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Folch, Annabel; Martínez-Leal, Rafael; Vicens, Paloma; Irazábal, Marcia; Muñoz, Silvia; Salvador-Carulla, Luis; Rovira, Lluís; Orejuela, Carmen; Cortés, Maria José – Journal of Applied Research in Intellectual Disabilities, 2019
Background: People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in…
Descriptors: Intellectual Disability, Developmental Disabilities, Access to Health Care, Health Services
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Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.; Owen, Aleksa – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS),…
Descriptors: Barriers, Down Syndrome, Adults, Autism
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Perry, Adrienne; Charles, Meisha; Ncube, Busi; Weiss, Jonathan – Journal of Applied Research in Intellectual Disabilities, 2019
Background: School experience is an important part of the life of children with developmental disabilities (DD) and their families. Research suggests that parents of children vary in their level of satisfaction with their child's school, but methodology and results have varied and no consistent reliable measure of school satisfaction exists. This…
Descriptors: Developmental Disabilities, Parent Attitudes, School Effectiveness, Satisfaction
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Pan, Xinyu; Totsika, Vasiliki; Nicholls, Gemma; Paris, Andreas – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Adaptive skills measures tend to be lengthy. The GO4KIDDS (Great Outcomes for Kids Impacted by Severe Developmental Disabilities; (Journal of Applied Research in Intellectual Disabilities, 58, 2015 and 594)) Brief Adaptive Behaviour Scale was developed to provide a brief assessment of adaptive skills. Our study aimed to examine the…
Descriptors: Developmental Disabilities, Test Validity, Test Reliability, Psychometrics
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Zhou, Ni; Wong, Hai Ming; McGrath, Colman – Journal of Applied Research in Intellectual Disabilities, 2019
Background: A visual-verbal integration model (VVIM) was used to train parents and their children with intellectual and developmental disabilities (IDD) to dispense a pea-sized amount of fluoridated toothpaste, aiming to balance the occurrence of dental caries and fluorosis. Method: Participants were 370 pairs of IDD preschool children and their…
Descriptors: Intellectual Disability, Intervention, Dental Health, Preschool Children
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Friedman, Carli; Rizzolo, Mary C.; Spassiani, Natasha A. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Self-management of health includes people with intellectual and developmental disabilities (IDD) playing a key role in health management in collaborating with healthcare professionals. Methods: This study analysed data from Personal Outcome Measures® surveys (n = 1,341) to explore self-management of health. We had the following…
Descriptors: Self Management, Health Behavior, Intellectual Disability, Developmental Disabilities
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Ashworth, Maria; Palikara, Olympia; Van Herwegen, Jo – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Although parental stress is higher for children with neurodevelopmental disorders (NDs), it is unclear how this stress compares to more common NDs. The current study compared stress in parents of children with Williams syndrome (WS), Down syndrome (DS) and autism spectrum disorders (ASD). The impact of individual and contextual factors…
Descriptors: Developmental Disabilities, Neurological Impairments, Autism, Pervasive Developmental Disorders
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Brady, Anna M.; Burke, Meghan M.; Landon, Trenton; Oertle, Kathleen – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Siblings of adults with intellectual and developmental disabilities (IDD) often support their brothers and sisters through caregiving and guardianship. Methods: In this qualitative study, the knowledge and views of 10 adult siblings were explored. Results & Conclusions: The tripartite impact of limited knowledge of guardianship and…
Descriptors: Siblings, Sibling Relationship, Adults, Intellectual Disability
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Taylor, Whitney D.; Cobigo, Virginie; Ouellette-Kuntz, Hélène – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study explored the way families support self-determination in young adults with intellectual and developmental disabilities (IDD) during life transitions. Method: Qualitative case studies were conducted with two Canadian families who participated in semi-structured interviews and ethnographic observations every quarter for one…
Descriptors: Family Involvement, Self Determination, Young Adults, Intellectual Disability
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Damianidou, Despoina; Foggett, Judith; Wehmeyer, Michael L.; Arthur-Kelly, Michael – Journal of Applied Research in Intellectual Disabilities, 2019
Background: The aim of this study was to identify, extract, summarize and list the features of applied cognitive technology used to support employment-related outcomes for people with intellectual and developmental disabilities. Method: Thematic analysis was employed on a published research base of 41 studies obtained through a larger scoping…
Descriptors: Decision Making, Intellectual Disability, Developmental Disabilities, Assistive Technology
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Lindahl, Jane; Stollon, Natalie; Wu, Katherine; Liang, Angela; Changolkar, Sujatha; Steinway, Caren; Trachtenberg, Symme; Coccia, Audrey; Devaney, Maureen; Jan, Sophia – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Research shows that adults with intellectual and developmental disabilities (IDD) increasingly outlive caregivers, who often struggle to plan for the future and have little support and knowledge surrounding long-term care planning. Methods: The study team conducted interviews with parents and siblings of adults with IDD and performed…
Descriptors: Health Services, Long Range Planning, Adults, Developmental Disabilities