This study examined the extent that pulmonary function is related to perceived health status and global quality of life in adults suffering from cystic fibrosis, and the extent that self-efficacy modifies these relationships. Our sample comprised 86 adults (48% female; mean age, 29 years; age range, 18-54 years) with cystic fibrosis, recruited…

Intended for the young adult with cystic fibrosis, the booklet provides information on dealing with problems and on advances in treatment and detection related to the disease. Addressed are the following topics: description of cystic fibrosis; inheritance of cystic fibrosis; early diagnosis; friends, careers, and other matters; treatment;…

Earlier diagnosis and more effective treatments have improved both morbidity and mortality associated with cystic fibrosis, making regular school attendance a reality. School nurses have a unique opportunity to assist students with cystic fibrosis successfully manage their disease. Medical treatment for cystic fibrosis can be complex, leaving…

The paper dispels some of the myths regarding cystic fibrosis (a genetic metabolism disorder), provides information on the latest developments in rehabilitation, summarizes research in the field, and projects future needs of the patient with cystic fibrosis. (SBH)

For years "Exceptional Parent" ("EP") has been offering educational information and support to those challenged with disabilities and takes an equally pro-active role in disseminating vital information that could potentially prevent disabilities. This is evidenced by its past and ongoing efforts in being a proponent and champion for comprehensive…

Discusses how a strength and conditioning program can be safety incorporated into the daily life of people with cystic fibrosis as a complementary therapy to medications, regular checkups, bronchial drainage, and respiratory therapy, examining physical restrictions and guidelines, exercise prescriptions, and exercise applications, and explaining…

When a student passes away it is difficult for the entire school community. Teachers, students, and staff all feel a sense of loss and the need to do something to mitigate that feeling. Desiring a different kind of memorial, the author wanted her students to learn that they could use art to help others, as well as themselves. The author came up…

An account of how families cope with the day-to-day process of living with cystic fibrosis. (CM)

Investigated in 16 persons ages 3 to 23 years with severe cystic fibrosis was the absorption level of digoxin (a lipid soluble medication). (CL)

Cystic Fibrosis and its effects on children are described as well as one child's means of coping with a chronic illness such as this in a school setting. (JMF)

Social learning theory formed the basis of a program to develop self-management skills in cystic fibrosis patients. Strategies for practical learning activities for patients and their families included goal setting, reinforcement, modeling, skill training, and self-monitoring. (SK)

An assessment of the impact of cystic fibrosis (CF) was conducted with 43 families. The impact of hospitalization upon parents was the most prevalent major problem. Parental communication was a "major problem" for 28% of the mothers but only one father. (Author/CL)

Explored vocational development, self-concept, and vocational adjustment of persons with cystic fibrosis. The following measures of vocational development correlated with work adjustment: vocational plans, educational plans, initiative, occupational information, and average vocational development score. Vocational development did not correlate…

This study, with 10 adult patients with cystic fibrosis, found that the improvement in lung function and ergometry parameters obtained by a short in-patient training program could be maintained on an out-patient basis through a voluntary self-treatment program. (DB)

Investigates retrieval performance of controlled and uncontrolled subject representations as a function of retrieval expectation in the cystic fibrosis (CF) database. (Contains 22 references.) (KRN)