It is perhaps inevitable that the academic study of learning disabilities is often undertaken by established scholars with little lived experience of the condition. So, what has it been like for someone from outside the academy, with a long career in the arts, who is also the father of a severely learning-disabled young man, to write a book-length…

This article traces and summarises historiographical trends in the history of learning disability. It identifies three major waves of historical approaches beginning with a medicalised analysis which emerged in the early 20th century. This presented a story of medical progress which began with the asylum movement of the 19th century and…

My name is Paul Christian. I am a Black British man with learning disabilities. The lives and experiences of Black people with learning disabilities are underrepresented in the UK history of learning disability. This article explains my involvement in activism to change this and shares the learning from these projects. It discusses the process of…

Background: In 2006, the United Nations agreed the "Convention On the Rights Of Persons With Disabilities." Article 19, 'Living independently and being included in the community' sets out the 'equal rights of all persons with disabilities to live in the community, with choices equal to others…' A generation earlier, a small group of…

This paper reviews the challenges faced by a team at the Grace Eyre Foundation in running a coproduced oral history project during the pandemic. It examines the benefits and challenges of working online, comparing this to face-to-face approaches. For over 100 years, the Grace Eyre Foundation has provided support to people with learning…

The history of self-advocacy in England has not been recorded, other than the stories of individuals and of some individual groups. We, therefore, decided to interview some leaders of the self-advocacy movement and some people who were allies and supporters. Three researchers, two self-advocates and one academic, interviewed 11 self-advocate…

Background: There is a strong ethical case and an urgent need for more participatory research practices in disability research but a lack of resources to support this. It is important to involve people with learning disabilities and carers at all stages, including when designing training for co-research. Methods: We co-developed training materials…

In this paper, the authors review life stories in learning disability research and practice since the 1960s. Although there is consistent evidence of their value in giving people a voice and an identity beyond the service label, they are not widely used in the provision of health and social care. This is despite long-standing policy commitments to…

Background: Positive Behavioural Support (PBS) provides an overarching framework for supporting quality-of-life improvements for people who use challenging behaviour. Rapport, or the lack of it, is well understood as a setting factor for some challenging behaviours. Intensive Interaction is an approach that, among other possible outcomes, can…

Background: Over 10 years ago, Lisa Scott first began making art at a studio in Sydney that supports people with intellectual disability to realise their creative ambitions. In this article, we consider what it has meant for Lisa to become an artist and, in the process, share the story of other big changes in her life. Methods: During…

This paper reports the use of a dialogic approach to working inclusively with two young people with intellectual disability as part of a Research Reference Committee for a project that examined how adults with intellectual disability and their families plan for their future. The paper begins with an overview of the role of the Research Reference…

This paper outlines, through a transnational discourse between partners in Egypt and the UK, an overview of the literature on the definition and features of autistic spectrum disorder (ASD) with associated learning needs and health conditions as applied to children and young people in Egypt. As a low- to middle-income country, Egypt has a poor and…

Background: Individuals with intellectual disability experience the same chronic diseases and conditions as the general population, but are more likely to have physical and psychological co-morbidities, resulting in a higher risk of experiencing pain and having more frequent or severe pain. Method: This position paper aims to highlight the…

People with Autism Spectrum Disorder (ASD) are born into families and influence family functioning both positively and negatively. One of the most enduring relationships a person with ASD will have is their relationship with a brother or sister. Services for people with ASD should provide effective support to families, which include brothers,…

This paper outlines a programme "Safe and Social" that has been implemented with adults with intellectual disability across multiple contexts in a service based in Ireland. The emphasis within the programme is on providing service users and staff with a framework and the necessary language to discuss social behaviours and boundaries,…