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ERIC Number: EJ1125269
Record Type: Journal
Publication Date: 2016
Pages: 22
Abstractor: As Provided
ISSN: EISSN-2372-451X
A Cross-Sectional Study of School Experiences of Boys with Duchenne and Becker Muscular Dystrophy
Soim, Aida; Lamb, Molly; Campbell, Kimberly; Pandya, Shree; Peay, Holly; Howard, James F., Jr.; Fox, Deborah
Physical Disabilities: Education and Related Services, v35 n2 p1-22 2016
The objectives of this study were to investigate types of supportive school services received and factors related to provision of these services. We conducted a cross-sectional study to describe the school experience of males with Duchenne and Becker muscular dystrophies. Study subjects were identified through the Muscular Dystrophy Surveillance, Tracking, and Research Network. Non-ambulatory males with Duchenne muscular dystrophy (DMD) were significantly more likely to use an instructional assistant and resource room support when compared to ambulant males with DMD at the time of the caregiver interview. Males with DMD who received occupational therapy were more likely to use an instructional assistant, while those who received speech therapy were more likely to repeat a grade, use an instructional assistant, and receive resource room support. Males with DMD whose primary caregivers had less than 12 years of education were more likely to use an instructional assistant and resource room support. Non-ambulatory males with DMD should continue receiving appropriate school accommodations so they can keep pace with their physical demands. Males with DMD with speech deficits should be considered for various educational interventions. [This article was also written by the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet).]
Division for Physical, Health, and Multiple Disabilities, Council for Exceptional Children. 1110 North Glebe Road Suite 300, Arlington, VA 22201. Tel: 888-232-7733; Fax: 703-264-9494; Web site:
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: Centers for Disease Control and Prevention (DHHS/PHS)
Authoring Institution: N/A
Identifiers - Location: New York; Arizona; Colorado; Georgia; Iowa
Grant or Contract Numbers: DD000187; DD000189; DD000190; DD000191; DD001116