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The Association between Child and Family Characteristics and the Mental Health and Wellbeing of Caregivers of Children with Autism in Mid-Childhood
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Salomone, Erica; Leadbitter, Kathy; Aldred, Catherine; Barrett, Barbara; Byford, Sarah; Charman, Tony; Howlin, Patricia; Green, Jonathan; Le Couteur, Ann; McConachie, Helen; Parr, Jeremy R.; Pickles, Andrew; Slonims, Vicky; Cole-Fletcher, Rachel; Gammer, Isobel; Maxwell, Jessica; Tobin, Hannah; Vamvakas, George; Cole-Fletcher, Rachle; Gammer, Isobel; Maxwell, Jessica; Tobin, Hannah; Vamvakas, George – Journal of Autism and Developmental Disorders, 2018
We examined predictors of mental health difficulties and wellbeing in caregivers of children with autism in the Pre-school Autism Communication Trial cohort in middle childhood (N = 104). Child's intellectual disability, daily living skills impairment, elevated emotional and behavioural difficulties, high educational level of caregiver and…
Descriptors: Mental Health, Well Being, Autism, Predictor Variables
The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention
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Leadbitter, Kathy; Aldred, Catherine; McConachie, Helen; Le Couteur, Ann; Kapadia, Dharmi; Charman, Tony; Macdonald, Wendy; Salomone, Erica; Emsley, Richard; Green, Jonathan; Barrett, Barbara; Barron, Sam; Beggs, Karen; Blazey, Laura; Bourne, Katy; Byford, Sarah; Cole-Fletcher, Rachel; Collino, Julia; Colmer, Ruth; Cutress, Anna; Gammer, Isobel; Harrop, Clare; Houghton, Tori; Howlin, Pat; Hudry, Kristelle; Leach, Sue; Maxwell, Jessica; Parr, Jeremy; Pickles, Andrew; Randles, Sarah; Slonims, Vicky; Taylor, Carol; Temple, Kathryn; Tobin, Hannah; Vamvakas, George; White, Lydia – Journal of Autism and Developmental Disorders, 2018
There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and…
Descriptors: Pervasive Developmental Disorders, Autism, Questionnaires, Quality of Life
Service and Wider Societal Costs of Very Young Children with Autism in the UK
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Barrett, Barbara; Byford, Sarah; Sharac, Jessica; Hudry, Kristelle; Leadbitter, Kathy; Temple, Kathryn; Aldred, Catherine; Slonims, Vicky; Green, Jonathan; Bourne, Katy; Blazey, Laura; Holt, Clare; Kapadia, Dharmi; MacDonald, Wendy; Pickles, Andrew; White, Lydia; Houghton, Tori; Taylor, Carol; Cutress, Anna; Leach, Sue; Le Couteur, Ann; McConachie, Helen; Barron, Sam; Colmer, Ruth; Randles, Sarah; Beggs, Karen; Collino, Julia; Howlin, Pat; Charman, Tony – Journal of Autism and Developmental Disorders, 2012
Autism spectrum disorders (ASD) are associated with a substantial economic burden, but there is little evidence of the costs in the early years; the period in which children are increasingly likely to be diagnosed. We describe the services used by 152 children aged 24-60 months with autism, report family out-of-pocket expenses and productivity…
Descriptors: Community Services, Autism, Family Characteristics, Costs