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Beate Krieger; Albine Moser; Thomas Morgenthaler; Anna J. H. M. Beurskens; Barbara Piškur – Journal of Autism and Developmental Disorders, 2024
Environments have a modifying effect on the participation of children and adolescents with autism spectrum disorder (ASD) in all areas of life. This cross-sectional study investigated parental perspectives on supportive or hindering environments and the daily contextual strategies parents used to enhance their children's participation. Qualitative…
Descriptors: Foreign Countries, Children, Adolescents, Autism Spectrum Disorders
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Sophie Brunt; Rose Nevill; Micah O. Mazurek – Journal of Autism and Developmental Disorders, 2024
Parents of children with autism spectrum disorder (ASD) often experience elevated levels of caregiver strain (CGS). Few studies have examined the relationship between core ASD symptoms and each facet of CGS: objective, subjective internalized, and subjective externalized strain. The predictive effect of core and associated features of ASD on CGS…
Descriptors: Autism Spectrum Disorders, Stress Variables, Child Behavior, Behavior Problems
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Rachel M. Hantman; Emily B. Johnston; Helen Tager-Flusberg – Journal of Autism and Developmental Disorders, 2024
Sensory sensitivities are common in autism spectrum disorder (ASD) and impact daily life, but research has largely focused on children, neglecting older individuals. Likewise, while there is research regarding parental concerns for their autistic children's transition to adulthood, little is known about the role of sensory sensitivities. To…
Descriptors: Adolescents, Young Adults, Autism Spectrum Disorders, Sensory Experience
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Tajik-Parvinchi, Diana; Rosenbaum, Peter; Hidecker, Mary Jo Cooley; Duku, Eric; Zwaigenbaum, Lonnie; Roncadin, Caroline; Georgiades, Stelios; Gentles, Stephen; Fang, Hanna; Di Rezze, Briano – Journal of Autism and Developmental Disorders, 2023
This study examined the construct validity of the Autism Classification System of Functioning: Social Communication (ACSF). Participants included 145 parents of children with autism (2-19 years). The degree of convergent and discriminant validity between parent reported ACSF and subscales from Social Responsiveness Scale 2nd edition and Behavior…
Descriptors: Children, Adolescents, Autism Spectrum Disorders, Parents
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Ghosh, Subharati – Journal of Autism and Developmental Disorders, 2023
Research on long-term planning for adults with Autism Spectrum Disorder (ASD) in India is non-existent. The mixed-methods study examined caregiver's expectations around the future planning of an adult with ASD and the barriers and facilitators to the future planning. The purposive sample included 139 caregivers to adults and adolescents with ASD…
Descriptors: Foreign Countries, Adults, Autism Spectrum Disorders, Long Range Planning
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Ghanouni, Parisa; Seaker, Liam – Journal of Autism and Developmental Disorders, 2022
Although previous research has shown that the transition to adulthood may be challenging, there exists a lack of research regarding perspectives of stakeholders on the transition of individuals with Autism Spectrum Disorder (ASD). This study aimed to investigate stakeholders' experiences regarding healthcare services for youth with ASD during…
Descriptors: Autism, Pervasive Developmental Disorders, Adolescents, Young Adults
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Jacques, Claudine; Saulnier, Geneviève; Éthier, Agnès; Soulières, Isabelle – Journal of Autism and Developmental Disorders, 2022
To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75-18 years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents' concerns about their child's development and difficulties managing…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Adolescents
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Hart, Laura C.; Saha, Heather; Lawrence, Stephanie; Friedman, Susan; Irwin, Polly; Hanks, Christopher – Journal of Autism and Developmental Disorders, 2022
Current primary care models are inadequate for adults on the autism spectrum. The Center for Autism Services and Transition (CAST) clinic was developed in 2014 using feedback from parents of adults on the autism spectrum and patient-centered medical home principles. We evaluated the reach of CAST's services. As of January 2021, 858 patients were…
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Patients
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McLay, Laurie L.; France, Karyn G.; Blampied, Neville M.; Hunter, Jolene E.; van Deurs, Jenna R.; Woodford, Emma C.; Gibbs, Rosina; Lang, Russell – Journal of Autism and Developmental Disorders, 2022
This study follows McLay et al., "Journal of Autism and Developmental Disorders," (2020) to investigate whether the function-based behavioral sleep interventions received by 41 children and adolescents with autism spectrum disorder (ASD) produced collateral improvements in ASD severity, internalizing and externalizing symptoms and parent…
Descriptors: Sleep, Children, Adolescents, Autism
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Hoffman, Jenna M.; Kirby, Anne V. – Journal of Autism and Developmental Disorders, 2022
Knowledge is needed about specific supports and barriers for successful transitions to adulthood for autistic youth, especially from the perspective of parents, who are highly involved in transition preparation. We conducted a qualitative thematic analysis of previously conducted semi-structured interviews with 39 parents of 41 autistic…
Descriptors: Parents, Adolescents, Autism, Pervasive Developmental Disorders
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Bozoglan, Bahadir; Kumar, Suresh – Journal of Autism and Developmental Disorders, 2022
The current study examined the association between hours spent online (HOS), positive parenting, negative parenting, autism parental stress and Internet addiction among Singapore based boys and girls (aged 6 to 14 years old) with Autism Spectrum Disorder (ASD). The research participants included 59 parents (41 females and 18 males) aged between 28…
Descriptors: Foreign Countries, Children, Adolescents, Autism Spectrum Disorders
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Lunsky, Y.; Albaum, C.; Baskin, A.; Hastings, R. P.; Hutton, S.; Steel, L.; Wang, W.; Weiss, J. – Journal of Autism and Developmental Disorders, 2021
Mindfulness-based approaches have been shown to be effective in improving the mental health of parents of youth and adults with autism and other developmental disabilities, but prior work suggests that geography and caregiving demands can make in-person attendance challenging. The purpose of this study was to evaluate the feasibility,…
Descriptors: Group Therapy, Metacognition, Stress Management, Intervention
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Ho, Ryan Yuk Fai; Zhang, Dexing; Chan, Stanley Kam Chung; Gao, Tiffany Ting; Lee, Eric Kam Pui; Lo, Herman Hay Ming; Au Yeung, Peter; Lai, Kelly Yee Ching; Bögels, Susan M.; de Bruin, Esther I.; Wong, Samuel Yeung Shan – Journal of Autism and Developmental Disorders, 2021
This study investigated the feasibility and preliminary effectiveness of a concurrent mindfulness program (MYmind) on Chinese adolescents with autism spectrum disorder and their parents in Hong Kong, China using a randomized controlled trial with a waitlist control group. Results showed the study had 80% compliance rate, 0% dropout rate, and 89%…
Descriptors: Metacognition, Relaxation Training, Program Effectiveness, Stress Management
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Carruthers, Sophie; Kent, Rachel; Hollocks, Matthew J.; Simonoff, Emily – Journal of Autism and Developmental Disorders, 2020
Anxiety is a prevalent and impairing co-morbidity among individuals with autism spectrum disorder (ASD), yet assessment measures, including screening tools, are seldom validated with autism samples. We explored the psychometric properties of the child and parent reports of the Spence Children's Anxiety Scale (SCAS) and the Screen for Anxiety…
Descriptors: Autism, Pervasive Developmental Disorders, Psychometrics, Screening Tests
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Giserman-Kiss, Ivy; Gorenstein, Michelle; Feldman, Elyana; Rowe, Mikaela; Grosman, Hannah; Weissman, Jordana; Rouhandeh, Audrey; Wilkinson, Emma; Meyering, Kristin; Durkin, Allison; Isenstein, Emily; Kolevzon, Alexander; Buxbaum, Joseph D.; Siper, Paige M. – Journal of Autism and Developmental Disorders, 2020
Despite growing public awareness of ASD, many caregivers of children with ASD struggle to find opportunities for participation in community activities with appropriate accommodations. The current study evaluated the experiences of individuals with ASD who attended immersive theater performances specifically designed for individuals with ASD.…
Descriptors: Theater Arts, Autism, Pervasive Developmental Disorders, Children
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