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Turnpenny, Agnes; Rand, Stacey; Whelton, Beckie; Beadle-Brown, Julie; Babaian, Jacinta – British Journal of Learning Disabilities, 2021
Background: There are a growing number of people with learning disabilities and autism who access personal budgets in the form of direct payments in England. Although they are often involved in decisions about their support, personal budgets are usually managed by someone else, typically a parent. This study examined the experiences of carers who…
Descriptors: Caregivers, Money Management, Budgets, Adults
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Graham, Yitka N. H.; Gerrard, David; Laight, Samantha; Brown, Rebecca; Keith, Sarah; Hayes, Catherine – British Journal of Learning Disabilities, 2020
Background: The issues surrounding the prescribing and monitoring of medications for people with learning disabilities and behaviours deemed to be challenging, and are complex in their management for patients, healthcare professionals and carers. The aim of the study was to explore the impact of the pharmacist independent prescriber on a…
Descriptors: Health Personnel, Pharmacy, Drug Therapy, Intellectual Disability
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Sawhney, Indermeet; Zia, Asif; Yazdi, Bahar; Shankar, Rohit – British Journal of Learning Disabilities, 2020
Background: People with epilepsy (PWE) have a higher fracture risk than nonepilepsy populations. Antiepileptic drugs (AEDs) cause bone loss. Limited physical activity and poor dietary intake increase fracture risk in PWE. People with an intellectual disability have higher prevalence of epilepsy, likely to be on multiple AEDs, with poorer response,…
Descriptors: Epilepsy, Intellectual Disability, At Risk Persons, Drug Therapy
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Gray, Jennifer A.; Kim, Jinsook – British Journal of Learning Disabilities, 2020
Background: Direct care workers (DCWs) caring for people with intellectual and developmental disabilities (PWIDD) provide palliative care, but research indicates DCWs are ill-equipped to do so. This study aimed to assess DCWs' palliative care experience and training and their perceived training needs. Materials and Methods: Staff trained as DCWs…
Descriptors: Caregivers, Health Services, Intellectual Disability, Developmental Disabilities
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Sitter, Kathleen C.; Burke, Amy C.; Ladhani, Sheliza; Mallay, Nicole – British Journal of Learning Disabilities, 2019
Background: Although sexual rights are human rights, persons with developmental disabilities are often excluded from developing positive sexual health due to societal attitudes, stigma, a lack of education and limited opportunities. Methods: As a part of a 12-month participatory action research study in a western Canadian province, nine adults…
Descriptors: Sexuality, Participatory Research, Action Research, Video Technology
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Egan, Caroline; Dalton, Caroline Teresa – British Journal of Learning Disabilities, 2019
Background: People with intellectual disabilities are experiencing increased longevity, and in parallel, their family caregivers are also ageing. The literature identifies that these caregivers are at risk of burden. The aim of this study was to measure the level of caregiver burden among older carers of adults with intellectual disabilities in an…
Descriptors: Foreign Countries, Older Adults, Adults, Intellectual Disability
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Ho, Portia; Downs, Jenny; Bulsara, Caroline; Patman, Shane; Hill, Anne-Marie – British Journal of Learning Disabilities, 2018
Background: People with intellectual disability encounter substantial healthcare discrepancies, yet are under-represented in research. While people with intellectual disability can make valuable contributions to research and consequently improve their quality of life, researchers encounter multiple challenges including them in research. One…
Descriptors: Intellectual Disability, Informed Consent, Injuries, Research
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Sheehan, Rory; Kimona, Kate; Giles, Audrey; Cooper, Vivien; Hassiotis, Angela – British Journal of Learning Disabilities, 2018
Background: There is relatively little published data that report the experiences and views of family carers of people with intellectual disabilities who display challenging behaviour who are prescribed psychotropic medication. Materials and methods: An online structured questionnaire was created by the Challenging Behaviour Foundation, a UK…
Descriptors: Online Surveys, Caregivers, Intellectual Disability, Drug Therapy
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Reidy, Mary; Denieffe, Suzanne; Foran, Sinéad – British Journal of Learning Disabilities, 2018
Background: Internationally, it is known that there are gaps in cancer and screening awareness among women with intellectual disabilities. Little is known about this awareness among Irish women with intellectual disabilities. The aim of this study was to explore this awareness among these women. Materials and Methods: The study design incorporated…
Descriptors: Cancer, Screening Tests, Females, Intellectual Disability
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Erickson, Steven R.; Juncaj, Sophia; Buckley, Charlotte – British Journal of Learning Disabilities, 2018
Background: People who have an intellectual or developmental disability (IDD) and asthma are at greater risk of poor health outcomes. They often require assistance from caregivers when managing their medicines. The objective of this pilot study was to assess the level of understanding of asthma self-management concepts of family caregivers who…
Descriptors: Diseases, Intellectual Disability, Developmental Disabilities, At Risk Persons
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Chiner, Esther; Gómez-Puerta, Marcos; Cardona-Moltó, María Cristina – British Journal of Learning Disabilities, 2017
Background: Internet offers opportunities to people with intellectual disabilities, but it also involves some risks. The aim of this study was to explore these issues considering caregivers and people with intellectual disabilities' perspectives. Materials and Methods: A descriptive, cross-sectional study was conducted. The sample consisted of 77…
Descriptors: Internet, Intellectual Disability, Caregivers, Attitude Measures
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Thornton, Victoria; Williamson, Rachel; Cooke, Bronwen – British Journal of Learning Disabilities, 2017
Background: Mindfulness is becoming increasingly reported as an effective way to support well-being and reduce mental health difficulties. Materials and Methods: This study reports on the development and pilot of a mindfulness-based group for young people with learning disabilities and their carers. Results: Group participants reported that the…
Descriptors: Metacognition, Youth, Learning Disabilities, Pilot Projects
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Flood, Bernadette; Henman, Martin C. – British Journal of Learning Disabilities, 2015
People with intellectual disabilities may be "invisible" to pharmacists. They are a complex group of patients many of whom have diabetes. Pharmacists may have little experience of the challenges faced by this high risk group of patients who may be prescribed high risk medications. This case report details information supplied by Pat, a…
Descriptors: Case Studies, Mental Retardation, Disabilities, Pharmacy
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Davys, Deborah; Mitchell, Duncan; Haigh, Carol – British Journal of Learning Disabilities, 2015
A total of 15 adult siblings of people who have a learning disability were interviewed in relation to their future wishes and expectations of care giving. Interpretative Phenomenological Analysis (IPA) was used to analyse transcripts from the interviews where it was demonstrated that futures planning remains an area of difficulty for families of…
Descriptors: Siblings, Autism, Mental Retardation, Phenomenology
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Craig, Jocelyn E.; Cartwright, Collen – British Journal of Learning Disabilities, 2015
Background: The concerns of older carers of an adult with disabilities have been well documented. The sudden incapacity or death of the carer can result in a crisis response rather than a planned transition to a chosen sustainable alternative care arrangement for the person with disability. Building on previous "Futures Planning"…
Descriptors: Older Adults, Caregivers, Disabilities, Planning
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