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Direct linkMcCarron, Mary; McCallion, Philip; Fahey-McCarthy, Elizabeth; Connaire, Kevin – Journal of Applied Research in Intellectual Disabilities, 2011
Aim: To better describe the role and timing of palliative care in supporting persons with intellectual disabilities and advanced dementia (AD). Background: Specialist palliative care providers have focused mostly on people with cancers. Working with persons with intellectual disabilities and AD offers opportunities to expand such palliative care…
Descriptors: Mental Retardation, Dementia, Focus Groups, Interviews
McCallion, Philip; Hogan, Mary; Santos, Flavia H.; McCarron, Mary; Service, Kathryn; Stemp, Sandy; Keller, Seth; Fortea, Juan; Bishop, Kathleen; Watchman, Karen; Janicki, Matthew P. – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Adults with intellectual disability are affected by dementia at equivalent and elevated rates, many surviving into advanced age. End of life care and support considerations come into play among these individuals when most are in the advanced stage of dementia. Methods: A preliminary report summarizing available literature and making…
Descriptors: Adults, Intellectual Disability, Dementia, Aging (Individuals)
Sloane, Philip D.; Zimmerman, Sheryl; Williams, Christianna S.; Hanson, Laura C. – Gerontologist, 2008
Purpose: To better understand the experiences and potential unmet need of persons who die in long-term care. Design and Methods: We conducted after-death interviews with staff who had cared for 422 decedents with dementia and 159 who were cognitively intact and received terminal care in U.S. nursing homes (NHs) or residential care-assisted living…
Descriptors: Residential Care, Hospices (Terminal Care), Dementia, Family Involvement
Thomas, Roger E.; Wilson, Donna; Sheps, Sam – Canadian Journal on Aging, 2006
We searched nine electronic databases for randomized controlled trials (RCTs) about care at the end of life and found 23 RCTs. We assessed their quality using the criteria of the Cochrane Collaboration. The RCTs researched three themes: (a) the effect of providing palliative care through dedicated community teams on quality of life, on the…
Descriptors: Dementia, Quality of Life, Life Satisfaction, Social Indicators
Fahey-McCarthy, Elizabeth; McCarron, Mary; Connaire, Kevin; McCallion, Philip – Journal of Policy and Practice in Intellectual Disabilities, 2009
Generally, staff working in settings that provide care for adults with intellectual disabilities (ID) have not received specific education with respect to extended care for terminal illnesses or late-stage dementia. Equally, staff working in specialist palliative care often are not familiar with the unique issues of supporting persons with…
Descriptors: Intervention, Mental Retardation, Dementia, Focus Groups
Watchman, Karen – Journal of Policy and Practice in Intellectual Disabilities, 2005
The author interviewed a small group of practitioners working in intellectual disability and palliative care settings about their perceptions of a number of end-of-life issues related to people with Down syndrome who were affected by dementia. The study, which took place in Scotland, identified a number of issues and perceptions expressed by the…
Descriptors: Mental Retardation, Dementia, Down Syndrome, Foreign Countries
