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Jill Bradshaw; Jane Pringle; Damian Milton; Julie Beadle-Brown – Journal of Intellectual & Developmental Disability, 2024
Background: Autistic people commonly report differing sensory experiences. This research aimed to find out about sensory issues and the sensory environments of autistic adults who did and did not have intellectual disabilities. Method: Online questionnaires were designed to identify sensory needs. The survey was completed by 138 autistic adults…
Descriptors: Adults, Autism Spectrum Disorders, Sensory Experience, Intellectual Disability
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Caitlin Gray; Helen Leonard; Kingsley Wong; Sally Reed; Kate Schmidt; Rachel Skoss; Jianghong Li; Alison Salt; Jenny Bourke; Emma J. Glasson – Journal of Intellectual & Developmental Disability, 2024
Background: Siblings of children with intellectual disability have unique family experiences, varying by type of disability. Methods: Parents of children with Down syndrome (156) or with Rett syndrome (149) completed questionnaires relating to sibling advantages and disadvantages, experiences of holidays and recreation, and perceived availability…
Descriptors: Intellectual Disability, Children, Genetic Disorders, Siblings
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J. Lettington; J. Van Herwegen – Journal of Intellectual & Developmental Disability, 2024
Background: The home literacy environment (HLE) has rarely been examined for individuals with neurodevelopmental disorders, including individuals with Williams syndrome and Down syndrome. Method: The current study surveyed carers of individuals with Down syndrome (n = 48) and Williams syndrome (n = 18) in the United Kingdom (UK). Results: The…
Descriptors: Family Literacy, Family Environment, Developmental Disabilities, Down Syndrome
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Stuart Wark; Rafat Hussain; Matthew P. Janicki; Marie Knox; Trevor Parmenter – Journal of Intellectual & Developmental Disability, 2024
Background: There is little research comparatively assessing prevalence of pain between older people either with or without intellectual disability. This paper explores health and social factors associated with chronic pain in these two groups. Method: A cross-sectional survey was undertaken in New South Wales and Queensland, Australia. Inclusion…
Descriptors: Foreign Countries, Incidence, Predictor Variables, Chronic Illness
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Željka Nikolaševic; Karolina Cuckovic; Ksenija Gebauer-Bukurov; Vojislava Bugarski Ignjatovic – Journal of Intellectual & Developmental Disability, 2024
Background: Multiple disabilities represent separate entities that cannot be reduced to the sum of disabilities or the main disability. This study compared the health-related quality of life (HRQoL) of children and adolescents with multiple disabilities and those with one developmental disability. We further assessed how comorbidities and…
Descriptors: Multiple Disabilities, Quality of Life, Children, Adolescents
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Denise De Souza; Zelinna Pablo; Michael Shevlin; Maria Theresa von Fürstenberg; Jennifer Banks; Debashis Sarker; Alejandra Rios Urzua; Donatella Camedda; Des Aston – Journal of Intellectual & Developmental Disability, 2024
Background: Research on post-secondary training for individuals with intellectual disabilities has generally focused on programs, with little consideration of the structures and mechanisms that give rise to them. This article adopts a critical realist perspective to comparatively analyse and theorise about the contextual structures contributing to…
Descriptors: Postsecondary Education, Students with Disabilities, Intellectual Disability, Inclusion
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Megan Clark; Cheryl Dissanayake – Journal of Intellectual & Developmental Disability, 2024
Background: The rollout of the National Disability Insurance Scheme (NDIS) has transformed the Australian funding landscape for individuals with disability and their families. This study examined whether the profiles of autistic children and their families accessing an early intervention (EI) setting have changed following its introduction.…
Descriptors: Students with Disabilities, Autism Spectrum Disorders, Early Intervention, Federal Aid
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Eunyoung Son; Donghyun Ahn; Johanna Inhyang Kim; Sojung Kim – Journal of Intellectual & Developmental Disability, 2024
Background: Limited data exist on problematic sexual behaviour (PSB) in youth with developmental disabilities in South Korea. Method: Sixty-one parents of children with intellectual disabilities or autism spectrum disorder (aged 13-30) reported children's PSB and emotional, behavioural, cognitive, and interpersonal factors. The frequency of PSB in…
Descriptors: Foreign Countries, Behavior Problems, Sexuality, Developmental Disabilities
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Douglas Odongo Attoh; Eric Agyemang; Ronald Kondor; John Boulard Forkuor; Kwadwo Ofori-Dua – Journal of Intellectual & Developmental Disability, 2024
Background: In most African countries, disability is explained by cultural beliefs. This has implications for healthcare delivery for persons with intellectual disabilities. Methods: With the aid of a qualitative approach, we explore the interplay between cultural beliefs and the training of health professionals and their implications for the…
Descriptors: Foreign Countries, Intellectual Disability, Cultural Influences, Access to Health Care
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Lindsay Bly; Maureen McBeth; Ibukun Olagunju; Heather Hirst; Dani Block; Frank Bird; James K. Luiselli – Journal of Intellectual & Developmental Disability, 2024
Background: Some adults with intellectual disabilities do not acquire oral feeding skills and are dependent on gastrostomy tube supplementation. Methods: Two adults with intellectual and multiple disabilities received intervention for oral consumption during daily meals (standardised food and liquid quantities, individualised procedural…
Descriptors: Adults, Intellectual Disability, Nutrition, Multiple Disabilities
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Maria Baranowski; Margherita Cameranesi; Javier Mignone; Lindsay McCombe; Kayla Kostal; Jenna Heschuk; Shahin Shooshtari – Journal of Intellectual & Developmental Disability, 2024
Background: Deinstitutionalisation refers to the transition of individuals with intellectual and developmental disabilities from large institutions to smaller homes in the community. The purpose of this study was to explore how family members of persons with intellectual and developmental disabilities perceived their loved ones' community…
Descriptors: Severe Intellectual Disability, Severe Disabilities, Developmental Disabilities, Family Attitudes
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Wouter de Wit; D. Roeg; N. Frielink; P. J. C. M. Embregts – Journal of Intellectual & Developmental Disability, 2024
Background: Sexual health includes physical, emotional, mental, and social wellbeing related to sexuality. Given people with mild intellectual disabilities' reliance on relatives and support staff, it is important to explore the latter's understanding of sexual health. Method: Relatives (n = 7) and support staff (n = 15) of people with mild…
Descriptors: Sexuality, Health Behavior, Health Promotion, Mild Intellectual Disability
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Ayelet Siman-Tov; Adi Sharabi – Journal of Intellectual & Developmental Disability, 2024
Background: The study examined relations between a number of variables regarding typically-developing adult siblings of individuals with intellectual and developmental disability: involvement in the lives of their siblings with disability, personal resources (self-efficacy and sense of coherence), loneliness, and adjustment. Method: Participants…
Descriptors: Developmental Disabilities, Siblings, Sibling Relationship, Self Efficacy
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I. Belperio; R. Walker; C. Bigby; I. Wiesel; F. Rillotta; C. Hutchinson – Journal of Intellectual & Developmental Disability, 2024
Background: Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family members, and service providers are often involved in planning processes. However, it is unclear whose perspectives dominate in the…
Descriptors: Adults, Intellectual Disability, Cooperative Planning, Parent Attitudes
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Shoshana Dreyfus; Anne Nolan; Melanie Randle – Journal of Intellectual & Developmental Disability, 2024
Background: This study investigated the extent to which behaviour support services are accessible under Australia's National Disability Insurance Scheme (NDIS). Method: We conducted semi-structured interviews with families who support a member with an intellectual disability and challenging behaviour. We analysed this data with a supply and demand…
Descriptors: Foreign Countries, Behavior Modification, Access to Health Care, Intellectual Disability
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