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Mengoni, Silvana E.; Redman, Sandra – British Journal of Learning Disabilities, 2020
Background: Children with Down syndrome have an increased risk of serious health conditions, particularly in early childhood. Published guidelines promote the identification and monitoring of health issues and adherence could reduce health inequalities, yet there is limited research about the extent to which health monitoring occurs as…
Descriptors: Down Syndrome, Young Children, At Risk Persons, Child Health
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Gray, Jennifer A.; Kim, Jinsook – British Journal of Learning Disabilities, 2020
Background: Direct care workers (DCWs) caring for people with intellectual and developmental disabilities (PWIDD) provide palliative care, but research indicates DCWs are ill-equipped to do so. This study aimed to assess DCWs' palliative care experience and training and their perceived training needs. Materials and Methods: Staff trained as DCWs…
Descriptors: Caregivers, Health Services, Intellectual Disability, Developmental Disabilities
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Doody, Owen; Lyons, Rosemary; Ryan, Ruth – British Journal of Learning Disabilities, 2019
Background: Adults with intellectual disability should be involved in decision-making about their care. However, little is known regarding their experience of engaging in care planning within health services. In a rapidly changing healthcare environment, the relevance and necessity of demonstrating care delivered and care outcomes is essential for…
Descriptors: Adults, Intellectual Disability, Nursing, Health Services
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Cithambaram, Kumaresan; Duffy, Mel; Courtney, Eileen – British Journal of Learning Disabilities, 2019
Background: In recent times, people with intellectual disabilities are increasingly included in research studies; however, their participation in sensitive research such as palliative and end-of-life care is less frequent. The reasons for not including people with intellectual disabilities in these kinds of research studies are issues in relation…
Descriptors: Inclusion, Foreign Countries, Death, Health Services
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Nancarrow, Thomas; Rencher, Joshua; Wilcock, Mike; Bonell, Simon; Wolke, Tony; Shankar, Rohit – British Journal of Learning Disabilities, 2019
Background: Intellectual disability (ID) is associated with polypharmacy particularly off-label psychotropics for "challenging behaviour." NHS England introduced the "stopping over medication of people with a learning disability (LD), autism or both" (STOMP) initiative. As ID services are a professionally diverse group, it is…
Descriptors: Intellectual Disability, Learning Disabilities, Correlation, Drug Therapy
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Chapman, Melanie; Lacey, Huma; Jervis, Nicola – British Journal of Learning Disabilities, 2018
Background: Dementia prevalence rates are higher amongst people with learning disabilities than the general population. People with Down's syndrome are at even greater risk of developing dementia and of developing dementia at an earlier age. This study, conducted as part of a wider service evaluation, explored community learning disability team…
Descriptors: Learning Disabilities, Dementia, Program Evaluation, Screening Tests
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Chapman, Hazel M.; Lovell, Andrew; Bramwell, Ros – British Journal of Learning Disabilities, 2018
Background: Health consultations are an interpersonal activity that influence health outcomes and attitudes towards self and health professionals for people with learning disabilities. Annual health checks have been introduced to improve health inequalities for people with learning disabilities. Method: A narrative literature review of health care…
Descriptors: Learning Disabilities, Health Services, Health Needs, Outcome Measures
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Turner, Kellie; Cleaves, Lydia; Green, Samantha – British Journal of Learning Disabilities, 2018
Background: Research suggests that the use of team formulation within mental health services may improve staff understanding of service users' difficulties and increase team empathy and reflection. The aim of this evaluation was to investigate staff perceptions of team formulation within an assessment and treatment unit for individuals with…
Descriptors: Intellectual Disability, Health Services, Mental Health Programs, Teamwork
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Heslop, Pauline; Read, Stuart; Dunwoodie Stirton, Fred – British Journal of Learning Disabilities, 2018
Background: The Equality Act 2010 places a duty on service providers to make "reasonable adjustments" for disabled people. The aim of this study was to explore key aspects relating to the provision of reasonable adjustments for people with learning disabilities in hospitals. Methods: The research questions were explored using Freedom of…
Descriptors: Foreign Countries, Intellectual Disability, Accessibility (for Disabled), Hospitals
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Williamson, Hannah; Meddings, Susanne – British Journal of Learning Disabilities, 2018
Background: Learning disability services must include the people who use them (individuals and their families/carers) in service commissioning, planning and delivery (Department of Health 2012. "Transforming care: A national response to Winterbourne View Hospital. Department of Health review: Final report"). One group of important…
Descriptors: Intellectual Disability, Adults, Health Services, Parents
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Jacobs, Myrthe; Downie, Helen; Kidd, Gill; Fitzsimmons, Lorna; Gibbs, Susie; Melville, Craig – British Journal of Learning Disabilities, 2016
Background: Children and young people with learning disabilities experience high rates of mental health problems. Methods: The present study reviewed the literature on mental health services for children with learning disabilities, to identify known models of service provision and what has been experienced as effective or challenging in providing…
Descriptors: Adolescents, Children, Mental Health, Health Services
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Howarth, Sharon; Morris, David; Newlin, Meredith; Webber, Martin – British Journal of Learning Disabilities, 2016
People with learning disabilities are among the most socially excluded in society. There is a significant gap in research evidence showing how health and social care workers can intervene to improve the social participation of adults with learning disabilities. A systematic review and modified narrative synthesis was used to appraise the quality…
Descriptors: Intervention, Adults, Learning Disabilities, Health Services
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Rowe, Michelle – British Journal of Learning Disabilities, 2016
This article provides a timely response in regard to the Department of Health's current initiative to financially reward GPs to prioritise and undertake dementia screening for people with learning disabilities over the age of 50 years and for people with Down syndrome over the age of 40 years. Whilst GPs are becoming increasingly aware of their…
Descriptors: Dementia, Screening Tests, Learning Disabilities, Down Syndrome
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Mac Giolla Phadraig, Caoimhin; Dougall, Alison; Stapleton, Siobhan; McGeown, Danielle; Nunn, June; Guerin, Suzanne – British Journal of Learning Disabilities, 2016
Background: In Ireland, people with learning disabilities have poor oral health. This is in part due to inappropriate oral health services. Recognising the value of inclusive approaches to research and healthcare planning, this study sought to include a group of people with learning disabilities in priority setting for oral health services in…
Descriptors: Foreign Countries, Intellectual Disability, Dental Health, Access to Health Care
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Flood, Bernadette; Henman, Martin C. – British Journal of Learning Disabilities, 2015
People with intellectual disabilities may be "invisible" to pharmacists. They are a complex group of patients many of whom have diabetes. Pharmacists may have little experience of the challenges faced by this high risk group of patients who may be prescribed high risk medications. This case report details information supplied by Pat, a…
Descriptors: Case Studies, Mental Retardation, Disabilities, Pharmacy
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