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Direct linkRaspa, Melissa; Bailey, Donald, Jr.; Bann, Carla; Bishop, Ellen – American Journal on Intellectual and Developmental Disabilities, 2014
Using data from a survey of 1,099 families who have a child with Fragile X syndrome, we examined adaptation across 7 dimensions of family life: parenting knowledge, social support, social life, financial impact, well-being, quality of life, and overall impact. Results illustrate that although families report a high quality of life, they struggle…
Descriptors: Genetic Disorders, Children, Adjustment (to Environment), Quality of Life
Raspa, Melissa; Bailey, Donald B., Jr.; Bishop, Ellen; Holiday, David; Olmsted, Murrey – American Journal on Intellectual and Developmental Disabilities, 2010
National survey data from 884 families were used to examine the overall health of children and adults with fragile X syndrome. Results indicate the rate of obesity in adults with fragile X syndrome is similar to the general population (30%). Male children with fragile X syndrome, however, had higher rates of obesity (31%) when compared with…
Descriptors: Obesity, Body Composition, Physical Activities, Physical Activity Level
Bailey, Donald B., Jr.; Raspa, Melissa; Holiday, David; Bishop, Ellen; Olmsted, Murrey – American Journal on Intellectual and Developmental Disabilities, 2009
Parents of 1,105 male and 283 female children with fragile X syndrome described functional skill attainment in eating, dressing, toileting, bathing/hygiene, communication, articulation, and reading. The majority of adult children had mastered many skills independently. Most adults were verbal, used the toilet, dressed, ate independently, bathed,…
Descriptors: Sentences, Intervention, Genetic Disorders, Daily Living Skills
