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Direct linkKrueger, Kristen; Cless, Jessica D.; Dyster, Meghan; Steele, Robert; Nelson Goff, Briana S. – Intellectual and Developmental Disabilities, 2019
In the current qualitative research study, we focused on understanding the ecological systems, contexts, behaviors, and strategies of parents (N = 435) advocating for their children with an intellectual and developmental disability diagnosis, specifically Down syndrome (DS). Based on the data analysis, parents of children with DS advocate for…
Descriptors: Parents, Child Advocacy, Down Syndrome, Parent Child Relationship
Nelson Goff, Briana S.; Springer, Nicole; Foote, Laura Cline; Frantz, Courtney; Peak, Madison; Tracy, Courtney; Veh, Taylor; Bentley, Gail E.; Cross, Kayli A. – Intellectual and Developmental Disabilities, 2013
This study explored the preliminary experiences of parents upon learning of their child's diagnosis of Down syndrome. Qualitative data from a web-based, national survey were analyzed based on two groups: prenatal ("n" = 46) or postnatal ("n" = 115) diagnosis. Three primary categories emerged from the data analysis:…
Descriptors: Clinical Diagnosis, Down Syndrome, Children, Disability Identification
