ERIC Number: EJ1093176
Record Type: Journal
Publication Date: 2016-Apr
Pages: 20
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0162-3257
EISSN: N/A
Understanding Hong Kong Chinese Families' Experiences of an Autism/ASD Diagnosis
Tait, Kathleen; Fung, Francis; Hu, Aihua; Sweller, Naomi; Wang, Wei
Journal of Autism and Developmental Disorders, v46 n4 p1164-1183 Apr 2016
Little is known about the experience of Chinese parents of children diagnosed with autism spectrum disorders (ASD) living in the Hong Kong Special Administrative Region. Seventy-five parents of children (aged 6 months-18 years) with ASD diagnoses completed the Family Quality of Life Scale. Forty-five parents from the original surveyed cohort, also participated in semi-structured interviews. Parents' perceptions of their child's disability were influenced both by their cultural background and by the limited and expensive, pre- and post-diagnostic services available. Longer waiting times to diagnosis were associated with lower emotional well-being and perceived disability-related support. Clinicians are encouraged to become part of the support network for parents of children with ASD, to help parents to adjust to caring for their child.
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Experience, Children, Quality of Life, Family Life, Parent Surveys, Semi Structured Interviews, Parent Attitudes, Cultural Background, Clinical Diagnosis, Well Being, Foreign Countries
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Hong Kong
Grant or Contract Numbers: N/A