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Byrne, Gary; Sarma, Kiran M.; Hendler, John; O'Connell, Anthony – British Journal of Learning Disabilities, 2018
Background: Raising a child with autism spectrum conditions (ASC) presents many challenges and learning experiences for parents and other family members. There has been limited research to date on Irish parents' experience of raising a child with ASC. The aim of this study was to describe the experience of a sample of Irish parents who have a…
Descriptors: Parent Attitudes, Child Rearing, Autism, Pervasive Developmental Disorders
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Lewis, Vicky; Rose, David – British Journal of Learning Disabilities, 2018
Background: The main assumption of narrative therapy is that people are the "experts" on their own lives. When working with people with a learning disability, it can often be the case that the client's voice is not the primary voice. This is due to the fact that others "hold" the story for the client. When the story is,…
Descriptors: Learning Disabilities, Therapy, Personal Narratives, Case Studies
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Erickson, Steven R.; Juncaj, Sophia; Buckley, Charlotte – British Journal of Learning Disabilities, 2018
Background: People who have an intellectual or developmental disability (IDD) and asthma are at greater risk of poor health outcomes. They often require assistance from caregivers when managing their medicines. The objective of this pilot study was to assess the level of understanding of asthma self-management concepts of family caregivers who…
Descriptors: Diseases, Intellectual Disability, Developmental Disabilities, At Risk Persons
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Caples, Maria; Martin, Anne-Marie; Dalton, Caroline; Marsh, Lynne; Savage, Eileen; Knafl, George; Van Riper, Marcia – British Journal of Learning Disabilities, 2018
Background: Down syndrome is a genetic condition that affects people of all races, nationalities and socioeconomic status. The incidence of Down syndrome in Ireland is estimated to be 1 in 546, with approximately 7,000 people with Down syndrome living in Ireland. While some families of individuals with Down syndrome may find it difficult to adapt,…
Descriptors: Resilience (Psychology), Down Syndrome, Foreign Countries, Adjustment (to Environment)
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Ryan, Christian; MacHale, Rosemary; Hickey, Emma – British Journal of Learning Disabilities, 2018
Background: Living with dementia is challenging, but poses unique difficulties for people with an intellectual disability. The process of dementia is also challenging for family, carers and friends. Materials and Methods: This study explores the impact of dementia on direct care staff using a focus group methodology. Thematic analysis was used to…
Descriptors: Attitudes toward Disabilities, Dementia, Intellectual Disability, Caregiver Attitudes
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Cumella, Stuart; Lyons, Maria – British Journal of Learning Disabilities, 2018
Background: A key aim of public policy has been to move people with a learning disability from segregated settings into ordinary housing, with the expectation that they would become integrated in and accepted by the rest of society. Despite this policy, people with a learning disability have high rates of unemployment, social isolation, mental…
Descriptors: Learning Disabilities, Housing, Quality of Life, Public Policy
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Rowland, Tobias; Pathania, Rani; Roy, Ashok – British Journal of Learning Disabilities, 2018
Background: Phelan-McDermid syndrome is caused by a deletion at chromosome 22q13.3, and results in a phenotype characterised by intellectual disability, features of autism, physical and mental health conditions. It is becoming increasingly recognised that bipolar disorder represents part of this phenotype. Materials and methods: This case study…
Descriptors: Genetic Disorders, Intellectual Disability, Mental Disorders, Drug Therapy
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Salmon, Nancy; Barry, Aoife; Hutchins, Enid – British Journal of Learning Disabilities, 2018
Background: The United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) (United Nations, 2006) sets the expectation that people with disabilities be involved in research that affects their lives. Inclusive research moves people with intellectual disabilities away from being research subjects, towards power-balanced…
Descriptors: Inclusion, Foreign Countries, Intellectual Disability, Adults
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Turner, Kellie; Cleaves, Lydia; Green, Samantha – British Journal of Learning Disabilities, 2018
Background: Research suggests that the use of team formulation within mental health services may improve staff understanding of service users' difficulties and increase team empathy and reflection. The aim of this evaluation was to investigate staff perceptions of team formulation within an assessment and treatment unit for individuals with…
Descriptors: Intellectual Disability, Health Services, Mental Health Programs, Teamwork
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McKenzie, Karen; Whelan, Kathryn J.; Mayer, Claire; McNall, Anne; Noone, Steve; Chaplin, Jill – British Journal of Learning Disabilities, 2018
Background: There is a growing evidence base about the effectiveness of positive behavioural support (PBS) in relation to behaviours that challenge (CB). There is, however, limited research from the perspective of individuals receiving this support. The objective of this qualitative study was to obtain the views of participants with an…
Descriptors: Intellectual Disability, Positive Behavior Supports, Attitudes, Foreign Countries
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Heslop, Pauline; Read, Stuart; Dunwoodie Stirton, Fred – British Journal of Learning Disabilities, 2018
Background: The Equality Act 2010 places a duty on service providers to make "reasonable adjustments" for disabled people. The aim of this study was to explore key aspects relating to the provision of reasonable adjustments for people with learning disabilities in hospitals. Methods: The research questions were explored using Freedom of…
Descriptors: Foreign Countries, Intellectual Disability, Accessibility (for Disabled), Hospitals
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Gaintza, Zuriñe; Ozerinjauregi, Nagore; Aróstegui, Igone – British Journal of Learning Disabilities, 2018
Background: More and more voices have pointed out the need to improve the quality of life of people with rare diseases. Given the diversity of this group, we wanted to focus on the educational context for students with spina bifida (SB). The purpose was to analyse these people's experiences in the school context with the aim of fostering good…
Descriptors: Congenital Impairments, Diseases, Inclusion, Students
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Marsh, Lynne; Warren, Patricia-Leahy; Savage, Eileen – British Journal of Learning Disabilities, 2018
Background: In recent years, there has been a growth of research on men's experiences of becoming fathers, most of which relates to a typically developing child without intellectual disabilities. While some studies have specifically explored the experiences of becoming a father of a child with an intellectual disability, there are few studies from…
Descriptors: Foreign Countries, Fathers, Intellectual Disability, Children
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Brownrigg, Sophie – British Journal of Learning Disabilities, 2018
Background: This article provides a literature review exploring reasons for disclosure and nondisclosure of bad news to people with learning disabilities. Connections are made to current policy, law and ethics to highlight the complexity of this issue. Methods: This review examines literature on disclosing bad news to people with learning…
Descriptors: Intellectual Disability, Disclosure, Policy, Laws
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Williamson, Hannah; Meddings, Susanne – British Journal of Learning Disabilities, 2018
Background: Learning disability services must include the people who use them (individuals and their families/carers) in service commissioning, planning and delivery (Department of Health 2012. "Transforming care: A national response to Winterbourne View Hospital. Department of Health review: Final report"). One group of important…
Descriptors: Intellectual Disability, Adults, Health Services, Parents
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