The 'What Being the Parent of a New Baby is Like--Revised' (WPL-R) is an instrument designed to measure adaptation to parenthood. In the process of pilot testing and validating the WPL-R in a postpartum Dutch population, we became aware of the potentially sensitive nature of the measure. Despite the ethics committee waiving the invasive nature of…

Concerns around comprehension and recall of consent information by research participants have typically been associated with low health and research literacy levels. In genomics research, this concern is heightened as the scientific and ethical complexities of genetics research, such as biobanking, genetic susceptibility, data sharing, and…

There has been growing enthusiasm amongst those who undertake research with children, for the development of participatory and visual research methods. The greater availability and affordability of digital technology (such as digital cameras, tablets and smart phones) has meant that there has been greater scope for digital technology to support…

Qualitative researchers often face unpredictable ethical issues during fieldwork. These may be regarded as ethical dilemmas that need to be 'solved', but Guillemin and Gillam's concept of 'ethically important moments' provides an alternative framing. Using examples, their concept is developed to suggest that ethical issues in the conduct of…

The impact on researchers of working with sensitive data is often not considered by ethics committees when approving research proposals. We conducted interviews with eight research assistants processing clinical notes on emergency department presentations for deliberate self-harm and suicide attempts during a suicide prevention trial. Common…

We argue a main but underappreciated reason why the Facebook emotional contagion experiment is ethically problematic is that it co-opted user data in a way that violated identity-based norms and exploited the vulnerability of those disclosing on social media who are unable to control how personal information is presented in this technologically…

Though we would expect the revelation of the Facebook emotional manipulation study to have had a negative impact on Facebook, its number of active users only continues to grow. As this is precisely the result that Jacques Ellul would have predicted, this paper examines his philosophy of technology in order to investigate the relationship between…

When the public outcry concerning the 'Facebook experiment' began, many commentators drew parallels to controversial social science experiments from a prior era. The infamous Milgram (1963) and Zimbardo (1973) experiments concerning the social psychology of obedience and aggression seemed in some ways obvious analogs to the Facebook experiment, at…

This article argues that the study conducted by Facebook in conjunction with Cornell University did not have sufficient ethical oversight, and neglected in particular to obtain necessary informed consent from the participants in the study. It establishes the importance of informed consent in Internet research ethics and suggests that in Facebook's…

In June 2014, a paper reporting the results of a study into 'emotional contagion' on Facebook was published. This research has already attracted a great deal of criticism for problems surrounding informed consent. While most of this criticism is justified, other relevant consent issues have gone unremarked, and the study has several other ethical…

This research ethics article focuses on an unexpected finding from my Master's thesis examining bereaved participants' experiences of taking part in sensitive qualitative research: some participants wanted their real names used in my written dissertation and any subsequent empirical publications. While conducting interviews for my thesis and…

Published in 2014, the Facebook "emotional contagion" study prompted widespread discussions about the ethics of manipulating social media content. By and large, researchers focused on the lack of corporate institutional review boards and informed consent procedures, missing the crux of what upset people about both the study and…