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Rodriguez, Geovanna; Monteleone, Rebecca; Munandar, Vidya D.; Bumble, Jennifer L. – Intellectual and Developmental Disabilities, 2021
The last three issues of "Intellectual and Developmental Disabilities (IDD)" have featured perspectives from a diverse set of contributors on how the field of intellectual and developmental disabilities (IDD) is being impacted by COVID-19. As four newly appointed faculty members with diverse backgrounds, the editor of "IDD"…
Descriptors: COVID-19, Pandemics, Beginning Teachers, Intellectual Disability
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Friedman, Carl – Intellectual and Developmental Disabilities, 2021
Although Medicaid managed care is a growing service model, there is a limited evidence base regarding quality and value-based payment standards for people with intellectual and developmental disabilities (IDD). This study examined the relationship between emergency room utilization and quality of life outcomes. We analyzed secondary Personal…
Descriptors: Quality of Life, Hospitals, Health Services, Access to Health Care
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Li, Henan; Parish, Susan L.; Magaña, Sandra; Morales, Miguel A. – Intellectual and Developmental Disabilities, 2021
Barriers to health care access can greatly affect one's health status. Research shows that U.S. adults with intellectual and developmental disabilities (IDD) have poor health and face barriers such as long waits for appointments. However, whether barriers differ by race and ethnicity has not been examined. We conducted a secondary data analysis…
Descriptors: Racial Differences, Barriers, Health Services, Adults
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Shogren, Karrie A.; Rifenbark, Graham G.; Hagiwara, Mayumi – Intellectual and Developmental Disabilities, 2021
This article analyzes the reliability and factor structure of the Self-Determination Inventory: Adult Report (SDI:AR) in adults with and without intellectual disability. There is a critical need for contemporary assessment tools given the emphasis on self-determination outcomes in disability supports and services. The findings suggest that the…
Descriptors: Self Determination, Evaluation, Adults, Intellectual Disability
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Lee, Chung E.; Burke, Meghan M. – Intellectual and Developmental Disabilities, 2021
Given the increased longevity of people with intellectual and developmental disabilities (IDD), future planning programs are becoming increasingly common. However, although siblings are likely to fulfill caregiving roles for people with IDD, siblings have not been included in future planning interventions. The purpose of this study was to evaluate…
Descriptors: Intellectual Disability, Developmental Disabilities, Siblings, Family Role
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Voss, Hille; Vogel, Anique G. F. M.; Wagemans, Annemieke M. A.; Francke, Anneke L.; Metsemakers, Job F. M.; Courtens, Annemie M.; de Veer, Anke J. E. – Intellectual and Developmental Disabilities, 2021
In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and…
Descriptors: Intellectual Disability, Planning, Medical Services, Quality of Life
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Shogren, Karrie A.; Dean, Evan E.; Burke, Kathryn M.; Raley, Sheida K.; Taylor, Julie Lounds – Intellectual and Developmental Disabilities, 2021
Goal setting and attainment is often a targeted outcome in the intellectual and developmental disabilities field; however, standardizing the measurement of attainment of individualized goals is challenging. The purpose of this article is to introduce a four-domain framework that provides a series of questions to research and evaluation teams in…
Descriptors: Intellectual Disability, Developmental Disabilities, Goal Orientation, Measurement Techniques
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Samtani, Grace; Bassford, Tamsen L.; Williamson, Heather J.; Armin, Julie S. – Intellectual and Developmental Disabilities, 2021
People with intellectual and developmental disabilities (PWIDD) often encounter barriers in the health care system when seeking general and specialized medical care. Literature has shown that PWIDD experience a lack of proper screening for and prevention of cancer compared to the general population. However, less is known regarding the cancer care…
Descriptors: Cancer, Intellectual Disability, Developmental Disabilities, Access to Health Care
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Pearson, Jamie N.; Meadan, Hedda – Intellectual and Developmental Disabilities, 2021
Children with autism and their families often face challenges accessing early intervention and related services. African American children face additional challenges due to disparities in diagnoses and access to services. These disparities present a great need for parent advocacy to combat culturally insensitive service delivery and strained…
Descriptors: Autism, Pervasive Developmental Disorders, African Americans, Parents
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Cherry, Elizabeth; Stancliffe, Roger J.; Emerson, Eric; Tichá, Renata – Intellectual and Developmental Disabilities, 2021
This study identifies factors (state of residence, personal characteristics, and living situation) associated with access to self-directed funding (SDF) for adults with intellectual disability in the United States. Data from 10,033 participants from 26 states in the 2012-2013 National Core Indicators Adult Consumer Survey were analyzed. We…
Descriptors: Intellectual Disability, Place of Residence, Individual Characteristics, Geographic Location
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Maniezki, Alice; Martínez-Tur, Vicente; Estreder, Yolanda; Moliner, Carolina – Intellectual and Developmental Disabilities, 2021
We propose a justice-based partnership between employees and family members as a means to create services and support systems for people with intellectual disability, enhancing quality of life indicators. More specifically, we examine the links from mutual intergroup justice to three outcomes reported by family members: satisfaction with the…
Descriptors: Family Involvement, Intellectual Disability, Quality of Life, Justice
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Murthy, Sumithra; Hsieh, Kelly – Intellectual and Developmental Disabilities, 2021
Adults with intellectual and developmental disabilities (IDD) are at a greater risk of developing high cholesterol and cardiovascular disease. We examined whether physical inactivity, obesity, and diabetes were predictive of reported high cholesterol and whether there were any mediating effects of diabetes on the relationship between obesity and…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, At Risk Persons
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Friedman, Carli – Intellectual and Developmental Disabilities, 2021
One of the most common reasons people with intellectual and developmental disabilities (IDD) return to institutions is because of maladaptive behaviors. This study's aim was to examine the impact organizational supports can have on the community outcomes of people with dual diagnosis--those with IDD and psychiatric disabilities. We analyzed…
Descriptors: Intellectual Disability, Developmental Disabilities, Behavior Problems, Mental Disorders
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Shogren, Karrie A.; Luckasson, Ruth; Schalock, Robert L. – Intellectual and Developmental Disabilities, 2020
This article describes a multidimensional model of context that identifies, defines, and explains three key properties of context: multilevel, multifactorial, and interactive. The use of this model to drive a context-based enhancement cycle is also described. The enhancement cycle involves four steps: (a) identifying current interactions that…
Descriptors: Models, Context Effect, Interaction, Individual Development
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Akobirshoev, Ilhom; Mitra, Monika; Parish, Susan L.; Valentine, Anne; Simas, Tiffany A. Moore – Intellectual and Developmental Disabilities, 2020
Understanding the pregnancy experiences of racial and ethnic minority women with intellectual and developmental disabilities (IDD) is critical to ensuring that policies can effectively support these women. This research analyzed data from the 1998-2013 Massachusetts Pregnancy to Early Life Longitudinal (PELL) data system to examine the racial and…
Descriptors: Mothers, Pregnancy, Minority Groups, Ethnic Groups
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