ERIC Number: EJ1213597
Record Type: Journal
Publication Date: 2019-May
Pages: 15
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0162-3257
EISSN: N/A
Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder
Jashar, Dasal Tenzin; Fein, Deborah; Berry, Leandra N.; Burke, Jeffrey D.; Miller, Lauren E.; Barton, Marianne L.; Dumont-Mathieu, Thyde
Journal of Autism and Developmental Disorders, v49 n5 p1763-1777 May 2019
Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback.
Descriptors: Parent Attitudes, Satisfaction, At Risk Persons, Toddlers, Autism, Diagnostic Tests, Clinical Diagnosis, Severity (of Disability), Neurological Impairments, Ethnicity, Racial Differences, Minority Groups, Mothers, Educational Attainment, Parent Background, Family Income, Stress Variables, Pervasive Developmental Disorders
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) (NIH)
Authoring Institution: N/A
Grant or Contract Numbers: R01HD039961