-to-face to online format during 2020. Results: The experience of transitioning online for one semester (12-week period) had positives and…
Descriptors: Electronic Learning, Mentors, College Students, Students with Disabilities
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Barlott, Tim; Aplin, Tammy; Catchpole, Emma; Kranz, Rebecca; Le Goullon, Damian; Toivanen, Amanda; Hutchens, Sarah – Journal of Intellectual Disabilities, 2020
This study aimed to investigate the experiences of people with intellectual disability (ID) using information and communication technologies (ICTs) and the ways these technologies foster social connectedness. In partnership with a community mental health organization, this qualitative descriptive study explored the experiences of 10 people with ID…
Descriptors: Intellectual Disability, Information Technology, Interpersonal Relationship, Inclusion
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Corby, Deirdre; Sweeney, Mary Rose – Journal of Intellectual Disabilities, 2019
Researchers are challenged to provide opportunities for people with intellectual disabilities (IDs) and their families to become participants in research. This article explores the processes and procedures involved in conducting a mixed-methods study. The preparation for the study is described and explained. Recruitment is examined by describing…
Descriptors: Intellectual Disability, Mixed Methods Research, Athletics, Competition
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Sheehy, Kieron; Budiyanto; Kaye, Helen; Rofiah, Khofidotur – Journal of Intellectual Disabilities, 2019
A growing number of children with intellectual disabilities attend inclusive schools in Indonesia. Previous research has suggested that teachers' type of school and experience influences their beliefs about inclusive education. This research collected questionnaire data from 267 Indonesian teachers and compared the responses from those working in…
Descriptors: Foreign Countries, Epistemology, Teacher Attitudes, Beliefs
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McConkey, Roy; Keogh, Fiona; Bunting, Brendan; Iriarte, Edurne Garcia – Journal of Intellectual Disabilities, 2018
A natural experiment contrasted the self-rated well-being of people with intellectual disabilities (n = 75) and those with enduring mental health problems (n = 44) after they moved to new accommodation and support options, while others remained in congregated settings or living in the family home. Most support staff also provided well-being…
Descriptors: Intellectual Disability, Well Being, Group Homes, Comparative Analysis
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Aherne, Cian; Coughlan, Barry – Journal of Intellectual Disabilities, 2017
Background: Aquatics is an under-researched but possibly appropriate form of activity for people with severe to profound intellectual disabilities (SPIDs). Aim: The current pilot study investigates the suitability of an aquatics programme for service users with SPIDs. Method: Four service users with SPID completed an 8-12-session aquatics…
Descriptors: Severe Intellectual Disability, Aquatic Sports, Physical Activities, Caregivers
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Buell, Susan; Chadwick, Darren – Journal of Intellectual Disabilities, 2017
Services available for people with disabilities in Bolivia tend to be fragmented and costly. Children and adults with intellectual disabilities are more likely to have a related communication disability and are thus both literally and metaphorically excluded from having a voice. The following research aimed to explore the experiences of accessing…
Descriptors: Foreign Countries, Intellectual Disability, Children, Youth
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Roscoe, Paula; Petalas, Michael; Hastings, Richard; Thomas, Cathy – Journal of Intellectual Disabilities, 2016
There is a general lack of self-report data from service users with an intellectual disability (ID) about their views of psychological interventions. This research explored the views and experiences of female inpatients, with a diagnosis of a personality disorder and an ID, about dialectical behaviour therapy (DBT). Semi-structured interviews were…
Descriptors: Behavior Modification, Patients, Hospitals, Females
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Stansfield, Jois; Matthews, Alison – Journal of Intellectual Disabilities, 2014
The advanced clinical reasoning approach is widely adopted in speech and language therapy practice. This article reports on the introduction of the approach across a multidisciplinary adult learning disability service and staff reports on the impact of this initiative. Staff and team managers reported that the training had a positive impact on…
Descriptors: Logical Thinking, Speech Language Pathology, Therapy, Adults
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