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Coping with Uncertainty in Everyday Situations (CUES©) to Address Intolerance of Uncertainty in Autistic Children: An Intervention Feasibility Trial
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Rodgers, Jacqui; Goodwin, Jane; Garland, Deborah; Grahame, Victoria; Isard, Lucy; Kernohan, Ashleigh; Labus, Marie; Osborne, Malcolm; Parr, Jeremy R.; Rob, Priyanka; Wright, Catharine; Freeston, Mark – Journal of Autism and Developmental Disorders, 2023
Background: Anxiety related to uncertainty is common in autism. Coping with Uncertainty in Everyday Situations (CUES©) is a parent-mediated group intervention aiming to increase autistic children's tolerance to uncertain situations. A pilot study was conducted to test its feasibility and acceptability. Methods: Parents of 50 autistic children were…
Descriptors: Children, Autism Spectrum Disorders, Parents, Anxiety
What Is the Concordance between Parent- and Education Professional-Reported Adaptive Functioning in Autistic Children Using the VABS-II?
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Moore, Heather L.; Couteur, Ann Le; Charman, Tony; Green, Jonathan; Parr, Jeremy R.; Grahame, Victoria – Journal of Autism and Developmental Disorders, 2023
Adaptive functioning of autistic children is traditionally measured through informant-report, often from parents. Behaviour varies across settings though, and context-specific reports should be considered. Limited and inconsistent results show low parent-education professional concordance, but no research has yet explored item level response…
Descriptors: Autism Spectrum Disorders, Children, Child Behavior, Adjustment (to Environment)
The Mediating Effects of Alexithymia, Intolerance of Uncertainty, and Anxiety on the Relationship between Sensory Processing Differences and Restricted and Repetitive Behaviours in Autistic Adults
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Moore, Heather L.; Brice, Samuel; Powell, Lauren; Ingham, Barry; Freeston, Mark; Parr, Jeremy R.; Rodgers, Jacqui – Journal of Autism and Developmental Disorders, 2022
Distress caused by sensory processing differences for autistic individuals may be reduced by repetitive behaviours (RRB), including repetitive motor (RMB) and insistence on sameness (ISB) behaviours. Intolerance of uncertainty (IU) and anxiety mediate the relationship between sensory processing and RRB in autistic children. We replicated this…
Descriptors: Emotional Response, Anxiety, Sensory Experience, Autism Spectrum Disorders
Brief Report: Associations between Preverbal Social Communication Skills, Language and Symptom Severity in Children with Autism--An Investigation Using the Early Sociocognitive Battery
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Taylor, Lauren J.; Charman, Tony; Howlin, Patricia; Slonims, Vicky; Green, Jonathan; Aldred, Catherine; Aldred, Catherine; Le Couteur, Ann; Emsley, Richard A.; Grahame, Victoria; Humphrey, Neil; Leadbitter, Kathy; McConachie, Helen; Parr, Jeremy R.; Pickles, Andrew; Taylor, Carol; Balabanovska, Matea; Beach, Hilary; Byford, Sarah; Bennett, Claire; Carruthers, Sophie; Crook, Imogen; Danvers, Hannah; Dartnall, Kate; Ellis, Ceri; Foote, Hannah; Graham, Jessica; James, Kirsty; Jamieson, Sarah; Knight, Anna; Lowe, Jo; Madeley, Ruth; Mitchell, Olivia; Monteiro, Francisca; Moore, Heather L.; Morley, Helen; Rose, Jessica; Rogan, Leanne; Vosper, Susanna – Journal of Autism and Developmental Disorders, 2020
We investigated the early sociocognitive battery (ESB), a novel measure of preverbal social communication skills, in children with autism participating in the Paediatric Autism Communication Trial-Generalised (PACT-G). The associations between ESB scores, language and autism symptoms were assessed in 249 children aged 2-11 years. The results show…
Descriptors: Children, Autism, Pervasive Developmental Disorders, Interpersonal Communication
A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults
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Mason, David; Ingham, Barry; Urbanowicz, Anna; Michael, Cos; Birtles, Heather; Woodbury-Smith, Marc; Brown, Toni; James, Ian; Scarlett, Clare; Nicolaidis, Christina; Parr, Jeremy R. – Journal of Autism and Developmental Disorders, 2019
Autistic people are more likely to: be diagnosed with a range of physical health conditions (i.e. cardio-vascular disease); experience premature mortality (for most disease categories); and experience barriers to effectively accessing healthcare. This systematic review sought to identify studies that report on barriers and facilitators to physical…
Descriptors: Autism, Barriers, Access to Health Care, At Risk Persons
A Randomised Controlled Feasibility Trial of Immersive Virtual Reality Treatment with Cognitive Behaviour Therapy for Specific Phobias in Young People with Autism Spectrum Disorder
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Maskey, Morag; Rodgers, Jacqui; Grahame, Victoria; Glod, Magdalena; Honey, Emma; Kinnear, Julia; Labus, Marie; Milne, Jenny; Minos, Dimitrios; McConachie, Helen; Parr, Jeremy R. – Journal of Autism and Developmental Disorders, 2019
We examined the feasibility and acceptability of using an immersive virtual reality environment (VRE) alongside cognitive behaviour therapy (CBT) for young people with autism experiencing specific phobia. Thirty-two participants were randomised to treatment or control. Treatment involved one session introducing CBT techniques and four VRE…
Descriptors: Randomized Controlled Trials, Feasibility Studies, Computer Simulation, Anxiety
Enhancing the Validity of a Quality of Life Measure for Autistic People
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McConachie, Helen; Mason, David; Parr, Jeremy R.; Garland, Deborah; Wilson, Colin; Rodgers, Jacqui – Journal of Autism and Developmental Disorders, 2018
Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure--WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive…
Descriptors: Quality of Life, Autism, Pervasive Developmental Disorders, Test Validity
The Association between Child and Family Characteristics and the Mental Health and Wellbeing of Caregivers of Children with Autism in Mid-Childhood
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Salomone, Erica; Leadbitter, Kathy; Aldred, Catherine; Barrett, Barbara; Byford, Sarah; Charman, Tony; Howlin, Patricia; Green, Jonathan; Le Couteur, Ann; McConachie, Helen; Parr, Jeremy R.; Pickles, Andrew; Slonims, Vicky; Cole-Fletcher, Rachel; Gammer, Isobel; Maxwell, Jessica; Tobin, Hannah; Vamvakas, George; Cole-Fletcher, Rachle; Gammer, Isobel; Maxwell, Jessica; Tobin, Hannah; Vamvakas, George – Journal of Autism and Developmental Disorders, 2018
We examined predictors of mental health difficulties and wellbeing in caregivers of children with autism in the Pre-school Autism Communication Trial cohort in middle childhood (N = 104). Child's intellectual disability, daily living skills impairment, elevated emotional and behavioural difficulties, high educational level of caregiver and…
Descriptors: Mental Health, Well Being, Autism, Predictor Variables
Parents Suggest Which Indicators of Progress and Outcomes Should Be Measured in Young Children with Autism Spectrum Disorder
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McConachie, Helen; Livingstone, Nuala; Morris, Christopher; Beresford, Bryony; Le Couteur, Ann; Gringras, Paul; Garland, Deborah; Jones, Glenys; Macdonald, Geraldine; Williams, Katrina; Parr, Jeremy R. – Journal of Autism and Developmental Disorders, 2018
Evaluation of interventions for children with autism spectrum disorder (ASD) is hampered by the multitude of outcomes measured and tools used. Measurement in research with young children tends to focus on core impairments in ASD. We conducted a systematic review of qualitative studies of what matters to parents. Parent advisory groups completed…
Descriptors: Parents, Young Children, Pervasive Developmental Disorders, Autism