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Dunn, Kirsty; Jahoda, Andrew; Kinnear, Deborah – Journal of Applied Research in Intellectual Disabilities, 2021
Background: As life expectancy for people with an intellectual disability increases, there is a growing cohort of older father carers. This study aimed to gain a more in-depth understanding of older father carers' experiences of parenting. Methods: Semi-structured interviews were conducted with 7 older fathers (M = 63.9 years) and analysed using…
Descriptors: Older Adults, Fathers, Parent Child Relationship, Father Attitudes
Gibson, Cheryl A.; Sullivan, Debra K.; Ptomey, Lauren T.; Rice, Anna M.; Donnelly, Joseph E. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adolescents and young adults with intellectual and developmental disabilities are at risk of obesity. Parents influence their diet and physical activity behaviours and therefore, can play important roles in weight management. The aims of this qualitative study were to explore parents' experiences assisting their son or daughter to…
Descriptors: Parents, Intellectual Disability, Developmental Disabilities, Body Weight
Curryer, Bernadette; Stancliffe, Roger J.; Wiese, Michele Y.; Dew, Angela – Journal of Applied Research in Intellectual Disabilities, 2020
Background: The right of people with disability to be self-determining, to live a life of their choosing, is increasingly recognized and promoted. For adults with intellectual disability, support to enable self-determination may be required. This is often provided by family, yet little is understood about the experience of providing such support.…
Descriptors: Intellectual Disability, Sons, Daughters, Parent Child Relationship
Durling, Emily; Chinn, Deborah; Scior, Katrina – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Little is known about the lives of parents with intellectual disabilities from minority ethnic communities. Previous research suggests that what it means to live with intellectual disabilities varies across cultural contexts. The current research aimed to explore how cultural values and practices impact upon the experiences of parents…
Descriptors: Foreign Countries, Intellectual Disability, Minority Groups, Ethnic Groups
Sandhu, Prabhleen; Ibrahim, Jeyda; Chinn, Deborah – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Despite growing interest in the experiences and social barriers experienced by people with intellectual disabilities from ethnic minorities, the specific challenges associated with migration from abroad faced by these individuals and their families have been overlooked. This research focuses on narratives told by Turkish-speaking…
Descriptors: Intellectual Disability, Minority Groups, Turkish, Immigrants
Saldarriaga, Wilmar; Ruiz, Fabian Andres; Tassone, Flora; Hagerman, Randi – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Down syndrome (DS) and Fragile X syndrome (FXS) are the major genetic causes of intellectual disabilities. Here, we present a case of a 32-year-old woman with the diagnosis of both FXS and DS. She is the daughter of a 47-year-old pre-mutation woman who also has three sons with FXS. Methods: Cytogenetic testing detected the presence of…
Descriptors: Down Syndrome, Genetic Disorders, Intellectual Disability, Females
Young, Richard A.; Marshall, Sheila K.; Stainton, Tim; Wall, Jessie M.; Curle, Deirdre; Zhu, Ma; Munro, David; Murray, John; El Bouhali, Asmae; Parada, Filomena; Zaidman-Zait, Anat – Journal of Applied Research in Intellectual Disabilities, 2018
Introduction: Parents have found the transition to adulthood for their sons or daughters with intellectual and/or developmental disabilities (IDD) particularly challenging. The literature has not examined how parents work together and with others in face of this transition nor has it highlighted parental goals in this process. This study used a…
Descriptors: Young Adults, Developmental Disabilities, Intellectual Disability, Individualized Family Service Plans
Hines, Monique; Balandin, Susan; Togher, Leanne – Journal of Applied Research in Intellectual Disabilities, 2014
Background: Researchers acknowledge the importance of understanding how families of children with autism cope. Yet, little is known about the experiences of older parents of adults with autism. Materials and Methods: In-depth interviews were conducted with 16 older parents of adults with autism. Narrative analysis was used to gain insights into…
Descriptors: Autism, Parent Attitudes, Interviews, Phenomenology
Elford, Helen; Beail, Nigel; Clarke, Zara – Journal of Applied Research in Intellectual Disabilities, 2010
Background: Restraint is sometimes used on people with intellectual disabilities who display challenging behaviours, and may be justifiable as a last resort to prevent harm. A substantial proportion of such people are cared for within the family home. The aim of this paper is to explore parents' experiences of using restraint with their…
Descriptors: Mental Retardation, Discipline, Parenting Styles, Behavior Disorders
Carr, Janet – Journal of Applied Research in Intellectual Disabilities, 2005
Background: The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years. Methods: A semi-structured interview schedule was used, including items from the…
Descriptors: Siblings, Sibling Relationship, Social Life, Quality of Life