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Nancarrow, Thomas; Rencher, Joshua; Wilcock, Mike; Bonell, Simon; Wolke, Tony; Shankar, Rohit – British Journal of Learning Disabilities, 2019
Background: Intellectual disability (ID) is associated with polypharmacy particularly off-label psychotropics for "challenging behaviour." NHS England introduced the "stopping over medication of people with a learning disability (LD), autism or both" (STOMP) initiative. As ID services are a professionally diverse group, it is…
Descriptors: Intellectual Disability, Learning Disabilities, Correlation, Drug Therapy
Wolfenden, Claire; Wittkowski, Anja; Jones, Simon A.; Rust, Stewart; Hare, Dougal J. – British Journal of Learning Disabilities, 2019
Symptoms of autism spectrum disorder (ASD) are present in children with mucopolysaccharidosis type III (MPS III). Questionnaires measuring the two core domains of ASD (social responsiveness and repetitive behaviour) were completed by N = 17 parents of children with MPS III. Results indicated that scores consistent with ASD were reported by all…
Descriptors: Autism, Pervasive Developmental Disorders, Genetic Disorders, Children
Hamilton, Jahnese; Ingham, Barry; McKinnon, Iain; Parr, Jeremy R.; Tam, Louise Yuen-Chong; Le Couteur, Ann – British Journal of Learning Disabilities, 2017
Background: Adults with intellectual disabilities and/or autism are often excluded from participating in health and healthcare research. Understanding study information, which is an important aspect of demonstrating capacity to give informed consent, can be a particular challenge. This study surveyed clinical researchers to discover: (i) their…
Descriptors: Adults, Intellectual Disability, Cognitive Ability, Informed Consent
Clark, Alex; Browne, Sarah; Boardman, Liz; Hewitt, Lealah; Light, Sophie – British Journal of Learning Disabilities, 2016
UK National Autism Strategy (Department of Health, 2010 and National Institute for Health and Care Excellence guidance (NICE, 2012) states that frontline staff should have a good understanding of Autism. Fifty-six clinical and administrative staff from a multidisciplinary community Learning Disability service completed an electronic questionnaire…
Descriptors: Autism, Knowledge Level, Foreign Countries, Learning Disabilities
Plimley, Lynn A. – British Journal of Learning Disabilities, 2007
This article draws on existing theory and research findings in the field of quality of life (QoL) and those with learning/intellectual disability and extrapolates current thinking in terms of measurable domains of QoL. The condition of autism spectrum disorders (ASD) is becoming increasingly prevalent in the sector of supported living and adult…
Descriptors: Residential Care, Autism, Quality of Life, Questionnaires