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Verbal Ability, Behavior Problems, and Mother-Child Relationship Quality in Autism Spectrum Disorder
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Lorang, Emily; Hong, Jinkuk; Song, Jieun; DaWalt, Leann Smith; Mailick, Marsha – Journal of Autism and Developmental Disorders, 2022
This study examined differences in mother-child relationship quality and parent-rated child behavior problems based on child verbal status (i.e., minimally verbal versus verbal) in mothers and their adolescent and adult children with autism spectrum disorder (n = 219 dyads; child M[subscript age] = 25.38 years, SD = 10.22). Relationship quality…
Descriptors: Verbal Ability, Behavior Problems, Parent Child Relationship, Mothers
Trajectories of Change in the Behavioral and Health Phenotype of Adolescents and Adults with Fragile X Syndrome and Intellectual Disability: Longitudinal Trends over a Decade
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Usher, Lauren V.; DaWalt, Leann S.; Hong, Jinkuk; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2020
This study examined trajectories of daily living skills, behavior problems, body mass index (BMI), and health conditions spanning nearly a decade in adolescents and adults with fragile X syndrome (N = 134; age range at study end = 19-49 years), examining influences of sex and autism spectrum disorder (ASD) symptoms. Hierarchical linear modeling…
Descriptors: Adolescents, Adults, Genetic Disorders, Gender Differences
Change in the Behavioral Phenotype of Adolescents and Adults with FXS: Role of the Family Environment
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Smith, Leann E.; Hong, Jinkuk; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
The present study examined trajectories of adaptive behavior, behavior problems, psychological symptoms, and autism symptoms in adolescents and adults with fragile X syndrome (n = 147) over a three-year period. Adaptive behavior significantly increased over time, particularly for adolescents, and the severity of behavior problems decreased over…
Descriptors: Family Environment, Behavior Change, Family Role, Adolescents
Characterizing Objective Quality of Life and Normative Outcomes in Adults with Autism Spectrum Disorder: An Exploratory Latent Class Analysis
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Bishop-Fitzpatrick, Lauren; Hong, Jinkuk; Smith, Leann E.; Makuch, Renee A.; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
This study aims to extend the definition of quality of life (QoL) for adults with autism spectrum disorder (ASD, n = 180, ages 23-60) by: (1) characterizing the heterogeneity of normative outcomes (employment, independent living, social engagement) and objective QoL (physical health, neighborhood quality, family contact, mental health issues); and…
Descriptors: Quality of Life, Pervasive Developmental Disorders, Normalization (Disabilities), Adults
Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report versus Maternal Reports
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Hong, Jinkuk; Bishop-Fitzpatrick, Lauren; Smith, Leann E.; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25-55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that…
Descriptors: Quality of Life, Adults, Autism, Pervasive Developmental Disorders
Maternal Cortisol Levels and Behavior Problems in Adolescents and Adults with ASD
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Seltzer, Marsha Mailick; Greenberg, Jan S.; Hong, Jinkuk; Smith, Leann E.; Almeida, David M.; Coe, Christopher; Stawski, Robert S. – Journal of Autism and Developmental Disorders, 2010
Using daily diary methods, mothers of adolescents and adults with ASD (n = 86) were contrasted with a nationally representative comparison group of mothers of similarly-aged unaffected children (n = 171) with respect to the diurnal rhythm of cortisol. Mothers of adolescents and adults with ASD were found to have significantly lower levels of…
Descriptors: Behavior Problems, Mothers, Autism, Adolescents
Daily Experiences among Mothers of Adolescents and Adults with Autism Spectrum Disorder
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Smith, Leann E.; Hong, Jinkuk; Seltzer, Marsha Mailick; Greenberg, Jan S.; Almeida, David M.; Bishop, Somer L. – Journal of Autism and Developmental Disorders, 2010
In the present study, 96 co-residing mothers of adolescents and adults with an autism spectrum disorder (ASD) participated in an 8-day diary study and reported on their daily experiences. In comparison with a nationally representative sample of mothers of children without disabilities, mothers of adolescent and adult children with ASD spent…
Descriptors: Mothers, Pervasive Developmental Disorders, Diaries, Autism