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Codd, Jon; Hewitt, Olivia – British Journal of Learning Disabilities, 2021
Background: Transition to adulthood is an important time for young people and may be a particularly challenging time for people with intellectual disabilities. However, there has been little research in the UK regarding the experiences of parents who have son or daughter with an intellectual disability transitioning to adulthood. Method: The study…
Descriptors: Intellectual Disability, Autism, Pervasive Developmental Disorders, Parent Attitudes
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Turnpenny, Agnes; Rand, Stacey; Whelton, Beckie; Beadle-Brown, Julie; Babaian, Jacinta – British Journal of Learning Disabilities, 2021
Background: There are a growing number of people with learning disabilities and autism who access personal budgets in the form of direct payments in England. Although they are often involved in decisions about their support, personal budgets are usually managed by someone else, typically a parent. This study examined the experiences of carers who…
Descriptors: Caregivers, Money Management, Budgets, Adults
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Cameron, Harriet; Cooper, Louise – British Journal of Learning Disabilities, 2021
Background: This small study explores the lived experience of four UK-based fathers (one black British, one white Polish and two white British) caring for at least one child with a dual diagnosis of learning disability and autism. The key aim was to get as close as possible to understanding the experience of these fathers in their role as carers.…
Descriptors: Fathers, Child Caregivers, Caregiver Role, Parent Child Relationship
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Firth, Graham; Glyde, Megan; Denby, Gemma – British Journal of Learning Disabilities, 2021
Background: This study looked to investigate the sometimes conscious and sometimes intuitive decision-making processes of Intensive Interaction practitioners. More specifically, this study set out to develop a rich description of how practitioners make judgements when developing a dynamic repertoire of Intensive Interaction strategies with people…
Descriptors: Decision Making, Residential Care, Allied Health Personnel, Speech Language Pathology
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Mc Gill, Ciara; Breen, Cathal J. – British Journal of Learning Disabilities, 2020
Introduction: Adults with complex needs and severe learning disability present as a serious management problem within the community. Restrictive interventions are often used to manage adults with these issues, even though best practice recommends the use of positive behaviour support. Positive behaviour support involves functional analysis, but it…
Descriptors: Adults, Behavior Modification, Behavior Problems, Intervention
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Atkinson-Jones, Katherine; Hewitt, Olivia – British Journal of Learning Disabilities, 2019
Background: Social and communication impairments are a core diagnostic feature of autism spectrum disorder (ASD) and can act as a barrier to developing relationships. The National Institute for Health and Care Excellence (2016) guidelines recommend group social skills interventions as the first-line treatment to help adults with ASD improve their…
Descriptors: Autism, Pervasive Developmental Disorders, Intervention, Group Activities
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Nancarrow, Thomas; Rencher, Joshua; Wilcock, Mike; Bonell, Simon; Wolke, Tony; Shankar, Rohit – British Journal of Learning Disabilities, 2019
Background: Intellectual disability (ID) is associated with polypharmacy particularly off-label psychotropics for "challenging behaviour." NHS England introduced the "stopping over medication of people with a learning disability (LD), autism or both" (STOMP) initiative. As ID services are a professionally diverse group, it is…
Descriptors: Intellectual Disability, Learning Disabilities, Correlation, Drug Therapy
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Gobrial, Ereny; McAnelly, Su; Shannon, Patrick – British Journal of Learning Disabilities, 2019
This paper outlines, through a transnational discourse between partners in Egypt and the UK, an overview of the literature on the definition and features of autistic spectrum disorder (ASD) with associated learning needs and health conditions as applied to children and young people in Egypt. As a low- to middle-income country, Egypt has a poor and…
Descriptors: Children, Young Adults, Autism, Pervasive Developmental Disorders
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Wolfenden, Claire; Wittkowski, Anja; Jones, Simon A.; Rust, Stewart; Hare, Dougal J. – British Journal of Learning Disabilities, 2019
Symptoms of autism spectrum disorder (ASD) are present in children with mucopolysaccharidosis type III (MPS III). Questionnaires measuring the two core domains of ASD (social responsiveness and repetitive behaviour) were completed by N = 17 parents of children with MPS III. Results indicated that scores consistent with ASD were reported by all…
Descriptors: Autism, Pervasive Developmental Disorders, Genetic Disorders, Children
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Caveney, Domanic; Wassall, Shaun; Rayner, Kelly – British Journal of Learning Disabilities, 2018
Background: Clients with attachment issues are over-represented in learning disability services. Forensic inpatient services are no exception. Treatment pathways comprise multidisciplinary interventions, and skills-based treatments are considered vital to recovery and maintenance of prosocial and adaptive behaviour and reduction in risk. An…
Descriptors: Intervention, Case Studies, Attachment Behavior, Autism
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Byrne, Gary; Sarma, Kiran M.; Hendler, John; O'Connell, Anthony – British Journal of Learning Disabilities, 2018
Background: Raising a child with autism spectrum conditions (ASC) presents many challenges and learning experiences for parents and other family members. There has been limited research to date on Irish parents' experience of raising a child with ASC. The aim of this study was to describe the experience of a sample of Irish parents who have a…
Descriptors: Parent Attitudes, Child Rearing, Autism, Pervasive Developmental Disorders
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Potter, Carol A. – British Journal of Learning Disabilities, 2017
Background: A diagnosis of childhood autism can be an extremely stressful experience for parents, but little is known concerning paternal perceptions of the process. Methods: This study investigated father perspectives on a diagnosis of autism, through an online survey. Results: An analysis of 184 replies to an open-ended question identified the…
Descriptors: Clinical Diagnosis, Parent Attitudes, Fathers, Online Surveys
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Buskermolen, Willem Meindert; Hoekman, Joop; Aldenkamp, Albert Pierre – British Journal of Learning Disabilities, 2017
Background: In this article, we describe our study of the prevalence of behaviour that challenges and which internal factors are related to behaviour that challenges in 21 people (fourteen are male, seven are female, varying in age from 12.4 to 42 years; mean 26.6, SD 7.27) with intellectual disabilities who have hearing impairments. Materials and…
Descriptors: Intellectual Disability, Hearing Impairments, Deafness, Longitudinal Studies
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Wong, Wendy; Sajith, Sreedharan Geetha – British Journal of Learning Disabilities, 2017
Background: Pathologic aerophagia (PA) is characterised by excessive swallowing of air resulting in significant abdominal distension or belching. This is a relatively rare condition in general population but has been reported in up to 8.8% of institutionalised patients with intellectual disability. In severe cases, this can cause volvulus and…
Descriptors: Intellectual Disability, Autism, Pervasive Developmental Disorders, Etiology
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Hamilton, Jahnese; Ingham, Barry; McKinnon, Iain; Parr, Jeremy R.; Tam, Louise Yuen-Chong; Le Couteur, Ann – British Journal of Learning Disabilities, 2017
Background: Adults with intellectual disabilities and/or autism are often excluded from participating in health and healthcare research. Understanding study information, which is an important aspect of demonstrating capacity to give informed consent, can be a particular challenge. This study surveyed clinical researchers to discover: (i) their…
Descriptors: Adults, Intellectual Disability, Cognitive Ability, Informed Consent
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