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Lai, Jonathan; Luo, Owen Dan; Klag, Malvina; Shikako-Thomas, Keiko – Journal of Intellectual & Developmental Disability, 2021
Background: Providing medical and dental care for adults with developmental disabilities requires specialised care that includes caregiver's perceptions of processes of care as integral to informing care delivery. Method: We examined the reach and efficacy of a medical-dental clinic serving adults with developmental disabilities as part of a…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Intellectual Disability
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Kirk, Hannah E.; Raber, Adi; Richmond, Sally; Cornish, Kim M. – Journal of Intellectual & Developmental Disability, 2021
Background: Responses to digital cognitive training interventions vary greatly among children with intellectual and developmental disorders (IDD). Investigating possible predictors of improvements following training is vital in ascertaining which individuals benefit from these interventions. Methods: Seventy-three children (4-11 years) with IDD…
Descriptors: Intellectual Disability, Developmental Disabilities, Predictor Variables, Training
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Straccia, Claudio; Hofmann, Verena; Barisnikov, Koviljka – Journal of Intellectual & Developmental Disability, 2020
Background: Adults with intellectual disabilities (ID) commonly live in specialised residential settings. Data collected from these adults are often nested. The aim of this study is to examine the impact of this data structure. Method: Referent caregivers completed the Reiss Screen for Maladaptive Behaviour for each of the 571 adults with ID who…
Descriptors: Adults, Intellectual Disability, Mental Health, Residential Institutions
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Frazier, Thomas W.; Hauschild, Kathryn M.; Klingemier, Eric; Strauss, Mark S.; Hardan, Antonio Y.; Youngstrom, Eric A. – Journal of Intellectual & Developmental Disability, 2020
Background: Language assessment is a key element of evaluations of children and adolescents with neurodevelopmental disorders (NDDs). The present study examined the validity of a gaze-based receptive language index (RLI) in predicting language test results.Method: Participants included toddlers, pre-school, and school age children and adolescents…
Descriptors: Children, Adolescents, Neurological Impairments, Evaluation Methods
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Kildahl, Arvid Nikolai; Berg, Lars Krogh; Nilssen, Anne Lise Enger; Bjørgo, Kathrine; Rødningen, Olaug; Helverschou, Sissel Berge – Journal of Intellectual & Developmental Disability, 2020
Background: Phelan-McDermid Syndrome (PHMDS)/22q13.3 deletion syndrome is a rare genetic disorder linked to Autism Spectrum Disorder (ASD) and Intellectual Disability (ID). There are reports of PHMDS co-occurring with psychiatric disorders, but little is known about the assessment of such disorders in PHMDS. Method: A case study focusing on a…
Descriptors: Genetic Disorders, Psychiatry, Medical Evaluation, Mental Disorders
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Zampini, Laura; Zanchi, Paola – Journal of Intellectual & Developmental Disability, 2020
Background: The present study aimed at investigating mother-child dyadic co-regulation patterns in dyads with children with intellectual disability (ID). Method: 24 children paired for developmental age and vocabulary size (8 with chromosome 14 aberrations, 8 with Down syndrome, and 8 with typical development) and their mothers participated in the…
Descriptors: Mothers, Parent Child Relationship, Genetic Disorders, Down Syndrome
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Richardson, Ben; Webber, Lynne S.; Lambrick, Frank – Journal of Intellectual & Developmental Disability, 2020
Background: Despite agreement that restrictive intervention (RI) should only be used as a last resort and for as long as required, little is known about long-term RI among individuals with a disability. This study examines long-term RI use. Method: From the Restrictive Intervention Data System dataset from Victoria, Australia, a cohort of 1,414…
Descriptors: Disabilities, Foreign Countries, Intellectual Disability, Communication Disorders
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Kildahl, Arvid Nikolai; Helverschou, Sissel Berge; Oddli, Hanne Weie – Journal of Intellectual & Developmental Disability, 2020
Background: Individuals with intellectual disability (ID) and autism spectrum disorder (ASD) are at increased risk of sexual abuse. However, little is known about facilitating detection and disclosure. One year after discharge from a specialised psychiatric ward, a young man with mild ID and ASD disclosed previously unknown sexual abuse. The aim…
Descriptors: Autism, Pervasive Developmental Disorders, Mild Intellectual Disability, Males
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Wu, Chin-Chin; Chiang, Chung-Hsin; Hou, Yuh-Ming; Chu, Ching-Lin; Liu, Jiun-Horng – Journal of Intellectual & Developmental Disability, 2019
Background: The Taiwan version of the Screening Tool for Autism in Two-Year-Olds (T-STAT) had been developed for identifying autism disorder (AD) in children aged 24-35 months. Two studies were performed to elucidate its utility for AD in children aged 36-48 months. Method: In Study 1, the receiver operating characteristics were utilised to select…
Descriptors: Foreign Countries, Screening Tests, Autism, Young Children
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Wark, Stuart; Kingstone, Martin – Journal of Intellectual & Developmental Disability, 2019
Background: This descriptive single-case study reports upon a four-decade history of health care and support provided to one male with life-long intellectual disability and significant comorbidities. Methods: All available paper and electronic documentation from the past 40 years was reviewed, with relevant health and medication information…
Descriptors: Comorbidity, Health Services, Intellectual Disability, Documentation
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Dean, Olivia M.; Gray, Kylie; Dodd, Seetal; Villagonzalo, Kristi-Ann; Brown, Ellie; Tonge, Bruce; Berk, Michael; Byrne, Linda K. – Journal of Intellectual & Developmental Disability, 2019
Background: Traditional treatment for the behavioural symptoms in autism spectrum disorder (ASD) remains unsatisfactory. There is an urgent need for new, biologically relevant therapies that target both the core and comorbid symptoms that children may experience. This article builds on research previously published by the authors. Method: We…
Descriptors: Autism, Pervasive Developmental Disorders, Intervention, Children
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Arellano, Araceli; Denne, Louise D.; Hastings, Richard P.; Hughes, J. Carl – Journal of Intellectual & Developmental Disability, 2019
Background: Research suggests that parents who perceive themselves as more effective and satisfied report less stress when raising a child with autism. We examined associations between parenting sense of competence, reported family support needs, and parental future expectations, with a sample of mothers of children with autism. Method: Mothers…
Descriptors: Mother Attitudes, Parenting Skills, Parent Child Relationship, Autism
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King, Mary C.; Williams, Emma I.; Gleeson, Kate – Journal of Intellectual & Developmental Disability, 2019
Background: Research evidence suggests that self-understanding is likely to be limited in individuals with autism. Method: Photo-elicitation interview was used to explore self-understanding in five adolescent boys diagnosed with an autism spectrum condition. Results: An interpretative phenomenological analysis yielded three superordinate…
Descriptors: Photography, Adolescents, Males, Autism
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Zheng, Lidan; Grove, Rachel; Eapen, Valsamma – Journal of Intellectual & Developmental Disability, 2019
Background: Mothers of children with autism experience high levels of stress. However, little is known about whether maternal stressors differ across children of different ages. Method: This study investigated stressors in mothers of 29 pre-school-aged and 27 school-aged children with autism. Correlation and regression analyses were used to…
Descriptors: Mothers, Predictor Variables, Stress Variables, Autism
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Awan, N.; Oliver, C.; Wilde, L.; Eden, K.; Waite, J. – Journal of Intellectual & Developmental Disability, 2018
Background: There is limited research documenting the health and/or psychological services accessed by adults with rare genetic syndromes who engage in challenging behaviour. The study documented service receipt and associations with person characteristics. Method: Thirty-two parents of adults with rare genetic syndromes completed an adapted…
Descriptors: Adults, Genetic Disorders, Behavior Problems, Autism
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