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ERIC Number: EJ1242238
Record Type: Journal
Publication Date: 2020
Pages: 21
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1050-8406
EISSN: N/A
At Home with Data: Family Engagements with Data Involved in Type 1 Diabetes Management
Lee, Victor R.; Dubovi, Ilana
Journal of the Learning Sciences, v29 n1 p11-31 2020
This article reports on an exploratory study of quantitative data use situated in families' management routines while taking care of a child with Type 1 diabetes (T1D). T1D treatment requires frequent measurement and recording of numerical data about blood sugar concentration, nutritional intake, and insulin dosage at the child's home, at school, and at other activities. We analyze coordination work between family members and others involved in the care of children with T1D using the lens of distributed cognition, and we introduce the notion of a data catchment to refer to the pathways of data flow and information storage within and between multiple agents and spaces. Interviews and observations reveal three main features of storage and use in data catchments: First, there is a great variability in how data move and are retained to enable communication between family members and others. Second, families tended to focus more on individual data points and less on aggregate readings despite some indications of ability to narrate through aggregate readings. Third, families engage in recurrent conversations and sometimes use novel artifacts to make numerical values meaningful to children with T1D. Implications for understanding this space of practice as constituting a data catchment are discussed.
Routledge. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: National Science Foundation (NSF)
Authoring Institution: N/A
Grant or Contract Numbers: DRL1054280