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Autism Spectrum Disorder in Down Syndrome: Experiences from Caregivers
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Noemi Alice Spinazzi; Alyssa Bianca Velasco; Drew James Wodecki; Lina Patel – Journal of Autism and Developmental Disorders, 2024
This study aimed to learn about the experiences of families of individuals with a dual diagnosis of Down syndrome (DS) and autism spectrum disorder (ASD) (DS-ASD), and to document the journey from early concerns to diagnosis and intervention. Caregivers completed an online survey describing their journey raising a child with DS-ASD. Survey…
Descriptors: Autism Spectrum Disorders, Down Syndrome, Family Attitudes, Caregiver Attitudes
Symptom Severity, Internalized and Externalized Behavioral and Emotional Problems: Links with Parenting Stress in Mothers of Children Recently Diagnosed with Autism
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Mello, Catherine; Rivard, Mélina; Morin, Diane; Patel, Shaneha; Morin, Marjorie – Journal of Autism and Developmental Disorders, 2022
The present study examined which aspects of the child's behavior and clinical profile accounted for three dimensions of parenting stress: related to parenting roles, to interactions with the child, and to the child. Measures of adaptive behavior, intellectual functioning, autism symptom severity, and challenging behavior and emotional difficulties…
Descriptors: Symptoms (Individual Disorders), Severity (of Disability), Behavior Problems, Parent Child Relationship
Neural Processing of Speech Sounds in ASD and First-Degree Relatives
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Patel, Shivani P.; Winston, Molly; Guilfoyle, Janna; Nicol, Trent; Martin, Gary E.; Nayar, Kritika; Kraus, Nina; Losh, Molly – Journal of Autism and Developmental Disorders, 2023
Efficient neural encoding of sound plays a critical role in speech and language, and when impaired, may have reverberating effects on communication skills. This study investigated disruptions to neural processing of temporal and spectral properties of speech in individuals with ASD and their parents and found evidence of inefficient temporal…
Descriptors: Cognitive Processes, Auditory Perception, Acoustics, Autism Spectrum Disorders
An Acoustic Characterization of Prosodic Differences in Autism Spectrum Disorder and First-Degree Relatives
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Patel, Shivani P.; Nayar, Kritika; Martin, Gary E.; Franich, Kathryn; Crawford, Stephanie; Diehl, Joshua J.; Losh, Molly – Journal of Autism and Developmental Disorders, 2020
This study examined prosody through characterization of acoustic properties of the speech of individuals with ASD and their parents, during narration. A subset of utterances were low-pass filtered and rated for differences in intonation, speech rate, and rhythm. Listener ratings were minimally related to acoustic measures, underscoring the…
Descriptors: Acoustics, Suprasegmentals, Autism, Pervasive Developmental Disorders
A Pilot Randomized Controlled Trial of the ACCESS Program: A Group Intervention to Improve Social, Adaptive Functioning, Stress Coping, and Self-Determination Outcomes in Young Adults with Autism Spectrum Disorder
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Oswald, Tasha M.; Winder-Patel, Breanna; Ruder, Steven; Xing, Guibo; Stahmer, Aubyn; Solomon, Marjorie – Journal of Autism and Developmental Disorders, 2018
The purpose of this pilot randomized controlled trial was to investigate the acceptability and efficacy of the Acquiring Career, Coping, Executive control, Social Skills (ACCESS) Program, a group intervention tailored for young adults with autism spectrum disorder (ASD) to enhance critical skills and beliefs that promote adult functioning,…
Descriptors: Pilot Projects, Randomized Controlled Trials, Intervention, Group Counseling
"I Was Confused … and Still Am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study
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Bhavnani, Supriya; Lockwood Estrin, Georgia; Arora, Rashi; Kumar, Divya; Kakra, Minal; Vajaratkar, Vivek; Juneja, Monica; Gulati, Sheffali; Patel, Vikram; Green, Jonathan; Divan, Gauri – Journal of Autism and Developmental Disorders, 2022
Timely recognition of autism in children is integral to improve developmental outcomes. This study used mixed-methods (84 case-registers and 20 in-depth interviews with caregivers of children with a diagnosis of autism) to explore the extent to which the nature of parental concerns and prior knowledge of developmental disorders impact the time…
Descriptors: Barriers, Help Seeking, Clinical Diagnosis, Autism
Achieving Independence and Mastery in School: An Open Trial in the Outpatient Setting
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Tamm, Leanne; Zoromski, Allison K.; Kneeskern, Ellen E.; Patel, Meera; Lacey, Heather M.; Vaughn, Aaron J.; Ciesielski, Heather A.; Weadick, Hannah K.; Duncan, Amie W. – Journal of Autism and Developmental Disorders, 2021
Youth with autism spectrum disorders (ASD) without intellectual disability frequently experience academic problems, in part due to executive functioning (EF) deficits. There are currently no evidence-based interventions targeting academic EF skills (e.g., organization, prioritization, etc.) for middle school youth with ASD. The need is critical…
Descriptors: Middle School Students, Autism, Pervasive Developmental Disorders, Executive Function
The Feasibility of Magnetic Resonance Imaging in a Non-Selective Comprehensive Clinical Trial in Pediatric Autism Spectrum Disorder
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DeMayo, Marilena M.; Pokorski, Izabella; Song, Yun J. C.; Thapa, Rinku; Patel, Shrujna; Ambarchi, Zahava; Soligo, Domenic; Sadeli, Indra; Thomas, Emma E.; Hickie, Ian B.; Guastella, Adam J. – Journal of Autism and Developmental Disorders, 2022
There is an increasing interest in using magnetic resonance imaging (MRI) as a tool for precision medicine in autism spectrum disorder (ASD). This study investigated the feasibility of MRI scanning in a large comprehensive, inclusive and test heavy clinical trial for children (aged 3-12 years) with ASD, without functioning constraints for…
Descriptors: Diagnostic Tests, Brain, Medicine, Autism
The Importance of Temperament for Understanding Early Manifestations of Autism Spectrum Disorder in High-Risk Infants
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Paterson, Sarah J.; Wolff, Jason J.; Elison, Jed T.; Winder-Patel, Breanna; Zwaigenbaum, Lonnie; Estes, Annette; Pandey, Juhi; Schultz, Robert T.; Botteron, Kelly; Dager, Stephen R.; Hazlett, Heather C.; Piven, Joseph; Piven, J.; Hazlett, H. C.; Chappell, C.; Dager, S.; Estes, A.; Shaw, D.; Botteron, K. N.; McKinstry, R. C.; Constantino, J.; Pruett, J.; Schultz, R. T.; Paterson, S.; Zwaigenbaum, L.; Elison, J.; Evans, A. C.; Collins, D. L.; Pike, G. B.; Fonov, V.; Kostopoulos, P.; Das, S.; Gerig, G.; Styner, M.; Gu, H. – Journal of Autism and Developmental Disorders, 2019
The present study investigated the relationship between infant temperament characteristics and autism spectrum disorder (ASD) risk status. Temperament was examined at 6, 12, and 24 months in 282 infants at high familial risk for ASD and 114 low-risk controls using the Infant Behavior Questionnaire-Revised and Early Childhood Behavior…
Descriptors: Autism, Pervasive Developmental Disorders, Infants, At Risk Persons