Health symptoms of mothers of adolescents and adults with fragile X syndrome (FXS; n = 112) were compared to a nationally-representative sample of mothers of similarly-aged children without disabilities (n = 230) as well as to a sample of mothers of adolescents and adults with autism spectrum disorders (ASD; n = 96). Health symptoms experienced in…

The psychological well-being of fathers of children with developmental disabilities remains poorly understood. The present study examined depressive symptoms, pessimism, and coping in fathers of adolescents and young adults with Down syndrome (DS;n = 59), autism spectrum disorders (ASDs;n = 135), and Fragile X syndrome (n = 46). Fathers of sons or…

Autism awareness is spreading like wildfire. Diagnoses have increased at an astounding rate. The statistic most often quoted is that 1 child in 150 has autism. As if the high rate of autism diagnoses were not worrisome enough, many doctors are not properly trained, or kept up to date, on how to detect autism at the earliest possible age. In many…

Expressed emotion measures the emotional climate of the family and is predictive of symptom levels in a range of medical and psychiatric conditions. This study extends the investigation of the effects of expressed emotion to families of individuals with autism. A sample of 149 mothers co-residing with their adolescent or adult child with autism…

This article recounts the experiences of a family with a son with autism. Jean-Paul's two sisters, his brother, cousin, grandmother, father, and mother contribute their perspectives. Jean-Paul also speaks for himself. This account traces his life from his early childhood to independent adulthood. (Author/CR)

A father tells about his son with autism, who is now 26 years old, and describes how his son differs from the portrait of autism presented by professionals. The lessons he learned from his son and how his son helped him to become a more loving person are discussed. (Author/CR)

In this article, a mother of an adult son with autism discusses the neurology of autism that makes stress so difficult to handle, even when it is the excitement of something positive. The uniqueness of the disability is highlighted, including the need for routines and the lack of coping skills. (Contains three references.) (CR)

In this article, the mother of a son with autism shares her struggle to get a diagnosis, choose the right treatment, and face an unknown future for her son Luke, now age 5. Her worries about discrimination, neighborhood acceptance, and the effects of Luke's autism on his siblings are discussed. (CR)

In this article, a mother shares her experience of learning that her son has autism. Coping with the diagnosis, along with the stresses of family life, are discussed, including the effect of the diagnosis on her marriage, which ended in divorce. The need to persist is emphasized. (CR)

A mother writes of her early years with her son as a single parent and the difficult years with twin younger siblings when she was trying to find a diagnosis and help for her son. Her son is 9 years old now, and she reflects on her experiences. (Author/CR)