Background: This paper describes the experience of conducting a co-researched project with people with learning disabilities in Madrid, Spain, during the COVID pandemic and lockdown. I discuss the advantages and limitations of working online and challenges encountered while coordinating and facilitating the research. Methods: Our research project…

Background: Although sexual rights are human rights, persons with developmental disabilities are often excluded from developing positive sexual health due to societal attitudes, stigma, a lack of education and limited opportunities. Methods: As a part of a 12-month participatory action research study in a western Canadian province, nine adults…

While recent years have seen an increase in the number of participatory and inclusive research studies being undertaken where people with learning disabilities are active members of the research team, little has been published about how teams decide what to research. This paper aims to fill this gap by discussing how in one area of Wales a…

This article is about the lived experiences and friendships of a small group of people with a learning disability who live without support in one of the most deprived areas in the UK. The findings are from an inclusive research project, that was named "Money, Friends and Making Ends Meet" and the participants who researched their own…

This paper evaluates a participatory action research (PAR) approach to conducting family research in Ireland. Drawing on PAR methodology it describes how parents of people with intellectual disabilities were recruited and trained to facilitate focus groups of parents in Ireland, in order to create an evidence base to support improved dialogue…

People with a learning disability, the experts of their own experience are increasingly involved in research. We will be discussing in this paper their centrality in the development of a psychological therapy outcome measure for people with learning disabilities. Their involvement needs to go beyond giving their views to being included in the…

A participatory research project was designed to teach eight British adults with learning disabilities about keeping healthy. The development of the project, the recruitment of the participants, and the involvement of the participants in the project are discussed, along with the role of researchers and support workers in participatory research.…