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Fish, Rebecca; Hatton, Chris; Chauhan, Umesh – British Journal of Learning Disabilities, 2017
Background: Previous research has found that people with learning disabilities are not given prescription information that is tailored to their needs. We wanted to find out people's information requirements. Materials and Methods: A questionnaire was co-produced by the authors and consultants with learning disabilities. It asked what information…
Descriptors: Foreign Countries, Intellectual Disability, Questionnaires, Physicians
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Williams, Val; Ponting, Lisa; Ford, Kerrie – British Journal of Learning Disabilities, 2015
Participation, voice and control have long been central concerns in the research at Norah Fry. This paper focuses on inclusive research relating to choice and control, as experienced by people with learning disabilities who use personal budgets and direct payments, and aims to question how the process of inclusive research can be linked to wider…
Descriptors: Foreign Countries, Mental Retardation, Social Science Research, Social Influences
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Azzopardi-Lane, Claire; Callus, Anne-Marie – British Journal of Learning Disabilities, 2015
This paper presented research undertaken in collaboration with a self-advocacy group using inclusive research methods and puts forward the views of people with intellectual disability on the topics of sexuality and relationships. The paper presents the perceptions of sexuality of the people with intellectual disability and how these are influenced…
Descriptors: Sexuality, Mental Retardation, Self Advocacy, Interpersonal Relationship
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Keyes, Sarah E.; Brandon, Toby – British Journal of Learning Disabilities, 2012
Mutual Support, a model of peer support by and for people with learning difficulties, was constructed through a participatory research process. The research focussed on individual narratives from people with learning difficulties. These narratives were then brought together to form a collective model of support. This paper outlines the detailed…
Descriptors: Learning Problems, Participatory Research, Self Advocacy, Personal Narratives
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Michell, Bryan – British Journal of Learning Disabilities, 2012
This is about research an Oxfordshire Self-Advocacy Organisation did into annual health checks for people with learning disabilities. The self-advocates worked with Oxfordshire's Primary Care Health Facilitator and a Professor to find out why only one in four people in our area had a health check in 2009/10 (Emerson & Glover 2010a,b). The…
Descriptors: Mental Retardation, Learning Disabilities, Self Advocacy, Foreign Countries
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Gilmartin, Ann; Slevin, Eamonn – British Journal of Learning Disabilities, 2010
A phenomenological methodology was used to explore the lived experiences of belonging to a self-advocacy group for people with intellectual disabilities. Thirteen persons with intellectual disabilities who attend three self-advocacy day centre based groups in a city in the west of Ireland were the sample identified for the study. Changes affected…
Descriptors: Self Advocacy, Mental Retardation, Group Membership, Empowerment
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Roberts, Bill; Hamilton, Carol – British Journal of Learning Disabilities, 2010
This article recounts the life-story of one man who was "diagnosed" as intellectually disabled in the early 1960s. It details the time he spent in a special residential school in the Irish Republic after acquiring this label and outlines the bullying and abuse he experienced. It includes his struggle as an adult to come to terms with his…
Descriptors: Writing (Composition), Bullying, Mental Retardation, Residential Schools
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Hollomotz, Andrea – British Journal of Learning Disabilities, 2009
Many residential group settings for people with learning difficulties do not provide individuals with the private space in which they can explore their sexual relationships in a safe and dignified manner. Lack of agreed private spaces seriously infringes the individual's human rights. Many people with learning difficulties who lack privacy have no…
Descriptors: Mental Retardation, Self Advocacy, Sexuality, Residential Care
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Siska, Jan – British Journal of Learning Disabilities, 2006
In this paper I describe how self-advocacy has grown in the Czech Republic. First, I talk about how services for people with learning disabilities have begun to change in the last few years. This is because voluntary groups have lobbied and campaigned for change. I learned about self-advocacy during a visit to the UK in the 1990s. I went back to…
Descriptors: Foreign Countries, Self Advocacy, Learning Disabilities, Voluntary Agencies
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Roets, Griet; Adams, Marie; Van Hove, Geert – British Journal of Learning Disabilities, 2006
This is the story of Marie, a woman with "learning difficulties" who lives in Belgium. It is told by Marie and her advocate, Griet. In 2002, Marie was told she had to have a sterilization. This is the story of what happened: The professionals told Marie and her mother the operation was essential. Marie did not know what the operation was…
Descriptors: Foreign Countries, Learning Problems, Self Advocacy, Females
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Hreinsdottir, Eyglo Ebba; Stefansdottir, Guorun; Lewthwaite, Anne; Ledger, Sue; Shufflebotham, Lindy – British Journal of Learning Disabilities, 2006
This paper uses oral history and documentary materials to develop a cross-cultural comparison of the experiences of two self-advocates who spent significant parts of their lives in learning difficulty institutions in England and Iceland. Anne Lewthwaite and Eyglo Ebba Hreinsdottir, born in the same era (1948-1950), were linked through the Open…
Descriptors: Foreign Countries, Self Advocacy, Cross Cultural Studies, Oral History
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Tsuda, Eiji – British Journal of Learning Disabilities, 2006
In Japan, there is a growing network of self-advocacy groups. Some groups are involved in campaigning. Other groups are involved in social events and education. The age of de-institutionalization is gradually arriving and community living for people with learning difficulties is becoming an urgent political issue. Self-advocacy groups can help…
Descriptors: Foreign Countries, Political Issues, Learning Problems, Asian Culture
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Traustadottir, Rannveig – British Journal of Learning Disabilities, 2006
Many people with learning difficulties want to tell the stories of their life and have done so in collaboration with academic researchers. Life histories of people with learning difficulties are a good way to learn about self-advocacy. Life histories can tell us about how self-advocacy began and the support people need to be self-advocates. Tom…
Descriptors: Learning Problems, Biographies, Self Advocacy, Case Studies
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Meininger, Herman P. – British Journal of Learning Disabilities, 2006
This article is about life story work with people with learning disabilities. It talks about reading and writing stories, and listening to them. Telling your life story, writing it down and talking about it with others can be an important part of self-advocacy for people with learning disabilities. Life stories are helpful when they are told or…
Descriptors: Personal Narratives, Writing (Composition), Self Advocacy, Learning Disabilities
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Bylov, Frank – British Journal of Learning Disabilities, 2006
This article tells us about the history of self-advocacy in Denmark. It also gives some information about how services for people with learning difficulties in Denmark have changed over the past 100 years. In this article, I talk about "movements" of self-advocacy, which means the different types of self-advocacy groups that have grown…
Descriptors: Foreign Countries, Learning Problems, Self Advocacy, Social History
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