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Gotto, George S.; Reynolds, Michelle C.; Palmer, Susan B.; Chiang, Danielle F. – Intellectual and Developmental Disabilities, 2019
Supporting families who have family members with intellectual and developmental disabilities (IDD) as they move through life is a critical need (Reynolds, Palmer, & Gotto, 2018). The phrase, "supporting families," juxtaposes the typical family support paradigm in response to the ongoing shrinkage of federal and state dollars and the…
Descriptors: Family Programs, Caregivers, Services, Intellectual Disability
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Burke, Meghan M.; Lee, Chung eun; Hall, Sarah A.; Rossetti, Zach – Intellectual and Developmental Disabilities, 2019
Many siblings anticipate fulfilling caregiving roles for their brothers and sisters with intellectual and developmental disabilities (IDD). Given these roles and the importance of supported decision making, it is crucial to understand how individuals with IDD and their siblings make decisions. Using dyadic interviews, we examined the perspectives…
Descriptors: Decision Making, Intellectual Disability, Developmental Disabilities, Siblings
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Keesler, John M. – Intellectual and Developmental Disabilities, 2018
Direct support professionals (DSPs) provide integral support to many individuals with intellectual and developmental disabilities (IDD). Yet, individuals' access to qualified DSPs is often compromised as organizations struggle to hire and retain DSPs. Despite a vast body of research exploring factors associated with turnover, adverse childhood…
Descriptors: Intellectual Disability, Developmental Disabilities, Early Experience, Allied Health Personnel
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Burke, Meghan; Arnold, Catherine; Owen, Aleksa – Intellectual and Developmental Disabilities, 2018
Although individuals with intellectual and developmental disabilities (IDD) are living longer lives, fewer than half of parents of individuals with IDD conduct future planning. The correlates and barriers to future planning must be identified to develop targeted interventions to facilitate future planning. In this study, 388 parents of individuals…
Descriptors: Intellectual Disability, Developmental Disabilities, Planning, Parent Participation
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Leser, Kendall A.; Pirie, Phyllis L.; Ferketich, Amy K.; Havercamp, Susan M.; Wewers, Mary Ellen – Intellectual and Developmental Disabilities, 2018
Direct support professionals (DSPs) play a large social role in the lives of people with developmental disabilities (DD) and have the potential to influence their health behaviors. Six qualitative focus groups (n = 48) were conducted with DD community agency administrators, DSPs, family members and adults with DD to better understand the perceived…
Descriptors: Role, Developmental Disabilities, Health Behavior, Focus Groups
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Francis, Grace L.; Gross, Judith M. S.; Lavin, Carlos E.; Velazquez, Lu Ankely Casarez; Sheets, Nicholas – Intellectual and Developmental Disabilities, 2018
The rate of competitive employment, or employment in community settings for minimum wage or higher, of working-age individuals with disabilities trails behind individuals without disabilities in the United States. These statistics are even more alarming among Hispanic individuals who have disabilities. The purpose of this study was to explore the…
Descriptors: Young Adults, Disabilities, Hispanic Americans, Caregivers
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Mihaila, Iulia; Hartley, Sigan L.; Handen, Benjamin L.; Bulova, Peter D.; Tumuluru, Rameshwari V.; Devenny, Darlynne A.; Johnson, Sterling C.; Lao, Patrick J.; Christian, Bradley, T. – Intellectual and Developmental Disabilities, 2017
The present study examined leisure activity and its association with caregiver involvement (i.e., residence and time spent with primary caregiver) in 62 middle-aged and older adults with Down syndrome (aged 30-53 years). Findings indicated that middle-aged and older adults with Down syndrome frequently participated in social and passive leisure…
Descriptors: Leisure Time, Caregivers, Adults, Down Syndrome
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Williamson, Heather J.; Perkins, Elizabeth A.; Levin, Bruce L.; Baldwin, Julie A.; Lulinski, Amie; Armstrong, Mary I.; Massey, Oliver T. – Intellectual and Developmental Disabilities, 2017
Many adults with intellectual and/or developmental disabilities (IDD) can access health and long-term services and supports (LTSS) through Medicaid. States are reforming their Medicaid LTSS programs from a fee-for-service model to a Medicaid managed LTSS (MLTSS) approach, anticipating improved quality of care and reduced costs, although there is…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Access to Health Care
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Friedman, Carli; Rizzolo, Mary C. – Intellectual and Developmental Disabilities, 2016
The United States long-term services and supports system is built on largely unpaid (informal) labor. There are a number of benefits to allowing family caregivers to serve as paid personal care providers including better health and satisfaction outcomes, expanded workforces, and cost effectiveness. The purpose of this study was to examine how…
Descriptors: Health Services, Intellectual Disability, Developmental Disabilities, Caregivers
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Bogenschutz, Matthew; Nord, Derek; Hewitt, Amy – Intellectual and Developmental Disabilities, 2015
Turnover among direct support professionals (DSPs) in community support settings for individuals with intellectual and developmental disabilities (IDD) has been regarded as a challenge since tracking of this workforce began in the 1980s. This study utilized a group randomized controlled design to test the effects of a competency-based training…
Descriptors: Mental Retardation, Caregivers, Caregiver Attitudes, Burnout
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Gray, Jennifer A.; Truesdale, Jesslyn – Intellectual and Developmental Disabilities, 2015
The Delphi technique was used to obtain expert panel consensus to prioritize content areas and delivery methods for developing staff grief and bereavement curriculum training in the intellectual and developmental disabilities (IDD) field. The Delphi technique was conducted with a panel of 18 experts from formal and informal disability caregiving,…
Descriptors: Delphi Technique, Grief, Intellectual Disability, Developmental Disabilities
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Williamson, Heather J.; Perkins, Elizabeth A. – Intellectual and Developmental Disabilities, 2014
Individuals with intellectual and developmental disabilities (IDD) in the U.S. predominantly live with their family caregivers. As care delivery and support systems vary widely globally, consideration of caregiver outcomes specifically in the U.S. context is needed. A systematic literature review was conducted to identify U.S. family caregiver…
Descriptors: Developmental Disabilities, Mental Retardation, Literature Reviews, Caregivers
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Elliot, Timothy R.; Patnaik, Ashweeta; Naiser, Emily; Fournier, Constance J.; McMaughan, Darcy K.; Dyer, James A.; Phillips, Charles D. – Intellectual and Developmental Disabilities, 2014
We report on the nature and timing of services provided to children with an intellectual disability (ID) identified by a new comprehensive assessment and care planning tool used to evaluate children's needs for Medicaid Personal Care Services (PCS) in Texas. The new assessment procedure resulted from a legal settlement with the advocacy community.…
Descriptors: Social Services, Children, Mental Retardation, Time
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Swaine, Jamie G.; Dababnah, Sarah; Parish, Susan L.; Luken, Karen – Intellectual and Developmental Disabilities, 2013
Women with intellectual disability do not receive cervical and breast cancer screening at the same number as women without disabilities. Numerous barriers to receipt of screening have been reported by individuals with intellectual disability, paid caregivers, nurses, and other medical professionals. This study utilized semi-structured qualitative…
Descriptors: Cancer, Medical Services, Females, Mental Retardation
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Arnold, Catherine K.; Heller, Tamar; Kramer, John – Intellectual and Developmental Disabilities, 2012
This qualitative study examines the support needs of adult siblings of people with developmental disabilities. A survey completed by 139 siblings of people with developmental disabilities captured the needs of adult siblings through 2 open-ended questions. A grounded theory approach was used, and the sibling responses anchored the analysis,…
Descriptors: Developmental Disabilities, Grounded Theory, Sibling Relationship, Siblings
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