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ERIC Number: EJ1330551
Record Type: Journal
Publication Date: 2022-Mar
Pages: 23
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0952-3383
EISSN: N/A
'I'm Always up against a Brick Wall with Them': Parents' Experiences of Accessing Support for Their Child with a Newly Recognised Developmental Disorder
McCarthy, Robyn; Blackburn, Carolyn; Mukherjee, Raja; Fleming, Kate; Allely, Clare; Kirby, Lauren; Cook, Penny A.
British Journal of Special Education, v49 n1 p41-63 Mar 2022
Three of the most prevalent developmental disorders (DDs) are autism spectrum disorder (ASD), attention-deficit/hyperactivity disorder (ADHD) and fetal alcohol spectrum disorder (FASD). As part of a study screening for DDs in Greater Manchester, UK, a unique opportunity was taken to explore parents' experiences of receiving reports about their child's previously unrecognised DD. Six parents out of a possible 16 took part in interviews, which were analysed thematically. Findings drawn from parental responses revealed a number of barriers to accessing support for their child's additional needs, including perceived resistance from schools, particularly for quiet, well-behaved girls, and difficulty in accessing assessment or referrals. There needs to be greater awareness of additional needs in children without externalising behaviours, the presence of gender-specific differences in the presentation of DDs, and FASD as a commonly occurring DD. Ultimately, better support for children with DDs would reduce the burden of unmet needs for the children and their families, and for wider services.
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: United Kingdom
Grant or Contract Numbers: N/A