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Direct linkMcNamara, Beverley; Same, Anne; Rosenwax, Lorna – Journal of Intellectual Disabilities, 2020
Background: People with intellectual disabilities at the end of life are at risk of receiving inadequate and inequitable end-of-life care. This study explores their unmet needs, opportunities for person-centred care and experiences of health service use. Methods: Qualitative interviews with 26 experienced health professionals and carers were used…
Descriptors: Foreign Countries, Intellectual Disability, Self Determination, Individual Power
Health Promotion Challenges for Young Adults Living with Intellectual Disability and Type 1 Diabetes
Marks, Anne L.; Mahoney, Natasha; Chen, Yu-Wei; Cordier, Reinie; Buchanan, Angus; Wilson, Nathan J. – Journal of Intellectual Disabilities, 2022
Background: Self-management of type 1 diabetes mellitus (T1DM) can be challenging for people with intellectual disability. Often, parents provide health support due to lack of appropriate services outside the home. The study aim was to identify barriers and facilitators to T1DM self-management for young adults with intellectual disability and the…
Descriptors: Diabetes, Intellectual Disability, Caregivers, Family Environment
