ERIC Number: EJ1202691
Record Type: Journal
Publication Date: 2019-Jan
Abstractor: As Provided
It's a Battle and a Blessing: The Experience and Needs of Custodial Grandparents of Children with Autism Spectrum Disorder
Hillman, Jennifer L.; Anderson, Connie M.
Journal of Autism and Developmental Disorders, v49 n1 p260-269 Jan 2019
We know little about custodial grandparents of children with autism spectrum disorder (ASD) who offer a vital social safety net. 117 custodial grandparents of children with ASD from 37 states completed an online survey with open-ended questions about their "greatest challenges and joys" as grandparent. Grounded theory analysis revealed four categories of experience (Issues with Adult Children, Caregiving Burden, Coping, & Wisdom) explained by 15 themes. Grandparents' stressors encompassed custody issues, ASD problem behaviors like tantrums and eloping, insufficient ASD services, financial burden, 24/7 caregiving demands, social isolation, and fears for the future. Grandparents' coping included celebrations of progress, unconditional love, faith, and a positive focus. Grandparents' wisdom included patience and insight. Recommendations to support these caregivers are provided.
Descriptors: Grandparents Raising Grandchildren, Child Custody, Child Rearing, Grandchildren, Autism, Pervasive Developmental Disorders, Online Surveys, Caregivers
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A