Designed primarily for parents of children with genetic disorders, the booklet provides information about parent groups. Part 1 describes parent groups, including organization, types of groups, and methods of outreach. A sample letter of invitation to attend a parent group and an outline of the initial meeting is included along with a list of three books on the topic of self help organizations. In Part 2, suggested discussion topics are presented and educational, health care, and advocacy activities are described. The final part provides addresses of federal programs working with genetic disorders and organizations concerned with either genetics in general or with a specific condition. (PHR)