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Direct linkSicherman, Nachum; Law, Kiely; Lipkin, Paul H.; Loewenstein, George; Marvin, Alison R.; Buxbaum, Joseph D. – American Journal on Intellectual and Developmental Disabilities, 2021
We estimated the effects of information avoidance and information seeking among parents of children diagnosed with autism spectrum disorder (ASD) on age of diagnosis. An online survey was completed by 1,815 parents of children with ASD. Children of parents who self-reported that they had preferred "not to know," reported diagnoses around…
Descriptors: Information Seeking, Parents, Children, Autism
Mello, Catherine; Rivard, Mélina; Terroux, Amélie; Mercier, Céline – American Journal on Intellectual and Developmental Disabilities, 2019
The present study investigated family quality of life (FQOL) as experienced by 493 mothers and fathers (295 families) of young children with autism spectrum disorder (ASD) prior to receiving early intervention services in the province of Québec. These families were most satisfied with their physical and material well-being and least satisfied with…
Descriptors: Quality of Life, Young Children, Parents, Autism
Magaña, Sandra; Parish, Susan L.; Son, Esther – American Journal on Intellectual and Developmental Disabilities, 2015
The aim of this study was to determine if racial and ethnic disparities in the quality of provider interaction have changed between 2006 and 2010 for children with developmental disabilities and autism spectrum disorders (ASD). Data from the 2005/2006 and 2009/2010 National Survey of Children With Special Health Care Needs were analyzed. Results…
Descriptors: Developmental Disabilities, Autism, Pervasive Developmental Disorders, Children
Kirby, Anne V.; White, Tamira J.; Baranek, Grace T. – American Journal on Intellectual and Developmental Disabilities, 2015
Caring for children with disabilities contributes to increased levels of parent stress or caregiver strain. However, the potential relationship of sensory features to strain among caregivers of children with autism spectrum disorder (ASD) and other developmental disabilities (DD) is unknown. Sensory features include overreactions, underreactions,…
Descriptors: Child Rearing, Children, Disabilities, Stress Variables
Carter, Erik W.; Lane, Kathleen Lynne; Cooney, Molly; Weir, Katherine; Moss, Colleen K.; Machalicek, Wendy – American Journal on Intellectual and Developmental Disabilities, 2013
Fostering student self-determination is now considered an essential element of special education and transition services for children and youth with intellectual disability and/or autism. Yet, little is known about the pivotal role parents might play beyond the school campus in fostering self-determination among their children with developmental…
Descriptors: Parents, Parent Role, Self Determination, Skills
Poon, Kenneth K. – American Journal on Intellectual and Developmental Disabilities, 2013
This study sought to understand the parental expectations of social attainments in the postschool years. The parents of 20 adolescents with autism spectrum disorders (ASD) attending special schools were interviewed. Most expected their children would be working in sheltered workshops or unemployed. All parents indicated that their children would…
Descriptors: Parents, Expectation, Adolescents, Autism
Zablotsky, Benjamin; Boswell, Katelyn; Smith, Christopher – American Journal on Intellectual and Developmental Disabilities, 2012
Parental school involvement and satisfaction are unstudied in families raising a child with an autism spectrum disorder (ASD). To fill this gap, the current study utilized a national sample of families (N = 8,978) from the 2007 Parent and Family Involvement in Education survey (U.S. Department of Education, National Center for Education…
Descriptors: Parents, Autism, Correlation, School Counselors
