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Sawako Furukawa; Nobutoshi Nawa; Yui Yamaoka; Takeo Fujiwara – Journal of Intellectual Disabilities, 2024
Background: People with intellectual disabilities (IDs) and their caregivers face difficulties during the COVID-19 pandemic. However, limited studies have comprehensively investigated their challenges, especially in Japan. We aimed to clarify the concerns and needs of people with IDs and their caregivers during the COVID-19 pandemic in Japan.…
Descriptors: Foreign Countries, Barriers, COVID-19, Pandemics
Tali Heiman; Gilada Avissar – Journal of Intellectual Disabilities, 2024
Students with intellectual developmental disability (IDD) may have impairments in conceptual, social, and daily life areas that will require support when these students are included in mainstream settings. In order to examine the facilitators and impediments involved in inclusion of students with IDD in regular schools in Israel, we interviewed…
Descriptors: Foreign Countries, Parents, Principals, Inclusion
Lo, Julia Wing Ka; Ma, Joyce Lai Chong; Wong, Mooly Mei Ching; Yau-Ng, Monica Lai Tuen – Journal of Intellectual Disabilities, 2023
The suspension of social services in Hong Kong during the COVID-19 pandemic increased the caregiver strain for families of adolescent children with intellectual disabilities, possibly aggravating their family relationships. This article reports on an online Multi-Family Group (MFG) conducted during the pandemic for Hong Kong Chinese families of…
Descriptors: Foreign Countries, COVID-19, Pandemics, Adolescents
Vandesande, Sien; Bosmans, Guy; Sterkenburg, Paula; Schuengel, Carlo; Maes, Bea – Journal of Intellectual Disabilities, 2023
Background: A digital micro-intervention offering attachment psychoeducational videos was explored regarding its feasibility in parents of children with severe disabilities. Method: A mixed-methods study (including daily diaries and one-time questionnaires) with 16 parents (75.0% female) of children with severe disabilities (up to 10 years of age)…
Descriptors: Video Technology, Parent Education, Intervention, Children
Niedbalski, Jakub – Journal of Intellectual Disabilities, 2023
Introduction/background: The research focuses primarily on how parents construct images of themselves and their children that diverge from the narrative of disability as a life tragedy and focus on emphasizing dignity and self-esteem. Methods: The research was qualitative. A technique of an unstructured interview conducted with parents of people…
Descriptors: Child Rearing, Parent Attitudes, Self Concept, Disabilities
Alabri, Waleed – Journal of Intellectual Disabilities, 2023
Down syndrome (DS) is a chromosomal condition that is affecting an increasing number of infants born in Saudi Arabia. This study investigates the needs of families with children with DS in Saudi Arabia from mothers' perspectives and in a cultural and religious context. An exploratory qualitative research design was used, and semi-structured…
Descriptors: Foreign Countries, Down Syndrome, Children, Mothers
Sangster, Sarah L.; DeLucry, Kailey J.; Lawson, Karen L. – Journal of Intellectual Disabilities, 2023
Parents of children with Down syndrome (DS) were interviewed about if their experiences raising their children matched their initial assumptions about parenting a child with DS. A dominant narrative was identified, wherein most parents described initially having negative assumptions, which did not come to fruition; parenting their child was not…
Descriptors: Parents, Children, Down Syndrome, Parent Attitudes
Mc Grane, Fiona; Lynn, Fiona; Balfe, Joanne; Molloy, Eleanor; Marsh, Lynne – Journal of Intellectual Disabilities, 2023
Globally it is estimated that Down syndrome occurs in 1 in 800 live births (Bull 2020). It has also been estimated that the incidence of Down syndrome occurs in 1/444 live births in the Republic of Ireland. Given the prevalence of Down syndrome births in Ireland and the fact that care is provided by the majority of parents at home, this…
Descriptors: Foreign Countries, Down Syndrome, Parent Attitudes, Clinical Diagnosis
Ericson, Stine; Hesla, Marianne Winge; Stadskleiv, Kristine – Journal of Intellectual Disabilities, 2022
Adolescents with intellectual disability experience psychological and social challenges in their transition to adulthood. Knowledge about the diagnosis and insight into own strengths and difficulties can help them manage the limitations and barriers they face, but suitable interventions with this purpose are scarce. The present paper presents a…
Descriptors: Adolescents, Mild Intellectual Disability, Psychoeducational Methods, Intervention
Haque, M. Atiqul; Salwa, Marium; Sultana, Sarmin; Tasnim, Anika; Towhid, Muhammad Ibrahim Ibne; Karim, Md Rizwanul; Abdullah Al Mamun, Mohammad – Journal of Intellectual Disabilities, 2022
This cross-sectional study explored stressful situations of caregivers related to life events of their children suffering from neurodevelopmental disorders along with potential contributing factors. A total of 906 caregivers of children with diagnosed neurodevelopmental disorder, from eight administrative districts and two city corporation areas…
Descriptors: Child Rearing, Stress Variables, Children, Foreign Countries
Berridge, Samantha; Hutchinson, Nick – Journal of Intellectual Disabilities, 2022
There is limited research into parents' experiences of Intensive Interaction. Despite this, there are parents who use it and may hold unique experiences. Exploring this could provide insight into how to support parents using Intensive Interaction. Six mothers, who used Intensive Interaction with their children with intellectual disabilities and/or…
Descriptors: Mothers, Parenting Styles, Interaction, Intellectual Disability
Fitzgerald, Jacqueline; Gallagher, Louise – Journal of Intellectual Disabilities, 2022
Chromosomal abnormalities are now considered a common cause of intellectual disability. With increased genetic testing, phenotyping and technological advancements, many new syndromes have been identified. This review sought to explore parental stress and adjustment in the context of rare genetic syndromes to evaluate their clinical impact. A…
Descriptors: Parent Attitudes, Anxiety, Adjustment (to Environment), Genetic Disorders
Magenis, Marina Lummertz; de Faveri, Wanessa; Castro, Kamila; Forte, Gabriele Carra; Grande, Antonio Jose; Perry, Ingrid Schweigert – Journal of Intellectual Disabilities, 2022
Several conditions related to serious difficulty in initiating and maintaining breastfeeding in neonates with Down syndrome are described in the literature. This study aimed to investigate the frequency of breastfeeding in neonates with Down syndrome, as well as the reasons for not breastfeeding, through a systematic literature review by searching…
Descriptors: Down Syndrome, Nutrition, Neonates, Incidence
MacGregor, Laura – Journal of Intellectual Disabilities, 2022
The risk of viral infection during the COVID-19 pandemic has caused many hospitals to prohibit all patient visitors, including family caregivers for people with intellectual disabilities. Drawing on a postmodern, intersubjective view of the body, as well as my experience as the mother of a young adult with profound disabilities, I argue that…
Descriptors: Mothers, Severe Intellectual Disability, Parent Attitudes, Caregivers
Davenport, Stacy; Zolnikov, Tara Rava – Journal of Intellectual Disabilities, 2022
Background: Parenting a child diagnosed with intellectual disability includes a variety of stressors. The degree to which stress affects these parents has been given little emphasis. Compassion fatigue includes experiencing an emotional response to being unable to relieve the suffering of a loved one, burnout, strain and stress on the caregiver.…
Descriptors: Intellectual Disability, Parents, Stress Variables, Altruism