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Grebe, Stacey C.; Limon, Danica L.; McNeel, Morgan M.; Guzick, Andrew; Peters, Sarika U.; Tan, Wen-Hann; Sadhwani, Anjali; Bacino, Carlos A.; Bird, Lynne M.; Samaco, Rodney C.; Berry, Leandra N.; Goodman, Wayne K.; Schneider, Sophie C.; Storch, Eric A. – American Journal on Intellectual and Developmental Disabilities, 2022
Angelman Syndrome (AS) is a neurodevelopmental disorder most commonly caused by the impaired expression of the maternal "UBE3A" gene on chromosome 15. Though anxiety has been identified as a frequently present characteristic in AS, there are limited studies examining anxiety in this population. Studies of anxiety in other…
Descriptors: Neurological Impairments, Genetic Disorders, Anxiety, Symptoms (Individual Disorders)
Shively, Kelsey B.; Tassé, Marc J. – American Journal on Intellectual and Developmental Disabilities, 2022
The Nisonger Child Behavior Rating Form (NCBRF) was developed to specifically screen psychopathology and problem behavior in children and adolescents with IDD. This study aimed to update the NCBRF to the "Diagnostic and Statistical Manual of Mental Disorders, 5th Edition" (DSM-5) and screen for the most prevalent psychopathologies that…
Descriptors: Delphi Technique, Child Behavior, Behavior Rating Scales, Psychopathology
Kirchner, Rebecca M.; Walton, Katherine M. – American Journal on Intellectual and Developmental Disabilities, 2021
Research suggests that people with a Williams syndrome (WS) or Down syndrome (DS) diagnosis display an increased prevalence of autism spectrum disorder (ASD) when compared to the general population. This study aimed to examine characteristics of ASD in a group of children with DS or WS. Results suggest that children with DS and WS exhibit higher…
Descriptors: Symptoms (Individual Disorders), Autism, Pervasive Developmental Disorders, Down Syndrome
Courtemanche, Andrea B.; Black, William R.; Meyer, Jerrold S. – American Journal on Intellectual and Developmental Disabilities, 2021
Elevated salivary cortisol levels have been documented in individuals who engage in self-injurious behavior (SIB), indicating acute physiological stress. Less is known about the chronicity of stress and SIB. We analyzed the relationship between parent ratings of problem behavior and hair cortisol concentrations (an index of chronic adrenocortical…
Descriptors: Autism, Pervasive Developmental Disorders, Self Destructive Behavior, Injuries
Esbensen, Anna J.; Hoffman, Emily K.; Shaffer, Rebecca C.; Patel, Lina R.; Jacola, Lisa M. – American Journal on Intellectual and Developmental Disabilities, 2021
The current study evaluates the concurrent relationship between parent ratings of executive functioning and maladaptive behavior among children and adolescents with Down syndrome and then repeats this evaluation using teacher reports. Parents and teachers of 63 school-age children with Down syndrome rated the child's executive functioning…
Descriptors: Executive Function, Behavior Problems, Children, Adolescents
Raulston, Tracy J.; Kosty, Derek; McIntyre, Laura Lee – American Journal on Intellectual and Developmental Disabilities, 2021
Children with autism may display an externalizing problem behavior, which are associated with increased parenting stress and depression in caregivers. Mindful parenting is defined as having a non-judgmental moment-to-moment awareness during caregiver-child interactions. The extant literature is mixed, with some reporting that associations between…
Descriptors: Metacognition, Parenting Styles, Parent Child Relationship, Child Caregivers
Lloyd, Blair P.; Weaver, Emily S.; Torelli, Jessica N.; Pollack, Marney S.; Fareed, Sunya A.; Maxwell-Horn, Angela C. – American Journal on Intellectual and Developmental Disabilities, 2021
The purpose of the current study was to explore the scientific utility of two behavior analytic assessments (i.e., progressive ratio and demand assessments) for psychotropic medication evaluation. For a sample of 23 children with disabilities who were prescribed medication, we conducted a series of generalizability and optimization studies to…
Descriptors: Disabilities, Children, Drug Therapy, Behavior Problems
Harrop, Clare; Dallman, Aaron R.; Lecavalier, Luc; Bodfish, James W.; Boyd, Brian A. – American Journal on Intellectual and Developmental Disabilities, 2021
Behavioral inflexibility (BI) has been highlighted to occur across genetic and neurodevelopmental disorders. This study characterized BI in two common neurogenetic conditions: Fragile X syndrome (FXS) and Down syndrome (DS). Caregivers of children with FXS (N = 56; with ASD = 28; FXS only = 28) and DS (N = 146) completed the Behavioral…
Descriptors: Down Syndrome, Genetic Disorders, Neurological Impairments, Developmental Disabilities
Quebles, Irina; Solomon, Olga; Smith, Kathryn A.; Rao, Sowmya R.; Lu, Frances; Allen, Colleen; Anaya, Grace; Yin, Larry – American Journal on Intellectual and Developmental Disabilities, 2020
We examined racial and ethnic differences in the prevalence of behavioral problems measured by the Child Behavioral Checklist (CBCL), sleep disturbances measured by the Child Sleep Habits Questionnaire (CSHQ), and medication use among children with Autism Spectrum Disorders (ASD). We analyzed data from the Autism Treatment Network (ATN) dataset…
Descriptors: Racial Differences, Ethnicity, Incidence, Behavior Problems
McIntyre, Laura Lee – American Journal on Intellectual and Developmental Disabilities, 2020
Interventions that promote parent and child well-being in families with children with intellectual and developmental disabilities (IDD) are important, given the caregiving burden often associated with supporting children with developmental and behavioral challenges. This article summarizes a presentation made at the 2019 AAIDD annual conference…
Descriptors: Family Role, Well Being, Intervention, Evidence Based Practice
Tomaszewski, Brianne; Hepburn, Susan; Blakeley-Smith, Audrey; Rogers, Sally J. – American Journal on Intellectual and Developmental Disabilities, 2020
Longitudinal growth modeling was utilized to examine adaptive behavior over eight years across the three time points (i.e., ages 2-10). Seventy-six parents completed the Vineland Adaptive Behavior Scales interviews of adaptive behavior. Child participants completed standardized developmental testing and an executive function task in toddlerhood…
Descriptors: Adjustment (to Environment), Autism, Pervasive Developmental Disorders, Behavior Problems
Hagiwara, Mayumi; Shogren, Karrie A.; Shaw, Leslie A. – American Journal on Intellectual and Developmental Disabilities, 2019
This secondary analysis examined the impact of respondent-level factors on scores on the "Supports Intensity Scale--Children's Version" (SIS-C) for children and youth with intellectual disability to determine if there were any significant differences in the SIS-C scores by different respondent pairs when considering children's age,…
Descriptors: Children, Youth, Intellectual Disability, Scores
Hodnett, Jennifer; Scheithauer, Mindy; Call, Nathan A.; Mevers, Joanne Lomas; Miller, Sarah J. – American Journal on Intellectual and Developmental Disabilities, 2018
Smith-Magenis syndrome (SMS) is a genetic disorder, commonly caused by a 17p11.2 deletion, affecting the Retinoic Acid Induced 1 gene. It affects approximately 1 in 25,000 individuals, with over 90% engaging in challenging behaviors. Function-based treatments, using the principles of applied behavior analysis, have consistently been shown to…
Descriptors: Functional Behavioral Assessment, Behavior Problems, Genetic Disorders, Developmental Delays
Dieleman, Lisa M.; De Pauw, Sarah S. W.; Soenens, Bart; Van Hove, Geert; Prinzie, Peter – American Journal on Intellectual and Developmental Disabilities, 2018
This study aimed to describe problem behaviors and psychosocial strengths, examine the problem-strength interrelations, and evaluate profiles of problems and strengths in youth with Down syndrome (DS). The community-based sample consisted of 67 parents of children with DS aged between 4 and 19 years. Parents reported about the developmental age…
Descriptors: Down Syndrome, Behavior Problems, Child Behavior, Children
Adams, Dawn; Clarke, Samantha; Griffith, Gemma; Howlin, Pat; Moss, Jo; Petty, Jane; Tunnicliffe, Penny; Oliver, Chris – American Journal on Intellectual and Developmental Disabilities, 2018
It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of…
Descriptors: Mothers, Stress Variables, Genetic Disorders, Depression (Psychology)