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Download full textÇiftçi, Esra Karaca; Kahraman, Selma – International Journal of Psychology and Educational Studies, 2016
Epidermolysis Bullosa (EB) is a chronic disease, some types of which may have morbidity and mortality. That is why the patients must receive multidisciplinary care in case any complications arise. Families must be informed about the disease, about home care and receive genetic counselling. The importance of genetic counselling cannot be stressed…
Descriptors: Chronic Illness, Human Body, Child Caregivers, Genetic Disorders
