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Schwartz, Ariel E.; Kramer, Jessica M. – British Journal of Learning Disabilities, 2021
Background: Patient-reported outcome measures (PROMs) are increasingly used in health care to evaluate service quality and client progress. Response scales are a critical component of PROM content validity and must be designed to be relevant and comprehensible by users. Methods: In collaboration with eight youth co-researchers with…
Descriptors: Test Construction, Content Validity, Measurement Techniques, Outcomes of Treatment
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O' Connor, Anne B.; Carpenter, Barry; Coughlan, Barry – British Journal of Learning Disabilities, 2021
This paper describes a study exploring the parental response to the diagnosis of their child's developmental disability. A classic grounded theory methodology was used to analyse data comprising 19 interviews and 11 memoirs written by parents. The theory explains how parents adjust to champion their child, who has been identified as having a…
Descriptors: Parents, Adjustment (to Environment), Clinical Diagnosis, Children
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Tait, Kathleen; Hussain, Rafat; Wark, Stuart; Fung, Francis – British Journal of Learning Disabilities, 2020
Background: This study investigated perceived quality of life (QoL) of community-dwelling middle-aged adults (30-50 years) with an intellectual disability and/or developmental disability living in rural or urban areas in New South Wales and Queensland, Australia. The specific aim of the current paper was to provide a descriptive evidence base of…
Descriptors: Quality of Life, Aging (Individuals), Adults, Intellectual Disability
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Gray, Jennifer A.; Kim, Jinsook – British Journal of Learning Disabilities, 2020
Background: Direct care workers (DCWs) caring for people with intellectual and developmental disabilities (PWIDD) provide palliative care, but research indicates DCWs are ill-equipped to do so. This study aimed to assess DCWs' palliative care experience and training and their perceived training needs. Materials and Methods: Staff trained as DCWs…
Descriptors: Caregivers, Health Services, Intellectual Disability, Developmental Disabilities
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Morrison, Stewart C.; Barrett, Laura; Haines, David – British Journal of Learning Disabilities, 2020
Background: Foot problems have been reported to be a very common health issue in adults with intellectual disabilities; foot problems in children and young people are, however, poorly understood. The aim of this study was to explore foot care needs of children and young people with intellectual and developmental disability. Methods: An…
Descriptors: Podiatry, Young Children, Intellectual Disability, Developmental Disabilities
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Rojas-Pernia, Susana; Haya-Salmón, Ignacio; Lastra-Cagigas, Santiago; Álvarez-Sáenz de Santa María, Lucia – British Journal of Learning Disabilities, 2020
This article presents the results of a project carried out by a group of researchers with and without intellectual disabilities on "the importance of social relationships and loneliness." We wanted to find out about the experience of loneliness in young people with and without intellectual disabilities and know whether this was an…
Descriptors: Alienation, Cultural Isolation, Developmental Disabilities, Foreign Countries
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Bates, Claire; McCarthy, Michelle; Milne Skillman, Karen; Elson, Nicola; Forrester-Jones, Rachel; Hunt, Siobhan – British Journal of Learning Disabilities, 2020
Background: People with intellectual and developmental disabilities face challenges in developing and maintaining intimate relationships, frequently requiring support from staff. Method: Focus groups were conducted with 26 social care staff members to explore the support they provided to people with intellectual and developmental disabilities to…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Interpersonal Relationship
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Sitter, Kathleen C.; Burke, Amy C.; Ladhani, Sheliza; Mallay, Nicole – British Journal of Learning Disabilities, 2019
Background: Although sexual rights are human rights, persons with developmental disabilities are often excluded from developing positive sexual health due to societal attitudes, stigma, a lack of education and limited opportunities. Methods: As a part of a 12-month participatory action research study in a western Canadian province, nine adults…
Descriptors: Sexuality, Participatory Research, Action Research, Video Technology
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Sutton, Julie E.; Huws, Jaci C.; Burton, Christopher R. – British Journal of Learning Disabilities, 2019
Background: Sleep hygiene education (SHE) is a familiar intervention for addressing behavioural sleep problems in children with developmental disabilities that involves advising parents on sleep-promoting behaviours; however, it is supported by a limited evidence base. Materials and methods: This exploratory study aimed to enhance qualitative…
Descriptors: Sleep, Hygiene, Intervention, Behavior Problems
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Smidt, Andy; Markoulli, Constantina; Wine, Chloe; Chang, Elsie; Turnbull, Harmony; Huzmeli, Aylin; Hines, Monique – British Journal of Learning Disabilities, 2019
Background: Children and adults with developmental disability frequently require either aided or unaided alternative and augmentative communication (AAC). Key word sign (KWS) involves using natural gesture and sign language to support the key words in spoken utterances. The purpose of this study was to determine whether communication partners of…
Descriptors: Retention (Psychology), Sign Language, Workshops, Receptive Language
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Erickson, Steven R.; Juncaj, Sophia; Buckley, Charlotte – British Journal of Learning Disabilities, 2018
Background: People who have an intellectual or developmental disability (IDD) and asthma are at greater risk of poor health outcomes. They often require assistance from caregivers when managing their medicines. The objective of this pilot study was to assess the level of understanding of asthma self-management concepts of family caregivers who…
Descriptors: Diseases, Intellectual Disability, Developmental Disabilities, At Risk Persons
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Riches, Tanya N.; O'Brien, Patricia M. – British Journal of Learning Disabilities, 2017
Background: This article presents a case study of the Centre for Disability Studies' Inclusive Research Network. The network is a dynamic group of around fifteen people who have intellectual and other disabilities, support workers and university researchers. Methods: The study was based upon an evaluation of the group's research practice, as…
Descriptors: Intellectual Disability, Case Studies, Developmental Disabilities, Focus Groups
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Robert, Marie; Leblanc, Line; Boyer, Thierry – British Journal of Learning Disabilities, 2015
Parents of children with developmental disabilities (autism or intellectual disabilities) are more susceptible to stress and have a greater burden of adversity than other parents. Their well-being and satisfaction greatly depend on the system's response of finding them formal support and the help they need. This study proposes an interpretive…
Descriptors: Satisfaction, Parents, Experience, Children
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Martean, Melissa Hannah; Dallos, Rudi; Stedmon, Jacqui; Moss, Duncan – British Journal of Learning Disabilities, 2014
With increasing longevity amongst people with learning disabilities, it is not surprising that prevalence and incidence rates of cancer are growing at a significant rate. Much of the research undertaken in the area of psycho-oncology has focused on the "general population", and over the last decade, there has been increasing interest in…
Descriptors: Cancer, Developmental Disabilities, Females, Personal Narratives
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Pritchard, Duncan; Hoerger, Marguerite; Dyer, Tim; Graham, Nicola; Penney, Heather; Mace, F. Charles – British Journal of Learning Disabilities, 2014
People with learning disabilities are sometimes prescribed psychotropic medication to help manage their challenging behaviour. This case study describes how a multicomponent behavioural intervention in conjunction with the systematic withdrawal of sodium valproate was strongly correlated with reduced aggression. No symptoms of bipolar disorder or…
Descriptors: Drug Therapy, Drug Rehabilitation, Developmental Disabilities, Aggression
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