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Brennan, Damien; D'Eath, Maureen; McCallion, Philip; McCarron, Mary – British Journal of Learning Disabilities, 2023
Background: As the life expectancy of people with intellectual disability increases, they may now outlive their parents or their parents' ability to continue to care. Siblings of adults with intellectual disability often succeed their parents as primary carers. Little is known about the health and well-being of this important cohort of carers who…
Descriptors: Foreign Countries, Intellectual Disability, Siblings, Caregivers
Giri, Abhrajit; Aylott, Jill; Giri, Prosenjit; Ferguson-Wormley, Sally; Evans, Jonathan – British Journal of Learning Disabilities, 2022
Background: Only 5.9% of working adults with a learning disability are in paid employment and their family-carers are similarly likely to be unemployed, as they continue to take on an extended caring and advocacy role as the welfare state retreats. Despite social policy efforts to stimulate employment for people with a learning disability, there…
Descriptors: Foreign Countries, Intellectual Disability, Caregivers, Employment
Murray, George C.; McKenzie, Karen; Metcalfe, Dale; Whelan, Kathryn; Murray, Aja L. – British Journal of Learning Disabilities, 2022
Background: High staff turnover presents a challenge to the provision of good quality community-based support to people with an intellectual disability. While recent research has identified factors that are thought to be important for staff retention, their relative importance to social care staff is unknown. The aim of this study was to address…
Descriptors: Labor Turnover, Social Services, Caregivers, Intellectual Disability
Haythorne, Rebecca; Gega, Lina; Knapp, Peter; Crawford, Hannah – British Journal of Learning Disabilities, 2022
Background: Active recreation denotes engagement with meaningful and rewarding activities that can improve physical and mental well-being for everyone; however, there are specific challenges to participation in active recreation for people with learning disabilities. Aim: To understand what hinders and what enables participation in active…
Descriptors: Recreational Activities, Learning Disabilities, Participation, Barriers
Turnpenny, Agnes; Rand, Stacey; Whelton, Beckie; Beadle-Brown, Julie; Babaian, Jacinta – British Journal of Learning Disabilities, 2021
Background: There are a growing number of people with learning disabilities and autism who access personal budgets in the form of direct payments in England. Although they are often involved in decisions about their support, personal budgets are usually managed by someone else, typically a parent. This study examined the experiences of carers who…
Descriptors: Caregivers, Money Management, Budgets, Adults
Fish, Rebecca; Morgan, Hannah – British Journal of Learning Disabilities, 2021
Background: Despite repeated policy initiatives, an enduring number of people with learning disabilities remain resident in secure settings (also referred to as locked wards). The spatial and emotional distance from family and friends means that relationships with staff become central to people's lives, and are critical for a successful transition…
Descriptors: Interpersonal Relationship, Social Support Groups, Learning Disabilities, Residential Care
Graham, Yitka N. H.; Gerrard, David; Laight, Samantha; Brown, Rebecca; Keith, Sarah; Hayes, Catherine – British Journal of Learning Disabilities, 2020
Background: The issues surrounding the prescribing and monitoring of medications for people with learning disabilities and behaviours deemed to be challenging, and are complex in their management for patients, healthcare professionals and carers. The aim of the study was to explore the impact of the pharmacist independent prescriber on a…
Descriptors: Health Personnel, Pharmacy, Drug Therapy, Intellectual Disability
Sawhney, Indermeet; Zia, Asif; Yazdi, Bahar; Shankar, Rohit – British Journal of Learning Disabilities, 2020
Background: People with epilepsy (PWE) have a higher fracture risk than nonepilepsy populations. Antiepileptic drugs (AEDs) cause bone loss. Limited physical activity and poor dietary intake increase fracture risk in PWE. People with an intellectual disability have higher prevalence of epilepsy, likely to be on multiple AEDs, with poorer response,…
Descriptors: Epilepsy, Intellectual Disability, At Risk Persons, Drug Therapy
Gray, Jennifer A.; Kim, Jinsook – British Journal of Learning Disabilities, 2020
Background: Direct care workers (DCWs) caring for people with intellectual and developmental disabilities (PWIDD) provide palliative care, but research indicates DCWs are ill-equipped to do so. This study aimed to assess DCWs' palliative care experience and training and their perceived training needs. Materials and Methods: Staff trained as DCWs…
Descriptors: Caregivers, Health Services, Intellectual Disability, Developmental Disabilities
Egan, Caroline; Dalton, Caroline Teresa – British Journal of Learning Disabilities, 2019
Background: People with intellectual disabilities are experiencing increased longevity, and in parallel, their family caregivers are also ageing. The literature identifies that these caregivers are at risk of burden. The aim of this study was to measure the level of caregiver burden among older carers of adults with intellectual disabilities in an…
Descriptors: Foreign Countries, Older Adults, Adults, Intellectual Disability
Sitter, Kathleen C.; Burke, Amy C.; Ladhani, Sheliza; Mallay, Nicole – British Journal of Learning Disabilities, 2019
Background: Although sexual rights are human rights, persons with developmental disabilities are often excluded from developing positive sexual health due to societal attitudes, stigma, a lack of education and limited opportunities. Methods: As a part of a 12-month participatory action research study in a western Canadian province, nine adults…
Descriptors: Sexuality, Participatory Research, Action Research, Video Technology
Ho, Portia; Downs, Jenny; Bulsara, Caroline; Patman, Shane; Hill, Anne-Marie – British Journal of Learning Disabilities, 2018
Background: People with intellectual disability encounter substantial healthcare discrepancies, yet are under-represented in research. While people with intellectual disability can make valuable contributions to research and consequently improve their quality of life, researchers encounter multiple challenges including them in research. One…
Descriptors: Intellectual Disability, Informed Consent, Injuries, Research
Sheehan, Rory; Kimona, Kate; Giles, Audrey; Cooper, Vivien; Hassiotis, Angela – British Journal of Learning Disabilities, 2018
Background: There is relatively little published data that report the experiences and views of family carers of people with intellectual disabilities who display challenging behaviour who are prescribed psychotropic medication. Materials and methods: An online structured questionnaire was created by the Challenging Behaviour Foundation, a UK…
Descriptors: Online Surveys, Caregivers, Intellectual Disability, Drug Therapy
Reidy, Mary; Denieffe, Suzanne; Foran, Sinéad – British Journal of Learning Disabilities, 2018
Background: Internationally, it is known that there are gaps in cancer and screening awareness among women with intellectual disabilities. Little is known about this awareness among Irish women with intellectual disabilities. The aim of this study was to explore this awareness among these women. Materials and Methods: The study design incorporated…
Descriptors: Cancer, Screening Tests, Females, Intellectual Disability
Erickson, Steven R.; Juncaj, Sophia; Buckley, Charlotte – British Journal of Learning Disabilities, 2018
Background: People who have an intellectual or developmental disability (IDD) and asthma are at greater risk of poor health outcomes. They often require assistance from caregivers when managing their medicines. The objective of this pilot study was to assess the level of understanding of asthma self-management concepts of family caregivers who…
Descriptors: Diseases, Intellectual Disability, Developmental Disabilities, At Risk Persons
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