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Caples, Maria; Martin, Anne-Marie; Dalton, Caroline; Marsh, Lynne; Savage, Eileen; Knafl, George; Van Riper, Marcia – British Journal of Learning Disabilities, 2018
Background: Down syndrome is a genetic condition that affects people of all races, nationalities and socioeconomic status. The incidence of Down syndrome in Ireland is estimated to be 1 in 546, with approximately 7,000 people with Down syndrome living in Ireland. While some families of individuals with Down syndrome may find it difficult to adapt,…
Descriptors: Resilience (Psychology), Down Syndrome, Foreign Countries, Adjustment (to Environment)
Caples, Maria; Sweeney, John – British Journal of Learning Disabilities, 2011
Two-thirds of the people registered on the Irish National Intellectual Disability Database (NIDD) reside at home with family members frequently supporting them (Kelly et al., "National Intellectual Disability Database Committee Annual Report 2006," Health Research, 2007). Use of respite care services by parents with a child/adult with an…
Descriptors: Health Services, Mental Retardation, Quality of Life, Parents
Walmsley, Jan; Mannan, Hasheem – British Journal of Learning Disabilities, 2009
This paper evaluates a participatory action research (PAR) approach to conducting family research in Ireland. Drawing on PAR methodology it describes how parents of people with intellectual disabilities were recruited and trained to facilitate focus groups of parents in Ireland, in order to create an evidence base to support improved dialogue…
Descriptors: Action Research, Mental Retardation, Family Life, Focus Groups
Kenny, Kate; McGilloway, Sinead – British Journal of Learning Disabilities, 2007
Despite recurring concerns about the role and appropriate support of informal carers, little is known about the parental experience of caring for children with learning disabilities in Ireland. This study describes and analyses the nature and consequences of care and coping among parents of children (fewer than 16) with learning disabilities…
Descriptors: Mental Retardation, Coping, Measures (Individuals), Parents