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Parent, Teacher and Observational Reports of Emotional and Behavioral Problems in Young Autistic Children
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Palmer, Melanie; Tarver, Joanne; Carter Leno, Virginia; Paris Perez, Juan; Frayne, Margot; Slonims, Vicky; Pickles, Andrew; Scott, Stephen; Charman, Tony; Simonoff, Emily – Journal of Autism and Developmental Disorders, 2023
Emotional and behavioral problems (EBPs) frequently occur in young autistic children. Discrepancies between parents and other informants are common but can lead to uncertainty in formulation, diagnosis and care planning. This study aimed to explore child and informant characteristics are associated with reported child EBPs across settings.…
Descriptors: Observation, Emotional Disturbances, Behavior Problems, Autism Spectrum Disorders
Development of the Observation Schedule for Children with Autism--Anxiety, Behaviour and Parenting (OSCA-ABP): A New Measure of Child and Parenting Behavior for Use with Young Autistic Children
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Palmer, Melanie; Paris Perez, Juan; Tarver, Joanne; Cawthorne, Thomas; Frayne, Margot; Webb, Sophie; Baker, Elena; Yorke, Isabel; Hay, Dale; Slonims, Vicky; Pickles, Andrew; Simonoff, Emily; Scott, Stephen; Charman, Tony – Journal of Autism and Developmental Disorders, 2021
Co-occurring emotional and behavioral problems (EBPs) frequently exist in young autistic children. There is evidence based on parental report that parenting interventions reduce child EBPs. More objective measures of child EBPs should supplement parent reported outcomes in trials. We describe the development of a new measure of child and parenting…
Descriptors: Child Behavior, Parent Child Relationship, Child Rearing, Autism
Introducing 'Predictive Parenting': A Feasibility Study of a New Group Parenting Intervention Targeting Emotional and Behavioral Difficulties in Children with Autism Spectrum Disorder
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Hallett, Victoria; Mueller, Joanne; Breese, Lauren; Hollett, Megan; Beresford, Bryony; Irvine, Annie; Pickles, Andrew; Slonims, Vicky; Scott, Stephen; Charman, Tony; Simonoff, Emily – Journal of Autism and Developmental Disorders, 2021
Parent-mediated interventions can reduce behavioral and emotional problems in children with ASD. This report discusses the development of the first group parent intervention targeting behaviors "and" anxiety in children with ASD, across the spectrum of cognitive and language ability. 'Predictive Parenting' was developed from the clinical…
Descriptors: Parents, Child Rearing, Intervention, Parent Education
Brief Report: Associations between Preverbal Social Communication Skills, Language and Symptom Severity in Children with Autism--An Investigation Using the Early Sociocognitive Battery
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Taylor, Lauren J.; Charman, Tony; Howlin, Patricia; Slonims, Vicky; Green, Jonathan; Aldred, Catherine; Aldred, Catherine; Le Couteur, Ann; Emsley, Richard A.; Grahame, Victoria; Humphrey, Neil; Leadbitter, Kathy; McConachie, Helen; Parr, Jeremy R.; Pickles, Andrew; Taylor, Carol; Balabanovska, Matea; Beach, Hilary; Byford, Sarah; Bennett, Claire; Carruthers, Sophie; Crook, Imogen; Danvers, Hannah; Dartnall, Kate; Ellis, Ceri; Foote, Hannah; Graham, Jessica; James, Kirsty; Jamieson, Sarah; Knight, Anna; Lowe, Jo; Madeley, Ruth; Mitchell, Olivia; Monteiro, Francisca; Moore, Heather L.; Morley, Helen; Rose, Jessica; Rogan, Leanne; Vosper, Susanna – Journal of Autism and Developmental Disorders, 2020
We investigated the early sociocognitive battery (ESB), a novel measure of preverbal social communication skills, in children with autism participating in the Paediatric Autism Communication Trial-Generalised (PACT-G). The associations between ESB scores, language and autism symptoms were assessed in 249 children aged 2-11 years. The results show…
Descriptors: Children, Autism, Pervasive Developmental Disorders, Interpersonal Communication
Adaptive Behaviour and Cognitive Skills: Stability and Change from 7 Months to 7 Years in Siblings at High Familial Risk of Autism Spectrum Disorder
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Salomone, Erica; Shephard, Elizabeth; Milosavljevic, Bosiljka; Johnson, Mark H.; Charman, Tony; Baron-Cohen, Simon; Bedford, Rachael; Bolton, Patrick; Chandler, Susie; Elsabbagh, Mayada; Fernandes, Janice; Garwood, Holly; Gliga, Teodora; Hudry, Kristelle; Jones, Emily J. H.; Pasco, Greg; Pickles, Andrew; Tucker, Leslie; Volein, Agnes – Journal of Autism and Developmental Disorders, 2018
Cognitive and adaptive behaviour abilities early in life provide important clinical prognostic information. We examined stability of such skills in children at high familial risk for ASD who either met diagnostic criteria for ASD at age 7 years (HR-ASD, n = 15) or did not (HR-non-ASD, n = 24) and low-risk control children (LR, n = 37),…
Descriptors: Children, At Risk Persons, Cognitive Ability, Behavior Problems
The Association between Child and Family Characteristics and the Mental Health and Wellbeing of Caregivers of Children with Autism in Mid-Childhood
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Salomone, Erica; Leadbitter, Kathy; Aldred, Catherine; Barrett, Barbara; Byford, Sarah; Charman, Tony; Howlin, Patricia; Green, Jonathan; Le Couteur, Ann; McConachie, Helen; Parr, Jeremy R.; Pickles, Andrew; Slonims, Vicky; Cole-Fletcher, Rachel; Gammer, Isobel; Maxwell, Jessica; Tobin, Hannah; Vamvakas, George; Cole-Fletcher, Rachle; Gammer, Isobel; Maxwell, Jessica; Tobin, Hannah; Vamvakas, George – Journal of Autism and Developmental Disorders, 2018
We examined predictors of mental health difficulties and wellbeing in caregivers of children with autism in the Pre-school Autism Communication Trial cohort in middle childhood (N = 104). Child's intellectual disability, daily living skills impairment, elevated emotional and behavioural difficulties, high educational level of caregiver and…
Descriptors: Mental Health, Well Being, Autism, Predictor Variables
The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention
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Leadbitter, Kathy; Aldred, Catherine; McConachie, Helen; Le Couteur, Ann; Kapadia, Dharmi; Charman, Tony; Macdonald, Wendy; Salomone, Erica; Emsley, Richard; Green, Jonathan; Barrett, Barbara; Barron, Sam; Beggs, Karen; Blazey, Laura; Bourne, Katy; Byford, Sarah; Cole-Fletcher, Rachel; Collino, Julia; Colmer, Ruth; Cutress, Anna; Gammer, Isobel; Harrop, Clare; Houghton, Tori; Howlin, Pat; Hudry, Kristelle; Leach, Sue; Maxwell, Jessica; Parr, Jeremy; Pickles, Andrew; Randles, Sarah; Slonims, Vicky; Taylor, Carol; Temple, Kathryn; Tobin, Hannah; Vamvakas, George; White, Lydia – Journal of Autism and Developmental Disorders, 2018
There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and…
Descriptors: Pervasive Developmental Disorders, Autism, Questionnaires, Quality of Life
Alexithymia in Adolescents with Autism Spectrum Disorder: Its Relationship to Internalising Difficulties, Sensory Modulation and Social Cognition
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Milosavljevic, Bosiljka; Carter Leno, Virginia; Simonoff, Emily; Baird, Gillian; Pickles, Andrew; Jones, Catherine R.; Erskine, Catherine; Charman, Tony; Happé, Francesca – Journal of Autism and Developmental Disorders, 2016
Alexithymia is a personality trait frequently found in adults with autism spectrum disorder (ASD), and has been linked to impairments in emotion recognition and empathy. The presentation of alexithymia within ASD at younger ages remains unexplored, and was examined in the present study. Alexithymia rates were significantly elevated in ASD (55%;…
Descriptors: Autism, Pervasive Developmental Disorders, Personality Traits, Emotional Response
Parent-Reported Gastro-Intestinal Symptoms in Children with Autism Spectrum Disorders
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Chandler, Susie; Carcani-Rathwell, Iris; Charman, Tony; Pickles, Andrew; Loucas, Tom; Meldrum, David; Simonoff, Emily; Sullivan, Peter; Baird, Gillian – Journal of Autism and Developmental Disorders, 2013
The objective of this study is to investigate whether parentally-reported gastro-intestinal (GI) symptoms are increased in a population-derived sample of children with autism spectrum disorders (ASD) compared to controls. Participants included 132 children with ASD and 81 with special educational needs (SEN) but no ASD, aged 10-14 years plus 82…
Descriptors: Autism, Children, Special Education, Special Needs Students
Intervention for Infants at Risk of Developing Autism: A Case Series
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Green, Jonathan; Wan, Ming Wai; Guiraud, Jeanne; Holsgrove, Samina; McNally, Janet; Slonims, Vicky; Elsabbagh, Mayada; Charman, Tony; Pickles, Andrew; Johnson, Mark – Journal of Autism and Developmental Disorders, 2013
Theory and evidence suggest the potential value of prodromal intervention for infants at risk of developing autism. We report an initial case series (n = 8) of a parent-mediated, video-aided and interaction-focused intervention with infant siblings of autistic probands, beginning at 8-10 months of age. We outline the theory and evidence base…
Descriptors: Intervention, At Risk Persons, Infants, Autism
Service and Wider Societal Costs of Very Young Children with Autism in the UK
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Barrett, Barbara; Byford, Sarah; Sharac, Jessica; Hudry, Kristelle; Leadbitter, Kathy; Temple, Kathryn; Aldred, Catherine; Slonims, Vicky; Green, Jonathan; Bourne, Katy; Blazey, Laura; Holt, Clare; Kapadia, Dharmi; MacDonald, Wendy; Pickles, Andrew; White, Lydia; Houghton, Tori; Taylor, Carol; Cutress, Anna; Leach, Sue; Le Couteur, Ann; McConachie, Helen; Barron, Sam; Colmer, Ruth; Randles, Sarah; Beggs, Karen; Collino, Julia; Howlin, Pat; Charman, Tony – Journal of Autism and Developmental Disorders, 2012
Autism spectrum disorders (ASD) are associated with a substantial economic burden, but there is little evidence of the costs in the early years; the period in which children are increasingly likely to be diagnosed. We describe the services used by 152 children aged 24-60 months with autism, report family out-of-pocket expenses and productivity…
Descriptors: Community Services, Autism, Family Characteristics, Costs
Precursors to Social and Communication Difficulties in Infants At-Risk for Autism: Gaze Following and Attentional Engagement
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Bedford, Rachael; Elsabbagh, Mayada; Gliga, Teodora; Pickles, Andrew; Senju, Atsushi; Charman, Tony; Johnson, Mark H. – Journal of Autism and Developmental Disorders, 2012
Whilst joint attention (JA) impairments in autism have been widely studied, little is known about the early development of gaze following, a precursor to establishing JA. We employed eye-tracking to record gaze following longitudinally in infants with and without a family history of autism spectrum disorder (ASD) at 7 and 13 months. No group…
Descriptors: Autism, Infants, At Risk Persons, Social Development
"Everyday Memory" Impairments in Autism Spectrum Disorders
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Jones, Catherine R. G.; Happe, Francesca; Pickles, Andrew; Marsden, Anita J. S.; Tregay, Jenifer; Baird, Gillian; Simonoff, Emily; Charman, Tony – Journal of Autism and Developmental Disorders, 2011
"Everyday memory" is conceptualised as memory within the context of day-to-day life and, despite its functional relevance, has been little studied in individuals with autism spectrum disorders (ASDs). In the first study of its kind, 94 adolescents with an ASD and 55 without an ASD completed measures of everyday memory from the Rivermead…
Descriptors: Autism, Verbal Learning, Memory, Pervasive Developmental Disorders
Regression, Developmental Trajectory and Associated Problems in Disorders in the Autism Spectrum: The SNAP Study
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Baird, Gillian; Charman, Tony; Pickles, Andrew; Chandler, Susie; Loucas, Tom; Meldrum, David; Carcani-Rathwell, Iris; Serkana, Devanitha; Simonoff, Emily – Journal of Autism and Developmental Disorders, 2008
We report rates of regression and associated findings in a population derived group of 255 children aged 9-14 years, participating in a prevalence study of autism spectrum disorders (ASD); 53 with narrowly defined autism, 105 with broader ASD and 97 with non-ASD neurodevelopmental problems, drawn from those with special educational needs within a…
Descriptors: Educational Needs, Autism, Pervasive Developmental Disorders, Children
Challenges in Evaluating Psychosocial Interventions for Autistic Spectrum Disorders
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Lord, Catherine; Wagner, Ann; Rogers, Sally; Szatmari, Peter; Aman, Michael; Charman, Tony; Dawson, Geraldine; Durand, V. Mark; Grossman, Lee; Guthrie, Donald; Harris, Sandra; Kasanri, Connie; Marcus, Lee; Murphy, Susan; Odom, Samuel; Pickles, Andrew; Scahill, Lawrence; Shaw, Evelyn; Siegel, Bryna; Sigman, Marian; Stone, Wendy; Smith, Tristram; Yoder, Paul – Journal of Autism and Developmental Disorders, 2005
In 2002, the National Institutes of Health sponsored a meeting concerning methodological challenges of research in psychosocial interventions in Autism Spectrum Disorders. This paper provides a summary of the presentations and the discussions that occurred during this meeting. Recommendations to federal and private agencies included the need for…
Descriptors: Pervasive Developmental Disorders, Meetings, Research Methodology, Intervention