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Top, Fadime Üstüner – Journal of Intellectual Disabilities, 2022
This cross-sectional study was carried out in order to determine the opinions of mothers on sexual development in children with intellectual disabilities. The sampling of this study included mothers of children aged 10-19 years with moderate and severe intellectual disabilities. Of the mothers, 45.7% stated that they felt incapable of providing…
Descriptors: Sexuality, Case Studies, Mother Attitudes, Children
Mullally, Feabhra; Corby, Deirdre – Journal of Intellectual Disabilities, 2022
Literature pertaining to open disclosure predominantly refers to acute care settings; this is the case in, for example, the UK, Republic of Ireland, Australia, Korea and the USA. There is, however, a dearth of literature regarding open disclosure related to people with intellectual disabilities. A practice example of open disclosure is presented…
Descriptors: Foreign Countries, Intellectual Disability, Adults, Communication Disorders
Oliver, Amy; Munk, Niki; Stanton-Nichols, Kathleen A. – Journal of Intellectual Disabilities, 2022
Adults with disabilities are 57% less physically active than individuals without disabilities and two times as likely to be obese. With obesity, adults with disabilities also face increased risk of comorbid disabilities stemming from obesity. The purpose of this theoretical case study was to identify key behavioral change theories which may be…
Descriptors: Intellectual Disability, Adults, Obesity, Physical Activity Level
Rinaldi, Romina; Duplat, Jordan; Haelewyck, Marie-Claire – Journal of Intellectual Disabilities, 2022
Background: People with intellectual disabilities experience inequities in healthcare. Those are maintained by individual limitations as well as environmental factors. In this context, health needs are less likely to be expressed, identified and met. Method: We led a survey in 832 adults with intellectual disabilities to identify if health was set…
Descriptors: Adults, Intellectual Disability, Access to Health Care, Needs
Mert, Selda; Kösgeroglu, Nedime – Journal of Intellectual Disabilities, 2022
Aim: This study aimed to identify the problems families of people with intellectual and developmental disabilities face in meeting their family members' care needs, using the Model of Nursing Based on Activities of Living, and planned implemented and evaluated the nursing interventions to fulfill these care needs. Method: A cross-sectional…
Descriptors: Intellectual Disability, Developmental Disabilities, Health Needs, Nursing
Tschamper, Merete Kristin; Systad, Silje – Journal of Intellectual Disabilities, 2022
Persons with rare, epilepsy-related disorders often have intellectual disability and need long-term care. Informal and formal caregivers need information in order to care for the persons in a safe way. Aims: The aims of this review were: (1) to obtain an overview of caregiver-reported information needs; and (2) to investigate if there are…
Descriptors: Intellectual Disability, Epilepsy, Caregivers, Access to Information
Davenport, Stacy; Zolnikov, Tara Rava – Journal of Intellectual Disabilities, 2022
Background: Parenting a child diagnosed with intellectual disability includes a variety of stressors. The degree to which stress affects these parents has been given little emphasis. Compassion fatigue includes experiencing an emotional response to being unable to relieve the suffering of a loved one, burnout, strain and stress on the caregiver.…
Descriptors: Intellectual Disability, Parents, Stress Variables, Altruism
Ee, Jonathan; Stenfert Kroese, Biza; Rose, John – Journal of Intellectual Disabilities, 2022
Background: Mental health professionals play an important role in providing care and treatment for adults with intellectual disabilities. A number of studies use qualitative methods to explore the experiences of these professionals and their perspectives regarding the mental health services for this population. A systematic review using…
Descriptors: Intellectual Disability, Adults, Health Personnel, Mental Health
Saldarriaga, Wilmar; González-Teshima, Laura Yuriko; Forero-Forero, Jose Vicente; Tang, Hiu-Tung; Tassone, Flora – Journal of Intellectual Disabilities, 2022
Fragile X syndrome (FXS) has a classic phenotype, however its expression can be variable among full mutation males. This is secondary to variable methylation mosaicisms and the number of CGG triplet repeats in the non-coding region of the Fragile X Mental Retardation 1 ("FMR1") gene, producing a variable expression of the Fragile X…
Descriptors: Genetic Disorders, Heredity, Symptoms (Individual Disorders), Intellectual Disability
McCausland, Darren; Murphy, Esther; McCarron, Mary; McCallion, Philip – Journal of Intellectual Disabilities, 2022
Person-centred planning (PCP) puts individuals with an intellectual disability at the centre of service and support planning, identifying how individuals wish to live their lives and what is needed to make that possible. PCP has been identified as having the potential to facilitate improved social inclusion and community participation. A…
Descriptors: Adults, Planning, Severe Intellectual Disability, Program Effectiveness
Mahon, Dearbaile; Walsh, Edith; Holloway, Jennifer; Lydon, Helena – Journal of Intellectual Disabilities, 2022
Behaviour support plans (BSPs), if accurately implemented, have been found to increase skills and decrease challenging behaviour of individuals with intellectual and developmental disabilities. Training is essential for staff to acquire the skills necessary for accurate implementation. The aim of this systematic literature review was to evaluate…
Descriptors: Positive Behavior Supports, Intellectual Disability, Developmental Disabilities, Residential Care
Vergunst, Richard; McKenzie, Judith; Hansen, Anthea – Journal of Intellectual Disabilities, 2022
In the South African context, children with severe to profound intellectual disabilities are not accommodated in the compulsory education system, although steps are being taken in this direction in acknowledgement of their right to education. Critical to this development is the training of educators and caregivers. There is a paucity of studies…
Descriptors: Foreign Countries, Special Education Teachers, Caregivers, Capacity Building
Connor, Eilis O.; Corcoran, Yvonne – Journal of Intellectual Disabilities, 2022
This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recruited 10 participants. Data was collected using one to one semi-structured interviews and…
Descriptors: Nurses, Children, Intellectual Disability, At Risk Persons
Samways, Beverley – Journal of Intellectual Disabilities, 2022
Background: National Institute for Health and Care Excellence (NICE, 2013) Guidance on Self-Harm states that professionals supporting people who self-harm should demonstrate compassion, respect and dignity. This literature review examines the evidence for professionals' attitudes towards people with intellectual disabilities who self-harm. Method:…
Descriptors: Intellectual Disability, Self Destructive Behavior, Professional Personnel, Attitudes
Riemersma, I.; Van Santvoort, F.; Van Doesum, K. T. M.; Hosman, C. M. H.; Janssens, J. M. A. M.; Weeland, M.; Otten, R. – Journal of Intellectual Disabilities, 2022
Introduction: Children of parents with mental health concerns are at-risk for social-emotional problems. In this study, we assessed whether children with a mild intellectual disability and parents with mental health concerns are particularly at-risk. Method: Strengths and Difficulties Questionnaire (SDQ) reports of children with a mild…
Descriptors: Parents, Mental Disorders, Mild Intellectual Disability, At Risk Persons