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Keesler, John M. – Intellectual and Developmental Disabilities, 2018
Direct support professionals (DSPs) provide integral support to many individuals with intellectual and developmental disabilities (IDD). Yet, individuals' access to qualified DSPs is often compromised as organizations struggle to hire and retain DSPs. Despite a vast body of research exploring factors associated with turnover, adverse childhood…
Descriptors: Intellectual Disability, Developmental Disabilities, Early Experience, Allied Health Personnel
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Burke, Meghan; Arnold, Catherine; Owen, Aleksa – Intellectual and Developmental Disabilities, 2018
Although individuals with intellectual and developmental disabilities (IDD) are living longer lives, fewer than half of parents of individuals with IDD conduct future planning. The correlates and barriers to future planning must be identified to develop targeted interventions to facilitate future planning. In this study, 388 parents of individuals…
Descriptors: Intellectual Disability, Developmental Disabilities, Planning, Parent Participation
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Schalock, Robert L.; Luckasson, Ruth; Tassé, Marc J.; Verdugo, Miguel Angel – Intellectual and Developmental Disabilities, 2018
This article describes a holistic theoretical framework that can be used to explain intellectual disability (ID) and organize relevant information into a usable roadmap to guide understanding and application. Developing the framework involved analyzing the four current perspectives on ID and synthesizing this information into a holistic…
Descriptors: Holistic Approach, Intellectual Disability, Attitudes toward Disabilities, Theories
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Fujiura, Glenn T.; Li, Henan; Magaña, Sandy – Intellectual and Developmental Disabilities, 2018
Health services and associated costs for adults with intellectual and developmental disabilities (IDD) were nationally profiled and the predictors of high expense users statistically modeled. Using linked data from the National Health Interview Survey and Medical Expenditure Panel Survey for the years 2002 through 2011, the study found a mixed…
Descriptors: Health Services, Costs, Intellectual Disability, Patients
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Yamaki, Kiyoshi; Wing, Coady; Mitchell, Dale; Owen, Randall; Heller, Tamar – Intellectual and Developmental Disabilities, 2018
States have increasingly transitioned Medicaid enrollees with disabilities from fee-for-service (FFS) to Medicaid Managed Care (MMC), intending to reduce state Medicaid spending and to provide better access to health services. Yet, previous studies on the impact of MMC are limited and findings are inconsistent. We analyzed the impact of MMC on…
Descriptors: Health Insurance, Public Policy, Intellectual Disability, Developmental Disabilities
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Dressler, Paul B.; Nguyen, Teresa K.; Moody, Eric J.; Friedman, Sandra L.; Pickler, Laura – Intellectual and Developmental Disabilities, 2018
Youth with intellectual and developmental disabilities (IDD) often experience difficulties with successful transition from pediatric to adult healthcare. A consultative Transition Clinic for youth with IDD was piloted as a quality improvement project, and assessed the engagement of primary care providers (PCPs) for transition planning after…
Descriptors: Primary Health Care, Patients, Pediatrics, Clinics
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Shogren, Karrie A.; Shaw, Leslie A.; Raley, Sheida K.; Wehmeyer, Michael L.; Niemiec, Ryan M.; Adkins, Megan – Intellectual and Developmental Disabilities, 2018
This article reports the results of an examination of the endorsement, reliability, and factorial validity of the VIA--Youth and assessment of character strengths and virtues developed for the general population in youth with and without intellectual disability. Findings suggest that, generally, youth with intellectual disability endorsed…
Descriptors: Personality Traits, Intellectual Disability, Youth, Measures (Individuals)
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Sheppard-Jones, Kathleen; Kleinert, Harold; Butler, Laura; Whaley, Barry – Intellectual and Developmental Disabilities, 2018
Higher education is increasingly becoming an option for young adults with intellectual disability (ID). Although initial evaluations of postsecondary education for this population have been promising, a broader "quality of life" framework needs to be adopted in order to truly understand the impact of these programs. Moreover, researchers…
Descriptors: Quality of Life, Longitudinal Studies, Research Needs, Higher Education
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Parish, Susan L.; Son, Esther; Powell, Robyn M.; Igdalsky, Leah – Intellectual and Developmental Disabilities, 2018
There is a dearth of existing research on the treatment of reproductive cancers among women with intellectual and developmental disabilities (IDD). This study analyzed the 2010 Healthcare Cost and Utilization Project Nationwide Inpatient Sample and compared the prevalence of reproductive cancer treatment hospitalization discharges among women with…
Descriptors: Cancer, Females, Incidence, Medical Services
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Leser, Kendall A.; Pirie, Phyllis L.; Ferketich, Amy K.; Havercamp, Susan M.; Wewers, Mary Ellen – Intellectual and Developmental Disabilities, 2018
Direct support professionals (DSPs) play a large social role in the lives of people with developmental disabilities (DD) and have the potential to influence their health behaviors. Six qualitative focus groups (n = 48) were conducted with DD community agency administrators, DSPs, family members and adults with DD to better understand the perceived…
Descriptors: Role, Developmental Disabilities, Health Behavior, Focus Groups
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Friedman, Carli – Intellectual and Developmental Disabilities, 2018
Participant direction allows people with intellectual and developmental disabilities (IDD) and/or their families to direct services; in doing so, participant direction shifts participants from passive recipients to active consumers. Medicaid encourages, but does not require, states to allow participant direction. The aim of this study was to…
Descriptors: Intellectual Disability, Developmental Disabilities, Health Insurance, Expenditures
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Mihaila, Iulia; Hartley, Sigan L.; Handen, Benjamin L.; Bulova, Peter D.; Tumuluru, Rameshwari V.; Devenny, Darlynne A.; Johnson, Sterling C.; Lao, Patrick J.; Christian, Bradley, T. – Intellectual and Developmental Disabilities, 2017
The present study examined leisure activity and its association with caregiver involvement (i.e., residence and time spent with primary caregiver) in 62 middle-aged and older adults with Down syndrome (aged 30-53 years). Findings indicated that middle-aged and older adults with Down syndrome frequently participated in social and passive leisure…
Descriptors: Leisure Time, Caregivers, Adults, Down Syndrome
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Chiu, Chun-Yu; Seo, Hyojeong; Turnbull, Ann P.; Summer, Jean Ann – Intellectual and Developmental Disabilities, 2017
The Beach Center Family Quality of Life Scale is an internationally validated instrument for measuring family outcomes. To revise the scale for better alignment with the Family Quality of Life theory, the authors excluded non-outcome items in this revision. In this study, we examined reliability and validity of the revised scale (i.e., the FQoL…
Descriptors: Test Construction, Quality of Life, Intellectual Disability, Developmental Delays
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Burke, Meghan M.; Lee, Chung eun; Arnold, Catherine K.; Owen, Aleksa – Intellectual and Developmental Disabilities, 2017
Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with…
Descriptors: Adults, Siblings, Intellectual Disability, Developmental Disabilities
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Williamson, Heather J.; Perkins, Elizabeth A.; Levin, Bruce L.; Baldwin, Julie A.; Lulinski, Amie; Armstrong, Mary I.; Massey, Oliver T. – Intellectual and Developmental Disabilities, 2017
Many adults with intellectual and/or developmental disabilities (IDD) can access health and long-term services and supports (LTSS) through Medicaid. States are reforming their Medicaid LTSS programs from a fee-for-service model to a Medicaid managed LTSS (MLTSS) approach, anticipating improved quality of care and reduced costs, although there is…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Access to Health Care
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