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Direct linkReilly, Deirdre; Huws, Jaci; Hastings, Richard; Vaughan, Frances – Intellectual and Developmental Disabilities, 2010
Individuals with Down syndrome are at increased risk of congenital heart conditions (CHCs), and mortality is higher in people with Down syndrome and a CHC than those without (J. C. Vis et al., 2009). As a consequence, parents of children with Down syndrome and a CHC are more likely to outlive their child. In this research, semistructured…
Descriptors: Down Syndrome, Parents, Child Rearing, At Risk Persons
Reilly, Deirdre E.; Hastings, Richard P.; Vaughan, Frances L.; Huws, Jaci C. – Intellectual and Developmental Disabilities, 2008
Inequalities in health care and other risk factors mean that children with intellectual disabilities are more likely to predecease their parents. Research on the effects on family members when a child with intellectual disability dies is sparse. In the present review, the authors describe 5 studies of bereavement in intellectual disability and…
Descriptors: Grief, Mental Retardation, At Risk Persons, Death
