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Wu, Kelly L.; Reinemann, Jaclyn M.; Lapid, Maria I. – Journal of Intellectual & Developmental Disability, 2020
Background: Addressing goals of care involves an added layer of complexity in never-competent patients. The concept of best interests is used to guide decision-making for these patients; however, this can be difficult for many reasons. To help providers recognise and minimise these challenges, we recommend steps that can be taken to support…
Descriptors: Patients, Competence, Decision Making, Males
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Robertson, Janet; Emerson, Eric; Baines, Susannah; Hatton, Chris – Journal of Intellectual & Developmental Disability, 2020
Background: People with intellectual disability may be at elevated risk of adverse consequences of substance use. This study outlines the prevalence of, and factors associated with, substance use in young people with and without intellectual disability. Method: Secondary analysis was undertaken of the Next Steps annual panel study, which follows a…
Descriptors: Smoking, Drinking, Drug Use, Adolescents
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Goyal, Shashi; Temple, Valerie; Sawanas, Christine; Brown, Dawn – Journal of Intellectual & Developmental Disability, 2020
Background: Interpreting cognitive assessment results for individuals from indigenous communities can be complex. Factors such as culture, language, and education may influence results. Although there is research regarding the cognitive assessment of typically functioning individuals from indigenous communities there is limited information on…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Canada Natives
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Mikolajczyk, Edyta; Jankowicz-Szymanska, Agnieszka – Journal of Intellectual & Developmental Disability, 2020
Background: Assess the Kinesio Taping (KT) effect on balance and foot arches. Methods: Thirty young people with intellectual disability (ID) and flat feet were randomly assigned to experimental (E) and control (C) groups. Group E had KT applied to the sole of their feet and both groups participated in a 12-week task-oriented training conducted…
Descriptors: Human Body, Intellectual Disability, Training, Human Posture
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Embregts, Petri J. C. M.; van Oorsouw, Wietske M. W. J.; Wintels, Sophie C.; van Delden, Robby W.; Evers, Vanessa; Reidsma, Dennis – Journal of Intellectual & Developmental Disability, 2020
Background: New technologies could broaden activities for people with profound intellectual and multiple disabilities (PIMD). This study compared watching television with a newly-developed interactive ball. Method: The ball responded with sounds, lights, and wiggling to the player's voice and movements. Five control sessions (watching television)…
Descriptors: Severe Intellectual Disability, Manipulative Materials, Interaction, Television Viewing
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Anderson, Sian; Bigby, Christine – Journal of Intellectual & Developmental Disability, 2020
Background: The role of support workers in self-advocacy groups is complex. The lack of transparency about who controls the agenda within groups is problematised by commentators but the evidence is limited about how supporters act, exercise power and are regarded by self-advocates. Aim: This study investigated the work of supporters in independent…
Descriptors: Self Advocacy, Foreign Countries, Intellectual Disability, Social Support Groups
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Alfredsson Ågren, Kristin; Kjellberg, Anette; Hemmingsson, Helena – Journal of Intellectual & Developmental Disability, 2020
Background: The aim of this study was to explore and describe access to the Internet and how it is used among adolescents and young adults with mild and moderate intellectual disabilities in their everyday settings. Method: Data were collected through observations of and interviews with 15 participants with intellectual disabilities, aged 13-25…
Descriptors: Access to Computers, Internet, Adolescents, Young Adults
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van Delden, R. W.; Wintels, S. C.; van Oorsouw, W. M. W. J.; Evers, V.; Embregts, P. J. C. M.; Heylen, D. K. J.; Reidsma, D. – Journal of Intellectual & Developmental Disability, 2020
Background: New technology may stimulate active leisure activities for people with profound intellectual and multiple disabilities (PIMD). We conducted a study of an interactive ball that responded to gross body movement, focus of attention, and vocalisations of users with PIMD. The aim was to increase alertness and body movement and elicit more…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Recreational Activities, Physical Activities
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Kildahl, Arvid Nikolai; Berg, Lars Krogh; Nilssen, Anne Lise Enger; Bjørgo, Kathrine; Rødningen, Olaug; Helverschou, Sissel Berge – Journal of Intellectual & Developmental Disability, 2020
Background: Phelan-McDermid Syndrome (PHMDS)/22q13.3 deletion syndrome is a rare genetic disorder linked to Autism Spectrum Disorder (ASD) and Intellectual Disability (ID). There are reports of PHMDS co-occurring with psychiatric disorders, but little is known about the assessment of such disorders in PHMDS. Method: A case study focusing on a…
Descriptors: Genetic Disorders, Psychiatry, Medical Evaluation, Mental Disorders
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Dreyfus, Shoshana; Dowse, Leanne – Journal of Intellectual & Developmental Disability, 2020
Background: Research into parents' experiences of living with a family member with intellectual disability and challenging behaviour does not specifically address what parents say about themselves and their lives. This paper explores "I-statements" parents made about their day-to-day actions in life with their family member. Methods:…
Descriptors: Family Relationship, Behavior Problems, Intellectual Disability, Parent Attitudes
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Zampini, Laura; Zanchi, Paola – Journal of Intellectual & Developmental Disability, 2020
Background: The present study aimed at investigating mother-child dyadic co-regulation patterns in dyads with children with intellectual disability (ID). Method: 24 children paired for developmental age and vocabulary size (8 with chromosome 14 aberrations, 8 with Down syndrome, and 8 with typical development) and their mothers participated in the…
Descriptors: Mothers, Parent Child Relationship, Genetic Disorders, Down Syndrome
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Bellemans, Tina; Didden, Robert; van Busschbach, Jooske T.; Hoek, Pim T. A. P.; Scheffers, Mia W. J.; Lang, Russell B.; Lindsay, William R. – Journal of Intellectual & Developmental Disability, 2019
Background: Poor anger regulation is considered a risk factor of aggression in individuals with mild or borderline intellectual disabilities. Psychomotor therapy (PMT) targets anger regulation through body- and movement-oriented interventions. This study aims to inform practitioners on efficacy and research-base of PMT in this population. Method:…
Descriptors: Self Control, Aggression, Mild Intellectual Disability, At Risk Persons
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Vicente, Eva; Verdugo, Miguel A.; Gómez-Vela, María; Fernández-Pulido, Ramón; Wehmeyer, Michael L.; Guillén, Verónica M. – Journal of Intellectual & Developmental Disability, 2019
Background: Most theoretical models of self-determination suggest that both environmental and personal factors influence the development of self-determination. The design and implementation of interventions must be conducted with foreknowledge of such mediating and moderating factors if the intervention is to be successful. Methods: The purpose of…
Descriptors: Self Determination, Environmental Influences, Student Characteristics, Institutional Characteristics
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O'Neill, Jenny; Elia, Sonja; Perrett, Kirsten P. – Journal of Intellectual & Developmental Disability, 2019
Background: The Human Papillomavirus (HPV) vaccine is offered in Australia to all males and females at 12 to 13 years. In 2015 the national HPV coverage was 77.4% for females and 66.4% for males. There is no Australian coverage data for the subgroup of adolescents with disabilities. Method: We reviewed the HPV vaccine status of all 14 year-old…
Descriptors: Sexually Transmitted Diseases, Immunization Programs, Adolescents, Developmental Disabilities
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Merrells, Jessica; Buchanan, Angus; Waters, Rebecca – Journal of Intellectual & Developmental Disability, 2019
Background: Few studies discuss social inclusion from the voice and perspective of young adults with intellectual disability who have been lifelong recipients of individualised community-based coordination and services focusing on inclusion and participation. It is important to understand the perspective of people with an intellectual disability…
Descriptors: Young Adults, Intellectual Disability, Inclusion, Community Programs
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